Feeling awful: Hi everyone, my story is... - Pernicious Anaemi...

Pernicious Anaemia Society

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Feeling awful

Vps1980 profile image
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Hi everyone, my story is a long one so won’t bore you all, just wanted to know if you can have a 277 b12 result and still be anemic (this test was 6 weeks ago) I’ve had so so many tests, I have numerous symptoms which are getting much worse, my legs no longer feel like my own, thank you in advance, just feel I’m getting nowhere with gps.

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Vps1980
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Nackapan profile image
Nackapan

Look up functional b12 deficiency

Vps1980 profile image
Vps1980 in reply toNackapan

Hi I’m not digesting protein, have stabbing body pains weakness and numbness

Nackapan profile image
Nackapan in reply toVps1980

Also a gastro referral seems sensibke

ktwing profile image
ktwing

As far as I've read, yes it is possible.

You don't say what unit your B12 was measured in, but I do know that these 2014 guidelines from the British Journal of Haematology state:

‘We believe that the traditional cut-off value of 148 pmol/l is too low. We suggest that physicians should consider treating patients who show symptoms but have vitamin B12 levels above this value, particularly those in the low-normal range up to approximately 300 pmol/l, to see whether their symptoms are relieved’

Available at: onlinelibrary.wiley.com/doi...

It definitely seems worth looking into further to me. So sorry you're going through this, many here can sympathise.

The pinned posts here have some great information, if you're new to this, worth having a read :)

Vps1980 profile image
Vps1980 in reply toktwing

Hi, thank you so much for the response, it was total b12, I had another test today and get results Thursday, the nurse looked really shocked as I could hardly walk, my last bloods my legs were fine.

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