Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for March 2021

Taking injections when iron is low

If my iron is low and I’m getting symptoms of low iron is it ok to continue b12 injections . I’m taking iron and trying to keep levels up but still have...

If my iron is low and I’m getting symptoms of low iron is it ok to continue b12 ...

Andypandy30

•3 years ago

12 Replies

Romberg test

Has anyone ever tired the Romberg test. I was reading up on abnormal gaits etc and came across this test. I tried it and failed miserable on the tandem part....

Has anyone ever tired the Romberg test. I was reading up on abnormal gaits etc a...

Bates2587

•3 years ago

31 Replies

So many symptoms, does it sound like b12 😣

My last b12 bloods were 314 pretty much exactly 2 years ago. I've had so many scans, tests for what started out as extreme fatigue and frequent urination....

My last b12 bloods were 314 pretty much exactly 2 years ago. I've had so many sc...

Kizzik

•3 years ago

5 Replies

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Is it safe to take different types of b12 injections

I'm in the UK and I get my b12 Neo-Cytamen or Hydroxocobalamin from my GP. I got my last b12 online but I cant find this b12 for injections. Is it ok to take...

I'm in the UK and I get my b12 Neo-Cytamen or Hydroxocobalamin from my GP. I got...

area16rep

•3 years ago

3 Replies

GP wants me to stop SI. Help Please.!!

I just got a message from my GP asking me to stop SI as my serum B12 is over 2000. I have a face to face meeting with him on Wednesday. He is new to me but...

I just got a message from my GP asking me to stop SI as my serum B12 is over 2...

WorkingProgress

•3 years ago

15 Replies

Head shaking

My head feels like its going through an earthquake. Is this a head tremor? Has anyone else experienced it?

My head feels like its going through an earthquake. Is this a head tremor? Has a...

Jirachi

•3 years ago

1 Reply

Very poorly, does this sound its because of b12 deficiency?

Hi, i am 20 years old and i have been very poorly since January 2nd. All of a sudden i got chest pains and since then i have been unwell and gradually gotten...

Hi, i am 20 years old and i have been very poorly since January 2nd. All of a su...

Jirachi

•3 years ago

7 Replies

1st time self-injecting (thank you)

Today I self-injected my B12 for the first time. I had someone give me some guidance snd support, which was enormously helpful. It was vastly easier and less...

Today I self-injected my B12 for the first time. I had someone give me some guid...

Damn-it

•3 years ago

7 Replies

GERD and B12?

Does anyone know if there is any relation between GERD and B12 deficiency?

Ctadds1

•3 years ago

19 Replies

Pins and needles

Hi Guys, I am experiencing an increase in pins and needles in my left arm, they come on in waves several times a day and are quite intense for 5minuts or so....

Hi Guys, I am experiencing an increase in pins and needles in my left arm, they ...

12bars

•3 years ago

4 Replies

Help iron?? B12 is now fine! (Self injected)

I recently had bad thyroid levels which appear to have magically fixed themselves with annual monitoring by GP hopefully I can keep this on the right side of...

I recently had bad thyroid levels which appear to have magically fixed themselve...

Twinkle41555

•3 years ago

2 Replies

Metformin/B12 deficiency

Hi, Looking for help for a friend. Her husband is diabetic and on Metformin. He’s getting worse with lots of symptoms and the GP says it’s his diabetes. I’m...

Hi, Looking for help for a friend. Her husband is diabetic and on Metformin. He’...

Bamboo71

•3 years ago

6 Replies

Updated labs

Had CBC with diff, CK, Ferratin, B12 and D. WBC slightly elevated as it has been for over a year now with no explanation. B12 at 700 D still low but almost...

Had CBC with diff, CK, Ferratin, B12 and D. WBC slightly elevated as it has been...

Sgboyd

•3 years ago

2 Replies

Too much b12 - how can I reduce it to relieve symptoms

Not sure if I am asking in the right space but I appear to have messed up my methylation I have homozygous SNPs on MTHFR and MTRR etc and have taken too much...

Not sure if I am asking in the right space but I appear to have messed up my met...

Curious-mo

•3 years ago

3 Replies

PA and fatty liver

Hi , i am diagnosed with PA 3 years ago and i am on regular methylcobalamin 500 mcg injections . Initially i have done an ultrasound and my liver was normal....

Hi , i am diagnosed with PA 3 years ago and i am on regular methylcobalamin 500 ...

Thulasi1

•3 years ago

18 Replies

Could my hip pain be something to do with PA?

I was diagnosed with PA last March. I've had hip pain for about 3 years but it is getting a lot worse since last year. Pain killers don't work and the...

I was diagnosed with PA last March. I've had hip pain for about 3 years but it i...

Rhiannaberry

•3 years ago

4 Replies

Frustrated.....

I posted on here 3 months ago how at 10 weeks my PA/B12 symtoms get worse, but docs will not inject me any sooner than 12 weeks. I received some fantastic...

I posted on here 3 months ago how at 10 weeks my PA/B12 symtoms get worse, but d...

Brownie49

•3 years ago

9 Replies

Frequent B12 and kidneys

Hello Over last year I have to inject daily (2 x 1 mg injections hydrox) and I get debilitating symptoms if I ease off. My question is, does anyone know if...

Hello Over last year I have to inject daily (2 x 1 mg injections hydrox) and I g...

Kerrierach

•3 years ago

19 Replies

Doctor not reinstating b12 injections

So been to doctors today to discuss my recent blood test and intrinsic factor antibody (came back negative)she’s happy with my b12 level of 532 so is not...

So been to doctors today to discuss my recent blood test and intrinsic factor an...

Dragon_mum

•3 years ago

18 Replies

SI hydroxy 1ml everyday

Hello all myself again with another question. As I have read many SI everyday as they have to. Fair enough as I do .... I try to space it our some days but...

Hello all myself again with another question. As I have read many SI everyday ...

WorkingProgress

•3 years ago

9 Replies

App to track injections and symptoms

Does anyone have any suggestions for an app to track injection frequency and symptoms? I've tried a couple but they seem quite clunky

Does anyone have any suggestions for an app to track injection frequency and sym...

ottiliefloyd

•3 years ago

5 Replies

Elevated Eosinophils and Neutrophils

Hello PA community! Recently I’ve had a CBC show elevated eosinophils and neutrophils. I’ve been injecting with hydroxocobalamin 1000 mcg once a week (few...

Hello PA community! Recently I’ve had a CBC show elevated eosinophils and neutro...

Dolansan

•3 years ago

5 Replies

MTHFR C677T diagnosis Query!

Hi does anyone know what MTHFR C677T - non homozygous - carrier status only means??? I had the test at the Adult Metabolic Clinic due to high Homocysteine &...

Hi does anyone know what MTHFR C677T - non homozygous - carrier status only mean...

Sparkle44

•3 years ago

12 Replies

GP guidance

Hi, please can somebody post a link to the NICE guidelines for PA management. My sisters new GP is now refusing to treat her because her levels are normal....

Hi, please can somebody post a link to the NICE guidelines for PA management. My...

Murfie276

•3 years ago

15 Replies

Any advice on caring for someone with b12 deficiency?

I hope it's ok to post here - I don't have b12 deficiency/PA myself, but am a carer for my 98 year-old Grandmother who does. Her symptoms are confusion,...

I hope it's ok to post here - I don't have b12 deficiency/PA myself, but am a ca...

Bulldog3000

•3 years ago

29 Replies

High B12 low Folate.

Hi. I have just had a bloods review and as expected, because I have been SI, my B12 level was described as off the scale at 2000. My Folate however was at the...

Hi. I have just had a bloods review and as expected, because I have been SI, my ...

Hidden

•3 years ago

5 Replies

THE USUAL SUGGESTION TO NEW MEMBERS TO USE “AMAZON SMILE “ IF SHOPPING THERE,AND TO CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY !

Yes , I’m a bore, always putting this up . But , “ Every little helps” , at no cost to the purchaser .

Yes , I’m a bore, always putting this up . But , “ Every little helps” , at no c...

wedgewood

•3 years ago

5 Replies

Loading b12 doses done and still tired

I have had my b12 6 loading doses but still feeling so tired and gp says I have have to wait 12 weeks for next injection, when should I start to feel less...

I have had my b12 6 loading doses but still feeling so tired and gp says I have ...

Speedway51

•3 years ago

6 Replies

Curiosity

Evening all I have a b12 deficiency and I self inject twice a week. I have not been feeling great of late so I decided to get a full blood work done and...

Evening all I have a b12 deficiency and I self inject twice a week. I have not ...

Sunshine1932

•3 years ago

4 Replies

too late to prove b12 deficiency?!

hi I had low active b12, enlarged red blood cells and loads of symptoms. started the shots about six months ago. lots of symptoms left. but at the time I...

hi I had low active b12, enlarged red blood cells and loads of symptoms. started...

cantstopit

•3 years ago

16 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2021

Taking injections when iron is low

Romberg test

So many symptoms, does it sound like b12 😣

Is it safe to take different types of b12 injections

GP wants me to stop SI. Help Please.!!

Head shaking

Very poorly, does this sound its because of b12 deficiency?

1st time self-injecting (thank you)

GERD and B12?

Pins and needles

Help iron?? B12 is now fine! (Self injected)

Metformin/B12 deficiency

Updated labs

Too much b12 - how can I reduce it to relieve symptoms

PA and fatty liver

Could my hip pain be something to do with PA?

Frustrated.....

Frequent B12 and kidneys

Doctor not reinstating b12 injections

SI hydroxy 1ml everyday

App to track injections and symptoms

Elevated Eosinophils and Neutrophils

MTHFR C677T diagnosis Query!

GP guidance

Any advice on caring for someone with b12 deficiency?

High B12 low Folate.

THE USUAL SUGGESTION TO NEW MEMBERS TO USE “AMAZON SMILE “ IF SHOPPING THERE,AND TO CHOOSE THE PERNICIOUS ANAEMIA SOCIETY AS YOUR CHARITY !

Loading b12 doses done and still tired

Curiosity

too late to prove b12 deficiency?!

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