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Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for September 2020

New blog post about effort to get injectable B12 reclassified

Thought UK forum members would find new blog post on B12 Deficiency Info interesting. https://www.b12deficiency.info/blog/2020/09/24/fingers-crossed/

Thought UK forum members would find new blog post on B12 Deficiency Info interes...

Sleepybunny

•4 years ago

3 Replies

Another good article

https://www.b12deficiency.info/blog/tag/h-pylori/

Vps1980

•4 years ago

2 Replies

Interesting find, b6 as well as b12, and diabetes

I’m at the beginning of research about b6, so my knowledge is limited. As regards b12, I have been diagnosed with PA for about 6 or 7 years I think now. I self...

I’m at the beginning of research about b6, so my knowledge is limited. As regard...

earthnymph

•4 years ago

19 Replies

Want to take advantage of all our features? Just log in!

just a random question but can PPI lead to gastric antibodies?

random question but can PPI cause antibodies in gut?

sbadd

•4 years ago

5 Replies

Thoughts? I think this is spot on!

https://stichtingb12tekort.nl/english/misconceptions-about-a-b12-deficiency/

Vps1980

•4 years ago

4 Replies

How do I post a link on here?

Vps1980

•4 years ago

3 Replies

Self injecting Victoza

Is it at all possible to hit a capillary when injecting Victoza? My sister gave herself the shot and within 4 min she was dizzy, shaky, sweaty and vomited. Her...

Is it at all possible to hit a capillary when injecting Victoza? My sister gave ...

PMnurse

•4 years ago

1 Reply

Where to buy Hydroxocobalamin

impossible to cope with 3 monthly NHS directive. To self inject is it possible to find supplier of Hydroxocobalamin

impossible to cope with 3 monthly NHS directive. To self inject is it possible t...

bluesceecee

•4 years ago

4 Replies

15yo latest results

Daughters latest results Have posted on thyroid site but due to history low b12 and iron posting here as per previous posts has parietal cell antibodies and...

Daughters latest results Have posted on thyroid site but due to history low b1...

sbadd

•4 years ago

4 Replies

Can’t educate pork

The fight continues. So I’ve been to see the nurse at our surgery this morning for my b12 injection which she refused as my HGB is at a good level now!!! It...

The fight continues. So I’ve been to see the nurse at our surgery this morning f...

Parksy

•4 years ago

11 Replies

15 year old - final injection today!

So my question is side effects??? After the injections is it normal to be so dizzy, room spinning, cannot concentrate abs feeling like your ‘not in your own...

So my question is side effects??? After the injections is it normal to be so di...

Dogwalker123

•4 years ago

6 Replies

B12 anger

Any idea why I get so angry and irritable for a few days after my b12 injection? I lose interest in everything and everyone and just want to be on my own,...

Any idea why I get so angry and irritable for a few days after my b12 injection?...

Teloch

•4 years ago

6 Replies

So tired of fighting

Ok so here I go again in a fight with my GP to get my 8 weekly injection which denied this morning. They have decided my levels should be normal now so won’t...

Ok so here I go again in a fight with my GP to get my 8 weekly injection which d...

Parksy

•4 years ago

5 Replies

Undiagnosed. Active B12 result. What does it mean please?

I have had painful feet and tingling since December last year which are worrying me a bit. I have many other symptoms, some going back 9 years which are on my...

I have had painful feet and tingling since December last year which are worrying...

Sa-ja-ca

•4 years ago

16 Replies

Folic acid deficiency

Recently I've been so exhausted I've not been able to function properly. I have constant muscle and joint pain. I had my blood tested and.my follic acid levels...

Recently I've been so exhausted I've not been able to function properly. I have ...

Donby

•4 years ago

3 Replies

I need immediate advice please

I have b-12 deficiency and my tongue is swollen and burning and I’m having blurred vision, breathing hard and my mind can’t complete a thought. Should I go to...

I have b-12 deficiency and my tongue is swollen and burning and I’m having blurr...

Meliscious

•4 years ago

1 Reply

Burning legs

Did anyone get burning legs that then hurt and go cold before treatment?

Vps1980

•4 years ago

4 Replies

Prilosec

Hello I have posted before but not for awhile. I SI every other day. After doing that for two years, many of my neurological symptoms are much improved. My...

Hello I have posted before but not for awhile. I SI every other day. After doing...

Sita505USA

•4 years ago

4 Replies

Another question sorry

i have had my 2nd injection of my loaded doses today , im so nauseous and im vomiting is this normal? Ty in advance

i have had my 2nd injection of my loaded doses today , im so nauseous and im vo...

beca74

•4 years ago

3 Replies

Yay got my first injection Monday ❤️

Just want to say thank you to everyone who comments on this forum as in 2 days it gave me enough knowledge to finally get through to the doctors, also getting...

Just want to say thank you to everyone who comments on this forum as in 2 days i...

Vps1980

•4 years ago

12 Replies

Help!!!

Hi, SORRY LONG POST ALERT!! Hope someone can help ease my anxiety!! I was diagnosed with low B12 (193) in May, although was told by doctor I was only just...

Hi, SORRY LONG POST ALERT!! Hope someone can help ease my anxiety!! I was diag...

CBD123

•4 years ago

60 Replies

Anxiety can be caused of b12 deficiency?

Hello Dears I'm having anxiety, hand shacking, and numbing I did b12 test and it was 79 (pg/mL) My question can b12 the cause of the anxiety

Hello Dears I'm having anxiety, hand shacking, and numbing I did b12 test ...

Issa101

•4 years ago

4 Replies

Random question

Does anyone get stomach burning? I’ve had the h pylori antibody blood test, negative and the stool sample, negative.

Does anyone get stomach burning? I’ve had the h pylori antibody blood test, nega...

Vps1980

•4 years ago

8 Replies

Feeling foolish and despondent

Morning everyone, Hope you all well. I’d be grateful if you knowledgeable people would be kind enough to educate me. I’ve just come back from the GPs and had...

Morning everyone, Hope you all well. I’d be grateful if you knowledgeable people...

Narwhal10

•4 years ago

6 Replies

Is 259 b12 level low?

What is a good level?

Flinder

•4 years ago

8 Replies

h pylori come back again

I had h pylori last year got rid of it now it’s come back again after positive stool sample, dunno what to do not taking antibiotics

I had h pylori last year got rid of it now it’s come back again after positive ...

lucasussex

•4 years ago

14 Replies

B12 Injections stopped

I was diagnosed with pernicious anemia in my 20s just after my sister and have been receiving B12 injections for over 25 years now every three months. My GP...

I was diagnosed with pernicious anemia in my 20s just after my sister and have b...

Nibbles72

•4 years ago

14 Replies

Can I get anemic from too many blood tests in a short time ?

Hello ! I have had blood drawn four times in six weeks. My thyroid dr wants another thyroid plus antibodies,, plus renal panel done now. My ferritin is 56,...

Hello ! I have had blood drawn four times in six weeks. My thyroid dr wants anot...

Hopinggh

•4 years ago

19 Replies

How do you feel after blood tests?

Had bloods this morning and now I am burning from head to toe, but feeling shivers too, feel wiped out and numbness terrible, body is in agony especially my...

Had bloods this morning and now I am burning from head to toe, but feeling shive...

Vps1980

•4 years ago

4 Replies

Blood results

Well, I have finally recieved my blood results (with reference ranges) from the nurse. Intrinsic Factor - negative. Parietal Cell - negative. Serum B12 was...

Well, I have finally recieved my blood results (with reference ranges) from the ...

Wellington1

•4 years ago

10 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Providing advice on safe sources for self injection

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2020

New blog post about effort to get injectable B12 reclassified

Another good article

Interesting find, b6 as well as b12, and diabetes

just a random question but can PPI lead to gastric antibodies?

Thoughts? I think this is spot on!

How do I post a link on here?

Self injecting Victoza

Where to buy Hydroxocobalamin

15yo latest results

Can’t educate pork

15 year old - final injection today!

B12 anger

So tired of fighting

Undiagnosed. Active B12 result. What does it mean please?

Folic acid deficiency

I need immediate advice please

Burning legs

Prilosec

Another question sorry

Yay got my first injection Monday ❤️

Help!!!

Anxiety can be caused of b12 deficiency?

Random question

Feeling foolish and despondent

Is 259 b12 level low?

h pylori come back again

B12 Injections stopped

Can I get anemic from too many blood tests in a short time ?

How do you feel after blood tests?

Blood results

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive