I hope it's ok to post here - I don't have b12 deficiency/PA myself, but am a carer for my 98 year-old Grandmother who does.
Her symptoms are confusion, extreme irritability, depression, mood swings, tiredness, reduced mobility, paranoia, diarrhoea, loss of appetite, indigestion/excess acid, tinnitus, tremors, numbness in hands and feet, and cramps in hands.
She had the loading doses by injection on alternate days in November and her first 12-weekly booster shot on 31st January. She's also taking 5mg folic acid and thyroxine, daily.
Since starting treatment, I'd say she definitely has more energy and her confusion is less severe, but like a lot of you posting on here, overall the treatment seems to be making her feel worse, not better.
I'm finding it really difficult to take care of her properly, particularly with her mood swings and paranoia. For example, if I ask her what she'd like to eat, her reply is "nothing. I want to starve to death." If I just bring her food, she refuses to eat it because it's not what she wants or I'm "trying to control" her. If I suggest she has a bath or wash her hair, she gets offended that I'm calling her "dirty." And this is repeated throughout the day with every task you can think of: dressing, washing, eating, laundry, housework, gardening....
I was wondering if any of you had felt this way - like people were attacking or controlling you, when in reality they were trying to help - and can offer any advice on how you would have liked to have been spoken to, or what your loved ones did that made you feel better?
Any suggestions would be very much appreciated. I feel like I've tried everything and we're just going round in circles at the moment.