Homocysteine finally in optimal range

[Perniciousgirl]

This isn’t really of interest to others but I’m just so excited. 😊

My latest homocysteine results were just uploaded and after 8 years of having severely high homocysteine (untested before so assumed to be high for a very long time ), as well as two scary TIA’s, my homocysteine has finally come down!!

Not only has it just come down, but It is now in perfect range !!

That’s after 2.5 months of high dose b12 (methylcobalamin) injections, active folate and medications for Gastroparesis.

Even though the reversing out symptoms have been hard to deal with, I’m so happy about the homocysteine. I just wish they had tested me for AG/PA long ago.

Yay for b12 injections 🎉

[Nackapan]

Great news🥳 !

[Perniciousgirl in reply to Nackapan]

thanks a mil 😊

[Sleepybunny]

Hi,

Great to have a good news story on the forum.

Just wondered if you'd considered joining PAS (Pernicious Anaemia Society)?

pernicious-anaemia-society....

PAS are based in UK but have some overseas members. PAS membership is separate to membership of this forum. You do not need a confirmed PA diagnosis to join.

pernicious-anaemia-society....

They have support groups in UK, USA, Sweden and Australia- New Zealand and are keen to hear from people wanting to set up support groups in other countries.

Other B12 websites

B12info.com

B12info.com is run by a UK campaigner on B12 deficiency issues. People from across world visit her website.

b12info.com/

B12 Awareness (US website)

Set up by Sally Pacholok, US campaigner on B12 deficiency issues.

Sally Pacholok has some online articles and videos about B12 deficiency.

b12awareness.org/

Stichting B12 Tekort

Dutch B12 website with English articles.

stichtingb12tekort.nl/english/

Two B12 books I found useful

They were published some years ago so some bits might need updating.

"What you need to know about Pernicious Anaemia and Vitamin B12 Deficiency"

by Martyn Hooper who set up Pernicious Anaemia Society

"Could it be B12?"

by Sally Pacholok and J.J, Stuart

I'm not medically trained.

[Perniciousgirl in reply to Sleepybunny]

Hey. Will have a look at it all, thanks

[wedgewood]

I’m so pleased for you Perniciousgirl!💐

[Perniciousgirl in reply to wedgewood]

Thanks so much 😊

[Dislancas69]

this is extremely interesting to me and exciting for you ..I’m waiting for my results of homocysteine to see if I need b12 …the repercussions from it being high is a worry …it’s fantastic for you

[Perniciousgirl in reply to Dislancas69]

Yes for sure high homocysteine, especially for prolonged periods, isn’t good. I hope you get your results soon. 🤞🏼🤞🏼

I had done oral b12 before diagnosis of PA and it had done nothing, only the very high dose of injections made a difference, along with active folate.

I’m in South Africa and am on private medical care, so I get my results within 24/48 hours.

[Dislancas69 in reply to Perniciousgirl]

Thankyou I kinda forgot we are all over the world ….and some of the U.K needs catching up on how to speed up … thankyou

[Dislancas69]

forgot to ask how long to get your results …possibly different parts country and N.H.S. / private all different but I’ve been waiting 12 days so far including weekends …it’s my last test I’m waiting on thankyou