Starting b12 injections on monday not been given any info just turn up get injection . Having 3 injections a week for 6 weeks to start
injections : Starting b12 injections on... - Pernicious Anaemi...
Pernicious Anaemia Society
Thars a generous loading dose. Usually 6 over 2 weeks.
You dont mention b12 level or your symptoms.
Has your folate iron and vit d thyroid been tested too. ?
Hope it goes well
The doctors receptionist rang late yesterday couldn't give me any info they did a load of blood tests all i know is that i have pernicious anemia
but i have terrible shortness of breath, tingling in feet and hands and migraines
I would get a copy of all your blood results.
Talk through them with a doctor. Always good to have. The normal ranges are on the print off so you can understand them. Sometimes something deemed normai can just scrape into the 'normai' but could be adding to symptoms. It's quite common to have other deficiencies if tour ate not able to absorb b12.
There alot to take in. I imagine you mustve tested positive to an intrinsic factor antybody test. This picks up 5o % of those with PA. So you will need injections for life . Like most of us on here.
I hope the injections give you some relief. It does take time.
Hi beca74 are you in the U.K?
Yes the uk
Your treatment regime just seemed a bit strange for this country as others have said.
It may be that you will need to supplement with folic acid once the B12 injections start so please ask your doctor about that.
I am not a medically trained person but I've had P.A. for over 48 years and I'm still "clivealive"
I hope everything goes well for you
Yes as Nackapan said ask for results printed which they will charge for. (I paid £5)
So get print outs for Ferritin, folate, B12, vitamin B12, haemoglobin, did you have a thyroid tests as well. Intrinsic Factor Autoantibody. Some one else can add if needs be.
Yes, I was really short of breath, pins and needles, awful vertigo.
Are you okay getting there ? Are you ok with needles ? X
It is no longer legal for GP surgeries to charge for a simple "latest results" print.
GDPR and Data Protection Act 2018 apply.
Some guidance available here:
Sorry for giving wrong information. So why did my surgery do that then 🤔
If they charged since early 2018, they would appear to have broken the law.
All too many surgeries used to charge - all too often around £10 (sometimes per page). This was clearly identified as unacceptable. Even if a charge were allowed, making a profit - using it as a revenue stream - is wholly reprehensible.
Sorry if I came across as annoyed - it was more a lament that yet another person was charged when they (probably) shouldn't have been.
thank you all
Wishing you well soon.
Good luck! You will feel better soon. Interesting about the printout issue. In the US most doctors and hospitals use MyChart or similar online systems. I can access all of my test results since the system started about 10 years ago online. Includes all visits and post visit summaries and tests and prescriptions and correspondence with dr. I feel spoiled!
It is getting there - at least in England. (I am not up to date with Wales, Scotland and Northern Ireland). Some do have full access.
Not what you're looking for?
You may also like...
I need). Eight weeks after the loading injections I've had a single injection a week ago and it...
I get my b12 injection every 8 weeks but still struggle through the last two or three weeks, do I...
me please? I have zero intrinsic factor and am receiving my B12 injections on an 8 week cycle, not...
really possible I need 3 injections a week? Coeliac disease 11 years . B12 deficiency diagnosed 14...
the solution , and then another one to inject ? Can you not just use the one needle and syringe ?