Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,060 members • 23,209 posts

All posts for September 2020

Omg how do some doctors get there degree

just taken my 15 yo daughter to doct as has history of low b12 and iron, her injections were stopped last year on a paediatrician advice and to monitor every 3...

just taken my 15 yo daughter to doct as has history of low b12 and iron, her inj...

sbadd

•4 years ago

2 Replies

Recent PA diagnosis, should I look at diet changes to manage symptoms

Hello all, I’m new to this forum as I have only recently been diagnosed with PA. I have a wide range of symptoms but all are manageable. In my initial tests...

Hello all, I’m new to this forum as I have only recently been diagnosed with PA....

AllieBB

•4 years ago

3 Replies

Stubborn teen

My 18 year old grandson is an elite athlete but has lost his spark. He is in remission with ulcerated colitis and sept 2019 had blood tests taken at the...

My 18 year old grandson is an elite athlete but has lost his spark. He is in rem...

Auntyp62

•4 years ago

6 Replies

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B12 results

Good Morning I have just had a private test of my B12 the results were 282 pmol/L total B12. This has said I am insufficient. Should I be contacting the GP for...

Good Morning I have just had a private test of my B12 the results were 282 pmol/...

Claire67

•4 years ago

2 Replies

B12 injections

Hi all, I was wondering if anyone could help, where I can buy B12 injections. My B12 is low . I have lupus and hashimotos and neuropathic pain. I just moved...

Hi all, I was wondering if anyone could help, where I can buy B12 injections. M...

Josiah150767

•4 years ago

4 Replies

Vegetarianism and PA / IDA

Hi again, everyone — it feels like I’ve been posting too much, but I have so many questions (so thanks for your patience!). I’m in the initial stages of...

Hi again, everyone — it feels like I’ve been posting too much, but I have so man...

still_elsewhere

•4 years ago

46 Replies

Dismissive gp

im shocked how dismissive the gp has just been telling me my levels arnt that low (135) b12

im shocked how dismissive the gp has just been telling me my levels arnt that l...

beca74

•4 years ago

22 Replies

Advice / help please

Hi am new to this group thank you for allowing me to join. A quick rundown of my experience. I became ill in early March and thought it was covid. Symptoms as...

Hi am new to this group thank you for allowing me to join. A quick rundown of my...

Barrymoore

•4 years ago

14 Replies

Do you also have silent reflux (Laryngopharyngeal reflux - LPR) ?

I've noticed I've developed silent reflux at the same time as my other B12 symptoms worsened. I am trying to make my case to my GP, so trying to understand...

I've noticed I've developed silent reflux at the same time as my other B12 sympt...

looking_for_answers

•4 years ago

5 Replies

Feeling awful

Hi everyone, my story is a long one so won’t bore you all, just wanted to know if you can have a 277 b12 result and still be anemic (this test was 6 weeks ago)...

Hi everyone, my story is a long one so won’t bore you all, just wanted to know i...

Vps1980

•4 years ago

5 Replies

First injection done

so i had my first b12 injection today and I requested my blood test results my b12 is 135 , mch is low . Platelet is quite high . Waiting on phone call from...

so i had my first b12 injection today and I requested my blood test results my b...

beca74

•4 years ago

2 Replies

What is wrong ?

So frustrated at the lack of care. Lost just over two stone in weight, totally fatigued ,total lethargy. Eat all meals and take supplement drinks too. earlier...

So frustrated at the lack of care. Lost just over two stone in weight, totally f...

Ronsville2

•4 years ago

1 Reply

One injection per prescription

Hi. I’ve just been to collect my b12 prescription. Instead of the normal box of 5 I was given an individual vile and charged the full prescription amount!...

Hi. I’ve just been to collect my b12 prescription. Instead of the normal box of ...

Nrxx1234

•4 years ago

10 Replies

Fodmap diet

Hi.. I’ve heard the fodmap diet can help but reading up on it it says for IBS only.. I don’t want to cause more damage than good but would love to know if it...

Hi.. I’ve heard the fodmap diet can help but reading up on it it says for IBS on...

lifegems

•4 years ago

5 Replies

Please interperate my results

I have been feeling pretty rubbish on and off for a few years, had blood tests done at docs a while back and they said everything was fine. I've just tried to...

I have been feeling pretty rubbish on and off for a few years, had blood tests d...

Kaz39

•4 years ago

9 Replies

MRI

Dear All, I’m pretty set on having an MRI. I was wondering whether others have had ? Thank you 😊

Dear All, I’m pretty set on having an MRI. I was wondering whether others have h...

Narwhal10

•4 years ago

5 Replies

B12 Deficiency and Dementia

This is a link to a video which talks about the correlation between low B12 and high homocysteine levels. I know it's not about pernicious anaemia but I...

This is a link to a video which talks about the correlation between low B12 and ...

MoKayD

•4 years ago

5 Replies

Gastritis - reflux help/question

I was diagnosed with gastritis in 2016 with an endoscopy by my gastroenterologist. I was also diagnosed with PBC at that time. I had been having lots of...

I was diagnosed with gastritis in 2016 with an endoscopy by my gastroenterologis...

KristinCC

•4 years ago

8 Replies

Missed b12 injection

I missed last month injection Shall I proceed this month with injection Or do I need replacement injections Coz some of symptoms get back such as hand...

I missed last month injection Shall I proceed this month with injection Or do...

Issa101

•4 years ago

2 Replies

Folate supplements with PA

Hi my question is if you have PA can you take Methylfolate? at the moment I take a super b complex Igennus brand it has 400ug a tablet I take 2 tablets at the...

Hi my question is if you have PA can you take Methylfolate? at the moment I take...

Hidden

•4 years ago

16 Replies

What does 'trunk weakness' feel like?

Me again..! I was wondering what trunk weakness felt like? I think I have it but I can't decide if it's just general 'unfitness'. I'd be very grateful for...

Me again..! I was wondering what trunk weakness felt like? I think I have it bu...

Hidden

•4 years ago

2 Replies

PAS

Just wanted to now is anyone with pas forgetful I’m 42 and become very forgetful but have pas just wondering if it could be due to this it’s awful and getting...

Just wanted to now is anyone with pas forgetful I’m 42 and become very forgetfu...

Shellbes

•4 years ago

20 Replies

injections

Starting b12 injections on monday not been given any info just turn up get injection . Having 3 injections a week for 6 weeks to start

Starting b12 injections on monday not been given any info just turn up get injec...

beca74

•4 years ago

21 Replies

Folate blood test range?

Could anyone tell me what a good folate level is in blood test results? I know it needs to be >3 but don’t know what the range is to understand how low 3.3...

Could anyone tell me what a good folate level is in blood test results? I know...

Colb53

•4 years ago

14 Replies

The sighs

How long will it take for the “sighs” to stop! I have been taking b12 supplements for 50 days with only minimal recovery from breathlessness, waking breathless...

How long will it take for the “sighs” to stop! I have been taking b12 supplement...

Tiggers321

•4 years ago

24 Replies

Light sensitivity.

Dark nights starting. Really hoped I'd cope with more artificial lighting this year. Anyone get this ? Any treatments? Or if thay had It did it how many...

Dark nights starting. Really hoped I'd cope with more artificial lighting this y...

Nackapan

•4 years ago

19 Replies

Being made to go back to 12 weekly injections

I have just had my 8 weekly b12 injection and when rebooking was told (again) that there is no evidence that injections more frequently than 12 weekly are of...

I have just had my 8 weekly b12 injection and when rebooking was told (again) th...

KathrynS

•4 years ago

11 Replies

Hydroxocobalamin

Hey I have been having Hydroxocobalamin 1mg since last year as my doctor said I was low in B12 I was oly having the injections every 3 months, I joined B12...

Hey I have been having Hydroxocobalamin 1mg since last year as my doctor said I ...

lucasussex

•4 years ago

54 Replies

POEMS as alternative diagnosis

I have been SI B12 for 5 months without improvement and have just been rediagnosed with a very rare varient of myeloma called POEMS which presents with...

I have been SI B12 for 5 months without improvement and have just been rediagnos...

Ziggyzugg

•4 years ago

4 Replies

Running and PA / IDA

Hi, everyone — like I said in my first post, my ferritin’s 8 (recently treated with infusions) and I have a positive IFAB test (I’m two B12 injections in) so...

Hi, everyone — like I said in my first post, my ferritin’s 8 (recently treated w...

still_elsewhere

•4 years ago

15 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2020

Omg how do some doctors get there degree

Recent PA diagnosis, should I look at diet changes to manage symptoms

Stubborn teen

B12 results

B12 injections

Vegetarianism and PA / IDA

Dismissive gp

Advice / help please

Do you also have silent reflux (Laryngopharyngeal reflux - LPR) ?

Feeling awful

First injection done

What is wrong ?

One injection per prescription

Fodmap diet

Please interperate my results

MRI

B12 Deficiency and Dementia

Gastritis - reflux help/question

Missed b12 injection

Folate supplements with PA

What does 'trunk weakness' feel like?

PAS

injections

Folate blood test range?

The sighs

Light sensitivity.

Being made to go back to 12 weekly injections

Hydroxocobalamin

POEMS as alternative diagnosis

Running and PA / IDA

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive