Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for March 2021

Pulse ox reading average 93%

Hi, for the last year or so I’ve had more and more difficulty breathing. It’s got to a point where some parts of the day I’m literally breathless like I’ve...

Hi, for the last year or so I’ve had more and more difficulty breathing. It’s go...

Hidden

•3 years ago

7 Replies

Hello everyone Newbie here

Hi everybody not long joined want to say Hello to everyone. I'm 62 retired due to struggling with shift work. Suffering from short term memory loss so bad...

Hi everybody not long joined want to say Hello to everyone. I'm 62 retired due t...

john159

•3 years ago

5 Replies

Update from follow up appointment.

Had a long visit with my GP today to discuss all the things going on. I started to explain that I vet significant pain relief and have energy for a few days...

Had a long visit with my GP today to discuss all the things going on. I started ...

Sgboyd

•3 years ago

9 Replies

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First visit to a neurologist for B12 deficiency

I was diagnosed with B12 deficiency Oct 2020, had loading injections, as orally supplements had on effect, which cured some symptoms, but not all. Been...

I was diagnosed with B12 deficiency Oct 2020, had loading injections, as orally ...

olicana1949

•3 years ago

5 Replies

Is it Usual for Neuropathy and Pain to Get Worse with Age?

I meet with my doctor next week and will bring up increased neuropathy, pain, balance issues and new areas of numbness. I suspect she may tell me this is to...

I meet with my doctor next week and will bring up increased neuropathy, pain, b...

lindajanes

•3 years ago

13 Replies

Medical Underwriting

An interesting point of conversation perhaps. I have just been advised that my non specific B12 deficiency which has been successfully treated will attract a...

An interesting point of conversation perhaps. I have just been advised that my ...

GGourmet

•3 years ago

15 Replies

B vitamins

Hi , i have just got tested for vitamins and see that i have very borderline of all most all and deficiency in B1.

Hi , i have just got tested for vitamins and see that i have very borderline of ...

Thulasi1

•3 years ago

8 Replies

Liver profile test grade 2 fatty liver

Hi, can you pls check the below results and let me know if my liver is damaged already?

Hi, can you pls check the below results and let me know if my liver is damaged a...

runlif

•3 years ago

2 Replies

Depot?

I just ordered "B12 depot Rotexmedica Injektionslösung 10X1 ml" from Germany and by mistake added ""B12 Rotexmedica Injektionslösung 10X1 ml" - i.e. not...

I just ordered "B12 depot Rotexmedica Injektionslösung 10X1 ml" from Germany and...

Scipio99

•3 years ago

7 Replies

Hope

O have b12injections every three months did get them every ten weeks before lock down .last October had fractured knee. Took three months to heal. Last six...

O have b12injections every three months did get them every ten weeks before lock...

Wllliam

•3 years ago

3 Replies

Low b12

Last week I had my bloods taken. I later got a letter telling me I will need to go back in 6 weeks to get more checks. I phoned my doctor and they’ve told me...

Last week I had my bloods taken. I later got a letter telling me I will need to ...

Scoobiedash

•3 years ago

9 Replies

Early onset Dementia or Bad Care?

Some 12 months ago, after memory problems, my father was diagnosed with B12 deficiency (he’s 81 now). He was given loading doses but no maintenance regime of 2...

Some 12 months ago, after memory problems, my father was diagnosed with B12 defi...

GGourmet

•3 years ago

5 Replies

nerve damage

how to know for sure my legs are weak and I cant walk much at all due to b12 or not? started treatment 8 months ago, was very severe and couldn't Stand for...

how to know for sure my legs are weak and I cant walk much at all due to b12 or ...

cantstopit

•3 years ago

12 Replies

Do B12 shots have to be subcutaneousor Intramuscul

I have found a site that sells Inject-Ease that I thought might help me through the initial "fear" of self administered injections. Unfortunately their UK...

I have found a site that sells Inject-Ease that I thought might help me through ...

Silvershine

•3 years ago

3 Replies

B12 deficiency and Sjogrens Syndrome

Hi, Article that links B12 deficiency with Sjogrens syndrome...

Sleepybunny

•3 years ago

4 Replies

B12 and Folate levels

Hi, I have been having B12 injections for around 5 years since diagnosis and thanks to the excellent advice on this forum I am now self-injecting every 3...

Hi, I have been having B12 injections for around 5 years since diagnosis and th...

headgirl

•3 years ago

4 Replies

Help needed

My GP who had allowed 6 weekly injections has left the practice. I had a call with new (to me) GP very unhelpful said I had dangerously high levels of B 12...

My GP who had allowed 6 weekly injections has left the practice. I had a call w...

Monbretia

•3 years ago

16 Replies

Allergic reactions

Hopefully this may help some people I have always had bad reactions to insect bites. However in the last twelve months it has got incredibly worse. I have got...

Hopefully this may help some people I have always had bad reactions to insect b...

morgan45

•3 years ago

16 Replies

Nutritional reasons for lips cracking/splitting?

Hi, I hope it is ok to ask this here since members seem to know about vitamin deficiencies! I have a terrible problem with the skin on my lips cracking and...

Hi, I hope it is ok to ask this here since members seem to know about vitamin de...

Curlygal

•3 years ago

31 Replies

Have just been able to order B12 ampoules Rotexmedica B12 depot from www.bodfeld-apotheke.de

I am registered with the above German online pharmacy. Have not been able to order from them all this year . Today I placed an order without any problem , by...

I am registered with the above German online pharmacy. Have not been able to ord...

wedgewood

•3 years ago

21 Replies

Testing options

I have convinced my dad to do proper tests for PA/b12 deficiency. I showed him the viapath website which he would be up for using this. At the moment on the...

I have convinced my dad to do proper tests for PA/b12 deficiency. I showed him t...

Bates2587

•3 years ago

6 Replies

Pernicious anemia websites

What are the best websites to learn about pernicious anemia? There is a German site I'd found when first diagnosed that was excellent, and I can't recall the...

What are the best websites to learn about pernicious anemia? There is a German s...

HealingRose

•3 years ago

7 Replies

Brain fog, memory, cognitive processes. Why zero improvement?

Nine months since I started injections, 7 months of daily injections, methylocobalamin. Since i started injections end of May 2020 I have gone to a gluten...

Nine months since I started injections, 7 months of daily injections, methylocob...

PhilAB

•3 years ago

34 Replies

After b12 injection I get so tired..im on day 3 feeling discouraged..how long does this side effect last?

After b12 injection im so exhausted and kind of depressed..feeling a bit discouraged..anyone else go through this?how long does side effects last?

After b12 injection im so exhausted and kind of depressed..feeling a bit discour...

love2design

•3 years ago

4 Replies

Spring

More signs if spring an animal mustve left. Wasnt planted Despite Gail force March winds spooking the cats at present, the days are lighter and longer ....

More signs if spring an animal mustve left. Wasnt planted Despite Gail force ...

Nackapan

•3 years ago

8 Replies

Feeling tired again?

Hi, everyone — I’m wondering if you all might have some insight here. I started B12 injections and iron supplementation last August. Since then, lots of my...

Hi, everyone — I’m wondering if you all might have some insight here. I started...

still_elsewhere

•3 years ago

3 Replies

When to test?

I has a blood test form for my daughter to test her Mma, homocysteine, FBC and auto abs. I was told to do this is if she deteriorated before her next...

I has a blood test form for my daughter to test her Mma, homocysteine, FBC and a...

Bates2587

•3 years ago

8 Replies

Dropping levels

Hi all. Finished my loading dose four weeks ago, I’ve started to get unusual sensation on my tongue and in my mouth again. I have a blood test in four weeks to...

Hi all. Finished my loading dose four weeks ago, I’ve started to get unusual sen...

MrsBRE

•3 years ago

10 Replies

Self Injecting

Hello my fellow P.A. sufferers I am, like so many other people, experiencing difficulty in getting my injection. I tend to make my appointment and get my...

Hello my fellow P.A. sufferers I am, like so many other people, experiencing di...

Callysrainbow

•3 years ago

18 Replies

A question for all pernisious anemia sufferers .

Hi everyone, I just want to ask.....have all of you that have been diognosed with PA had stomach surgery,bowel surgery or do you suffer from something like...

Hi everyone, I just want to ask.....have all of you that have been diognosed wit...

Mewsmom

•3 years ago

45 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for March 2021

Pulse ox reading average 93%

Hello everyone Newbie here

Update from follow up appointment.

First visit to a neurologist for B12 deficiency

Is it Usual for Neuropathy and Pain to Get Worse with Age?

Medical Underwriting

B vitamins

Liver profile test grade 2 fatty liver

Depot?

Hope

Low b12

Early onset Dementia or Bad Care?

nerve damage

Do B12 shots have to be subcutaneousor Intramuscul

B12 deficiency and Sjogrens Syndrome

B12 and Folate levels

Help needed

Allergic reactions

Nutritional reasons for lips cracking/splitting?

Have just been able to order B12 ampoules Rotexmedica B12 depot from www.bodfeld-apotheke.de

Testing options

Pernicious anemia websites

Brain fog, memory, cognitive processes. Why zero improvement?

After b12 injection I get so tired..im on day 3 feeling discouraged..how long does this side effect last?

Spring

Feeling tired again?

When to test?

Dropping levels

Self Injecting

A question for all pernisious anemia sufferers .

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive