Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,058 members • 23,207 posts

All posts for August 2020

Oral spray - safe to use after jabs?

Hey everyone, As most people here know, throughout the COVID lockdown I wasn't able to get my B12 jabs. I was told by my doctor to use oral tablets as a...

Hey everyone, As most people here know, throughout the COVID lockdown I wasn't a...

Probein

•4 years ago

26 Replies

Flue jabs.......

Hi all, I am, like so many others on here fed up of reading injections are being stopped due to covid.....I had my own battle with my surgery to get my...

Hi all, I am, like so many others on here fed up of reading injections are being...

Mewsmom

•4 years ago

6 Replies

Talk to Your Family about B12 Deficiency

I was diagnosed with B12 deficiency two years ago. Since then my daughter was also diagnosed and I recently found out that my cousin's daughter has also been...

I was diagnosed with B12 deficiency two years ago. Since then my daughter was a...

MoKayD

•4 years ago

12 Replies

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Viapath

Was going to buy viapath test. I recall post here few weeks back saying someone waiting to receive it. Anyone had issues??

Was going to buy viapath test. I recall post here few weeks back saying someone...

SuD7

•4 years ago

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Needle shortage?

I have seen a lot of posts lately about needles and thought that I should let you all know that here in the US there has been talk of a possible needle...

I have seen a lot of posts lately about needles and thought that I should let yo...

108181

•4 years ago

23 Replies

liver tests

Hi, I am new to this forum but have had B12 def PA for 14 years.. I have been having injections at gp every 4 weeks, like every one else due to covid its been...

Hi, I am new to this forum but have had B12 def PA for 14 years.. I have been ha...

Hughes1D

•4 years ago

2 Replies

How to self inject?

I've been trying to look up YouTube tutorials on how to do this but I'm not convinced by many of the videos... I think what I'm finding difficult is where to...

I've been trying to look up YouTube tutorials on how to do this but I'm not conv...

Ctb567

•4 years ago

19 Replies

Oral B12 passive absorption evidence please.

This is the letter I got back after requesting my B12 jab which is 7 months late and my symptoms explained. It’s reasonable I suppose however I don’t know...

This is the letter I got back after requesting my B12 jab which is 7 months late...

Bobonut

•4 years ago

35 Replies

Needles sizes

Hi all, I usually have my injection at the gp surgery but since covid it has been a nightmare 😩 I am looking to self inject hydroxocobalamin into my thigh !...

Hi all, I usually have my injection at the gp surgery but since covid it has bee...

Charlie2291

•4 years ago

9 Replies

Heart palpitations/intracranial pressure

Hi everyone, I’m currently pursuing a diagnosis of PA, though the pandemic has slowed things the last few months. Low serum B12, high antiparietal, nerve...

Hi everyone, I’m currently pursuing a diagnosis of PA, though the pandemic has s...

siamesefrmsiam

•4 years ago

24 Replies

Air hunger

Hello, new here. I've been experiencing air hunger and fatigue since March. It's usually okay in the morning then gets progressively worse throughout the day....

Hello, new here. I've been experiencing air hunger and fatigue since March. It's...

katamarang

•4 years ago

26 Replies

Folate deficient

I recently tested for deficient folate. 3.08 (3.89-19.45) I have terrible brain fog my b12 tested optimal. What does this mean and what treatment should I take...

I recently tested for deficient folate. 3.08 (3.89-19.45) I have terrible brain ...

Arabella33

•4 years ago

17 Replies

Storing b12 ampoules

I'm sure I've read somewhere it shouldnt be in temperatures above 25oc I have a recent second order that's arrived in this heat . Under my stairs is 27oc when...

I'm sure I've read somewhere it shouldnt be in temperatures above 25oc I have a ...

Nackapan

•4 years ago

10 Replies

Head Pressure! Please help!

Anyone have pressure at the base of their skull? I think it coincides with when I get an injection. I am currently on loading doses every other day of...

Anyone have pressure at the base of their skull? I think it coincides with when ...

CDALY474

•4 years ago

4 Replies

Every day injecting

Well Hidden 7 days of every day injecting now complete & the results are in 😁 Can't say I noticed a big difference to be honest. Maybe a slight difference...

Well Hidden 7 days of every day injecting now complete & the results are in 😁 ...

Ritchie1268

•4 years ago

35 Replies

Latest PAS proposed Reserch

Have just read about a factory making 1000mcg oc cynocobalamin in the UK so quality can be assured. A larger comprehensive study /reserch if funds are got....

Have just read about a factory making 1000mcg oc cynocobalamin in the UK so qual...

Nackapan

•4 years ago

40 Replies

(new to forum) Struggling to diagnose/rule out Pernicious Anaemia

Hi all, I'm new to the forum (and am only in my early days of understanding PA) so apologies if my question is a bit basic. I have read through the guidelines...

Hi all, I'm new to the forum (and am only in my early days of understanding PA)...

IA30

•4 years ago

6 Replies

Injecting hydroxycobalamin

Why do some people use one needle to draw up the solution , and then another one to inject ? Can you not just use the one needle and syringe ?

Why do some people use one needle to draw up the solution , and then another on...

Jeddah0

•4 years ago

10 Replies

B12 injection and acne - how long?

Hi all, 8 days ago i got my first b12 shot (1000 microgram hydroxocobalamin). Two days later the first pimples on my cheeks appeared. Since then it got worse...

Hi all, 8 days ago i got my first b12 shot (1000 microgram hydroxocobalamin). Tw...

Nalaa

•4 years ago

39 Replies

B12 D

Who suffers the “sighs” deep breathing issues with low b12 mine is 89! I don’t have P.A.

Who suffers the “sighs” deep breathing issues with low b12 mine is 89! I don’t h...

Tiggers321

•4 years ago

12 Replies

Can anyone help me?

Hi All, Having an absolute nightmare. I have been getting B12 injections every 8 weeks since I was 15 and was having them regularly in Derby. I used to have...

Hi All, Having an absolute nightmare. I have been getting B12 injections every 8...

Busy_tired_filmmaker

•4 years ago

8 Replies

NEEDLES FOR SELF INJECTING B12

Hello everyone, I'm new here and I've had a really good look through previous questions and comments but I'd just like a little more clarity if possible. I'm...

Hello everyone, I'm new here and I've had a really good look through previous qu...

contentedmum

•4 years ago

24 Replies

Ordering from Versando

Hi I have ordered from these before and paid by Pay Pal.I don’t seem able to do it this time as it’s all in German. Is there anyway of converting it into...

Hi I have ordered from these before and paid by Pay Pal.I don’t seem able to d...

Chocolate41

•4 years ago

2 Replies

What is the range of % of active B12 in a serum B12 test

I seem to remember that normally about 20% of the total serum B12 in blood test is active, but I also think that I saw a range quoted of between 7% and 20%....

I seem to remember that normally about 20% of the total serum B12 in blood test...

Ernest12

•4 years ago

5 Replies

B12 ampoules are being rationed at the moment by Bodfeld-apotheke.de

Have just been online to bodfeld-apotheke.de , and they are rationing Rotexmedica vitamin B12 depot to 2 packets per customer . Versandapo.de doesnot have...

Have just been online to bodfeld-apotheke.de , and they are rationing Rotexmedi...

wedgewood

•4 years ago

9 Replies

Forgot this

Typical, I forgot the reason for my post. In desperation I phone the BMI Albyn hospital in Aberdeen. They do B12 injections. I have an appointment next week....

Typical, I forgot the reason for my post. In desperation I phone the BMI Albyn h...

Frogit

•4 years ago

1 Reply

Becoming worried and anxious :(

Hi all! Sorry to do another post :( I put a post up the other day, finding that when I had walked up a hill a few days ago, my normal calf burning became...

Hi all! Sorry to do another post :( I put a post up the other day, finding t...

Ellesbells12

•4 years ago

5 Replies

B12 jab frequency

Hi everyone, I’m new to the group today, so apologies up front if this question has been posted before. I’m from the UK, my GP allows me to have my B12 jab...

Hi everyone, I’m new to the group today, so apologies up front if this question ...

JWPAB12

•4 years ago

13 Replies

What shall I say to my Neurologist?

Hi all thank you for all of your advice so far. I’m feeling much less alone now! My GP will not resume my B12 injections because my blood tests were within...

Hi all thank you for all of your advice so far. I’m feeling much less alone now...

Cauliflowercheese

•4 years ago

11 Replies

B12 anemia

Where can I buy safe Methylcobalamin injections online?

Nunu1970

•4 years ago

17 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2020

Oral spray - safe to use after jabs?

Flue jabs.......

Talk to Your Family about B12 Deficiency

Viapath

Needle shortage?

liver tests

How to self inject?

Oral B12 passive absorption evidence please.

Needles sizes

Heart palpitations/intracranial pressure

Air hunger

Folate deficient

Storing b12 ampoules

Head Pressure! Please help!

Every day injecting

Latest PAS proposed Reserch

(new to forum) Struggling to diagnose/rule out Pernicious Anaemia

Injecting hydroxycobalamin

B12 injection and acne - how long?

B12 D

Can anyone help me?

NEEDLES FOR SELF INJECTING B12

Ordering from Versando

What is the range of % of active B12 in a serum B12 test

B12 ampoules are being rationed at the moment by Bodfeld-apotheke.de

Forgot this

Becoming worried and anxious :(

B12 jab frequency

What shall I say to my Neurologist?

B12 anemia

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive