Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

33,417 members•24,592 posts

All posts for April 2025

I am in shock - a good one!

Collected my usual prescription this morning and, for the first time ever, it included a packet of five Hydroxocobalamin 1mg in 1ml solution for injection. My...

Collected my usual prescription this morning and, for the first time ever, it in...

annmarierodnes

•11 hours ago

1 Reply

Inflammation reduction foods

All autoimmune diseases are associated with inflammation, either as a cause or as a consequence, and PA is not an exception, as anyone who suffers from PA will...

All autoimmune diseases are associated with inflammation, either as a cause or a...

Budsa

•1 day ago

2 Replies

diet info

do you have a recommendation for the diet you used please.

vsloan1

•1 day ago

3 Replies

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Wishing you all a very HAPPY EASTER.🐇

Go steady on the Chocolate

Jillymo

•2 days ago

16 Replies

60 Day Trial

For over a year I have been compounding or reconstituting the B12 that I inject. This is from a source that is not Oxford Bioscience and I chose not to share....

For over a year I have been compounding or reconstituting the B12 that I inject....

WIZARD6787

•2 days ago

6 Replies

Random question

Hey all, just a random question that occurred to me today. I wanted to ask thr brain trust to see if you all knew the reason why. So if PA is usually a b12...

Hey all, just a random question that occurred to me today. I wanted to ask thr ...

Mrl1234

•3 days ago

38 Replies

So anxious

Thanks to anyone who takes the time to read or reply to my post. Before Christmas 2024 I started to feel unwell, initially thought I was getting a virus....

Thanks to anyone who takes the time to read or reply to my post. Before Christ...

Hgsn

•3 days ago

17 Replies

Loading doses finished.

Hi , I was diagnosed in January with very low B12 ( less than 100) enlarged blood cells and pernicious anaemia. I have just finished 3x weekly loading doses...

Hi , I was diagnosed in January with very low B12 ( less than 100) enlarged blo...

Beachf

•4 days ago

17 Replies

I want to share this small (HUGE) win with people who understand

Been injecting for 2 years this month. I've had some setbacks due to other health conditions I had to figure out but I've been a million times better even with...

Been injecting for 2 years this month. I've had some setbacks due to other healt...

Iheartb12

•4 days ago

7 Replies

Blood results

Hi everyone these are my latest blood results I had done privately in March.Each time I go to my GP with an issue she says it’s anxiety and my bloods are...

Hi everyone these are my latest blood results I had done privately in March.Each...

Foxesdiv1

•5 days ago

10 Replies

Low B12 and red blood cells odd shape large

My B12 was very low last year. Dr has just left it. I've tried raising my B12 with supplement, coukdnt do it as felt 1000%worse. I've tried food, beef liver,...

My B12 was very low last year. Dr has just left it. I've tried raising my B12 wi...

Plumpudding

•5 days ago

27 Replies

B12 deficiency related to hemolysis?

I have had elevated Bilirubin for some time which was put down to gilbert syndrome. However, my haematologist who i see for hemochromatosis requested a DAT...

I have had elevated Bilirubin for some time which was put down to gilbert syndro...

bflare

•7 days ago

4 Replies

Pins and needles

Hi, I hope you are all hanging on in there! I am a newbie here so hello to everyone on this Forum. I am struggling very much with awful pins and needles...

Hi, I hope you are all hanging on in there! I am a newbie here so hello to e...

bubbatetley

•7 days ago

12 Replies

Gastroscopy results

Hello, I've had the gastroscopy results - the biopsies show that I have gastritis. H. pylori negative. This is following long term iron deficiency, B12...

Hello, I've had the gastroscopy results - the biopsies show that I have gastrit...

Maldeerum

•8 days ago

11 Replies

Candida

Does anyone else have recurring issues with Candida overgrowth? I get brain fog, fatigue, sore lips, tongue, bloating and thrush. Drives me insane. Please tell...

Does anyone else have recurring issues with Candida overgrowth? I get brain fog,...

Hayley31

•9 days ago

15 Replies

Thyroid issues and PA

Well just over 6 months into being diagnosed with PA/AIG my thyroid is playing up and I'm feeling really crap again, fatigue! My normal doctor is on leave for...

Well just over 6 months into being diagnosed with PA/AIG my thyroid is playing u...

Raven_Cat

•9 days ago

2 Replies

Over Stimulation and Under Stimulation.

I am sharing this as I find others work of sharing to be valuable. Instruction or describing what I experience, have experienced or will experience, not so...

I am sharing this as I find others work of sharing to be valuable. Instruction o...

WIZARD6787

•10 days ago

4 Replies

Losing my hope - Chronic Gastritis!

It’s almost a year that I’ve been suffering from chronic gastritis. I’ve done everything – endoscopies and biopsies – and it was found to be chronic gastritis....

It’s almost a year that I’ve been suffering from chronic gastritis. I’ve done ev...

Asddtr

•10 days ago

34 Replies

B12 injection

Hi I have lost all my saved addresses to order B12 injections. Pease would some one in this group send them to me. I have ordered before I am...

Hi I have lost all my saved addresses to order B12 injections. Pease would some ...

Chocolate41

•11 days ago

6 Replies

Low B12 and Ferritin-Should I get an iron infusion?

Hi, my bloods in Feb 2025 were:Serum B12 total: 249ng/L B12 Active 64.6pmol/L Ferritin 13 (been on and off supplements for 2 years, this was off again for...

Hi, my bloods in Feb 2025 were:Serum B12 total: 249ng/L B12 Active 64.6pmol/L Fe...

J1MC

•12 days ago

15 Replies

Vitamin B12 levels within normal range linked to cognitive decline in older adults

I came across this interesting article which I wanted to share....

Niadancer

•13 days ago

3 Replies

blood test results (not b12) all marked ‘satisfactory-no action’

i had some blood test last week and all within range but many are near or on the lower or higher limit. ALT 31 (range 0-34) MCV 100.5 (83-101) MCH 31.6...

i had some blood test last week and all within range but many are near or on the...

Showgem

•13 days ago

23 Replies

Thrush and B12

I'm almost 4 months into SI B12 EOD. Last week I got vaginal thrush the first time for over 20 years. I'm 69 and have minimal oestrogen replacement. No...

I'm almost 4 months into SI B12 EOD. Last week I got vaginal thrush the first ti...

Caradoc1a

•14 days ago

21 Replies

Can too much B12 be a bad thing?

I’ve been self injecting B12 for about a year and a half now because I have terrible numbness, burning, pain and hypersensitivity in my feet and weak and off...

I’ve been self injecting B12 for about a year and a half now because I have terr...

FancyPants54

•14 days ago

34 Replies

Burning mouth

Hi all, I n the last few months I've been diagnosed with pernicious anaemia, autoimmune thyroid disease and lupus. Ive been experiencing symptoms for over 6...

Hi all, I n the last few months I've been diagnosed with pernicious anaemia, aut...

Dro47

•15 days ago

13 Replies

Help on where to purchase b12 injections for subcutaneous injection

I have been diagnosed with pernicious anaemia and the fight to get it even 8 weekly let alone 4 weekly like I used to have it is really having a detrimental...

I have been diagnosed with pernicious anaemia and the fight to get it even 8 wee...

Ntreacy

•15 days ago

7 Replies

Folate blood test results done week apart and different?

Hello! Apologies if I’ve posted this in the wrong place. Last week I had blood test which showed my folate at 3 - which is low. The nurse practitioner...

Hello! Apologies if I’ve posted this in the wrong place. Last week I had b...

OrangeElephant1215

•15 days ago

2 Replies

Why is B12 deficiency so badly managed by GPs????(genuine question!)

So, this may be a slightly rhetorical rant, but....... Why are GPs (talking about in the UK as that is where I am, although from my reading I can see...

So, this may be a slightly rhetorical rant, but....... Why are GPs (talking abo...

MarvelousWays

•15 days ago

58 Replies

More information on neuro bloods

I have now had more information about my neuro bloods and wondered if anyone had a positive sox 1 paraneoplastic blood test result?I am being sent for lots of...

I have now had more information about my neuro bloods and wondered if anyone had...

Hgsn

•16 days ago

1 Reply

Self-administering subcutaneous levothyroxine injections

Given that levothyroxine is rarely injected, and not even licensed for subcutaneous delivery, the idea that a patient is self-administering subcutaneous...

Given that levothyroxine is rarely injected, and not even licensed for subcutane...

helvella

•17 days ago

19 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for April 2025

I am in shock - a good one!

Inflammation reduction foods

diet info

Wishing you all a very HAPPY EASTER.🐇

60 Day Trial

Random question

So anxious

Loading doses finished.

I want to share this small (HUGE) win with people who understand

Blood results

Low B12 and red blood cells odd shape large

B12 deficiency related to hemolysis?

Pins and needles

Gastroscopy results

Candida

Thyroid issues and PA

Over Stimulation and Under Stimulation.

Losing my hope - Chronic Gastritis!

B12 injection

Low B12 and Ferritin-Should I get an iron infusion?

Vitamin B12 levels within normal range linked to cognitive decline in older adults

blood test results (not b12) all marked ‘satisfactory-no action’

Thrush and B12

Can too much B12 be a bad thing?

Burning mouth

Help on where to purchase b12 injections for subcutaneous injection

Folate blood test results done week apart and different?

Why is B12 deficiency so badly managed by GPs????(genuine question!)

More information on neuro bloods

Self-administering subcutaneous levothyroxine injections

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