Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for September 2020

This might be a silly question...

I couldn't get my GP to test for PA so I started supplementing with B12 tablets regardless. When I test again can I assume that if my levels go up then I...

I couldn't get my GP to test for PA so I started supplementing with B12 tablets ...

Hidden

•4 years ago

9 Replies

Opinions on the Schilling Test

Hi everyone! My gastroenterologist doesn’t believe I have b12 deficiency (b12 serum levels high due to injections). He suggested the Schillings test to...

Hi everyone! My gastroenterologist doesn’t believe I have b12 deficiency (b12 se...

Dolansan

•4 years ago

16 Replies

First self injection

So I managed it at last but my thigh aches loads and bit panicky I put it in too deep or wrong place. What’s the worst that can happen?!

So I managed it at last but my thigh aches loads and bit panicky I put it in too...

Mag999

•4 years ago

5 Replies

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Here’s a question

I have recently been confirmed with p.a via an I.F test. I was originally told after an MMA test I had Functional b12 Deficiency where the b12 wasn’t getting...

I have recently been confirmed with p.a via an I.F test. I was originally told a...

Hidden

•4 years ago

15 Replies

Really elevated b12 bloods with 2 years of being very sick, anyone?

Hi I’ve been very sick for 2.5 years now and have been diagnosed with many comorbidities that accompany hyper mobile elhers danlos syndrome, ie chronic...

Hi I’ve been very sick for 2.5 years now and have been diagnosed with many comor...

ctilly

•4 years ago

7 Replies

OMG

Just found this website: https://gpnotebooktv.com/infectious-disease/vitamin-b12-replacement-covid-19/ 🥴 no wonder uk doctors are so useless with B12, when...

Just found this website: https://gpnotebooktv.com/infectious-disease/vitamin-b12...

Hidden

•4 years ago

21 Replies

15 year old - Loading Injections

Please help! My 15 year old daughter has just started loading injections, her reading was 85. She had been suffering for months, is now very tearful, gained...

Please help! My 15 year old daughter has just started loading injections, her re...

Dogwalker123

•4 years ago

13 Replies

Can b12 be the cause

Hi.was wondering if any one has suffered with high blood pressure due to lack of b12. Also has any one suffered with a low immune system and swollen glands.

Hi.was wondering if any one has suffered with high blood pressure due to lack of...

Mozza127

•4 years ago

7 Replies

Hydroxocobalamin Acetat

Pernicious Anaemia: Does anyone have documentation for DR (studies preferably), that prove Hydroxocobalamin Acetat to be as good as plain Hydroxocobalamin,...

Pernicious Anaemia: Does anyone have documentation for DR (studies preferably), ...

indywindy

•4 years ago

5 Replies

B12 and sleep problems?

I have trouble sleeping every night, and when I’ve had around 10 hours sleep I’m still tired. Does anyone know if you can’t absorb b12 it effects or causes...

I have trouble sleeping every night, and when I’ve had around 10 hours sleep I’...

LittleA

•4 years ago

25 Replies

Gastric atrophy ??

Now as I’m still new and trying to learn please may you add to my knowledge and correct anything I have misunderstood. I had a positive coeliac blood test,...

Now as I’m still new and trying to learn please may you add to my knowledge and ...

Narwhal10

•4 years ago

14 Replies

B12 worse symptoms question

Hello , I’m just looking for a bit of advice. I have Lyme disease and about 5 months ago I had a reaction that left me with chemical and food sensitivities so...

Hello , I’m just looking for a bit of advice. I have Lyme disease and about 5 mo...

Tad122

•4 years ago

21 Replies

Endoscopy

I’ve been referred for an endoscopy and biopsy to find out if my Low B12 is caused by coeliac disease (I don’t think it is, but I’ve had a couple of slightly...

I’ve been referred for an endoscopy and biopsy to find out if my Low B12 is caus...

Cinders70

•4 years ago

25 Replies

superdrug test

has anyone here done one of these do it yourself tests? I did one, but they were unable to work with the sample as it heomolysed. They have sent me another,...

has anyone here done one of these do it yourself tests? I did one, but they were...

donnabrain

•4 years ago

11 Replies

Any ideas please if levels of Active B12 can increase way beyond the recommended Medichecks range of (37.5 - 187.5) just by increasing dose?

Hi All Still looking for an answer for muscle aches! My last 5 Active B12 Medichecks readings (roughly every 4 months starting from Feb 19) are Feb 19 - 200...

Hi All Still looking for an answer for muscle aches! My last 5 Active B12 Medic...

Hidden

•4 years ago

6 Replies

Blood test result - what do they mean?

I've just been told to make an appointment with the nurse following a blood test my Dr requested in relation to Vitamin B12. I asked for a copy and have just...

I've just been told to make an appointment with the nurse following a blood test...

Wellington1

•4 years ago

19 Replies

What are your symptoms before B12 is due.?Getting daily headaches.

Hi all, I haven't posted on here for some time. I have been having b12 injections every 12 weeks for about a year and a half now, and have noticed that 2 -3...

Hi all, I haven't posted on here for some time. I have been having b12 injection...

Aly2

•4 years ago

5 Replies

Is the test for PA pointless if you have been receiving injections?

Hello everyone, I was diagnosed as B12 deficient in August 2016 but the test for PA was negative. I have been experiencing symptoms so trying to get to the...

Hello everyone, I was diagnosed as B12 deficient in August 2016 but the test fo...

MCkit

•4 years ago

3 Replies

healing malabsorption possible?

so i've read about antibodies attacking parietal cells and IF, low acid, SIBO, H pylori and maybe the affect these have on b12 absorption. so the solution is...

so i've read about antibodies attacking parietal cells and IF, low acid, SIBO, H...

Hidden

•4 years ago

9 Replies

Could this be low vit b12?!

Just getting this off my chest.I am a Carer in the community.a new client has just came on to my run,just to get help with personal care.she’s just a wee...

Just getting this off my chest.I am a Carer in the community.a new client has ju...

Mollieharry

•4 years ago

11 Replies

advice please

I have been diagnosed with PA. Doctor 8s advising to start folic acid before my first injection. I think I have read that this is not right. Could you tell me...

I have been diagnosed with PA. Doctor 8s advising to start folic acid before my ...

Wanda123

•4 years ago

11 Replies

Where to buy syringes/b12? self injection

i'm trying to eliminate a b12 deficiency from "my list". the fastest and probably cheapest way to do this is by self injecting. bypassing the clueless doctors,...

i'm trying to eliminate a b12 deficiency from "my list". the fastest and probabl...

Hidden

•4 years ago

5 Replies

Frequent B12 injections

I have been injecting EOD due to neuro symptoms. I’ve been switching between two spots but feel that injections are getting a bit more painful. For those that...

I have been injecting EOD due to neuro symptoms. I’ve been switching between two...

Dolansan

•4 years ago

5 Replies

Forewarned is Forearmed

This is all new to me, I’m in the middle of having my loading doses and was told I’d have them for two weeks then in 3 months. I knew I was ill, as...

This is all new to me, I’m in the middle of having my loading doses and was told...

Narwhal10

•4 years ago

6 Replies

Can you get b12 injections from private hospitals?

I think it is going to be very difficult to get b12 injections for my 17yo from NHS. So I m thinking to pay to have it done to get a peace of mind. Has anyone...

I think it is going to be very difficult to get b12 injections for my 17yo from ...

Flinder

•4 years ago

21 Replies

Advice

I had my blood test results back and apparently my b12 levels are normal and the dr said I do not need any more b12 injections even though I feel So poorly....

I had my blood test results back and apparently my b12 levels are normal and the...

Spring11

•4 years ago

7 Replies

Latest research by MS society on myelin repair

whilst not strictly PA related I thought this might be of interest to those with neurological issues...

whilst not strictly PA related I thought this might be of interest to those with...

Gambit62

Administrator•4 years ago

9 Replies

Sauerkraut users

Hi I have p.a and have such gut issues because of that and previous hpylori infections.Ive tried many things to help but usually don’t have much success with...

Hi I have p.a and have such gut issues because of that and previous hpylori infe...

Hidden

•4 years ago

17 Replies

Anxiety

Did any of you have anxiety as one of your primary symptoms before treatment? I have anxiety and am wondering if it is connected.

Did any of you have anxiety as one of your primary symptoms before treatment? I ...

frufru11

•4 years ago

27 Replies

I am so confused

Hi, I am totally new here and not even sure if I should be here but I am 59 years old and I hope you can help me. I don’t like going to the doctor (White coat...

Hi, I am totally new here and not even sure if I should be here but I am 59 year...

danielcox5

•4 years ago

17 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2020

This might be a silly question...

Opinions on the Schilling Test

First self injection

Here’s a question

Really elevated b12 bloods with 2 years of being very sick, anyone?

OMG

15 year old - Loading Injections

Can b12 be the cause

Hydroxocobalamin Acetat

B12 and sleep problems?

Gastric atrophy ??

B12 worse symptoms question

Endoscopy

superdrug test

Any ideas please if levels of Active B12 can increase way beyond the recommended Medichecks range of (37.5 - 187.5) just by increasing dose?

Blood test result - what do they mean?

What are your symptoms before B12 is due.?Getting daily headaches.

Is the test for PA pointless if you have been receiving injections?

healing malabsorption possible?

Could this be low vit b12?!

advice please

Where to buy syringes/b12? self injection

Frequent B12 injections

Forewarned is Forearmed

Can you get b12 injections from private hospitals?

Advice

Latest research by MS society on myelin repair

Sauerkraut users

Anxiety

I am so confused

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