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Hoarse Voice

Damseltree profile image
14 Replies

Does anyone suffer with a hoarse voice and sometime it is lacking in power?

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Damseltree profile image
Damseltree
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14 Replies
LowB12 profile image
LowB12

Yes. Mine is related to nodule(s) I’m Thyroid from Hashimoto’s. Last serious attack felt like I was choking at times. Sent to ENT, all clear, Ultrasound on Thyroid revealed attack of thyroiditis and several old nodules, which accounted for prior symptoms. My management was regular paracetamol advise...as Thyroid bloods ‘normal’ not offered management of Hashimoto’s.

Damseltree profile image
Damseltree in reply to LowB12

Thank you for your reply. So what happened then?

LowB12 profile image
LowB12 in reply to Damseltree

I’m trying to self manage currently. Change diet completely to gluten free, now have cut out sugar & nearly all processed foods.

Cutting out gluten really made a difference.

You should get it investigated though if you think it feels like a lump / no specific cause and not just a sore throat. Can obviously not just be a an attack of thyroiditis like mine was / is.

LadyWard profile image
LadyWard in reply to LowB12

Hi, similar Simpson’s to you, also have Hashimotos and no voice at the moment. How are you? Have you noticed a difference going gluten free x

Yes I get this every now and then. No obvious cause I can see apart from my b12

aksundell profile image
aksundell

Yes, I’ve had this for two years now. My left vocal fold has a paresis, it doesn’t move very well. I’ve been to many neurologist and voice specialist and they don’t know why, but I’m quite sure it is related to my B12 issues as it started around the same time. I think my vagus nerve (which goes to your throat as well as many other places like your esophagus) is just not working well because I developed stomach reflux at the same time and they seem to wax and wane together. It’s probably worth going to have it evaluated as there can be many causes for hoarseness. They can tell rather easily if it is neurological.

I use a personal amplifier whenever I need to speak loudly or for a long time. It helps a lot, even though it looks weird and I get lots of comments about it. I’ve also had injections of filler into my left vocal to try to bring it to the midline to make it easier for my right side to do all the work. They have offered me a permanent silicone implant, but I am still hoping this get better. For me, my voice, reflux and headache were getting better until last fall and seemed to worsen with the winter and improve again with the summer.

Dolansan profile image
Dolansan in reply to aksundell

Hi, realize this is an old post. I’m experiencing voice hoarseness and suspect b12 deficiency. Let me know if you have any suggestions/updates. Ty!

aksundell profile image
aksundell in reply to Dolansan

I’m sorry to hear that about your voice. I’m in the United States, and here it would be recommended that you see a specialist if you’ve been horse for more than two weeks with no known explanation. There can be lots of causes, but if they put a scope in and look at your vocal cords they can tell if it’s neurological. I’ve been having waxing and waning problems for three years. This summer I had a silicone implant inserted to bring my left vocal cord to the midline so my functioning right vocal cord can meet it. It helped but didn’t fix everything. It seems like an unusual problem. I hope yours gets better more quickly than mine has.

Dolansan profile image
Dolansan in reply to aksundell

Thank you for your feedback! I’m puzzled what happened to my voice. I’m currently seeing a gastroenterologist and voice doctor to see what’s up.

Martin_12 profile image
Martin_12 in reply to Dolansan

Vocal cords can be affected by B12 deficiency

pubmed.ncbi.nlm.nih.gov/217...

A vegetarian relative recently had his voice weaken until he was barely audible, while he was in hospital for surgery to his small intestines. ENT found nothing wrong. His voice mysteriously returned a couple of weeks after B12 shots were started.

Dolansan profile image
Dolansan in reply to Martin_12

Thx for sharing the article and your relatives account! It seems like a rare occurrence but possible. I was vegan and vegetarian for a few years. Hope injections will do the trick.

I began with this problem in January 2000 when I was reduced to a whisper and running out of breath even after a few words. I was sent to see an ENT specialist who did an examination under general anesthetic and was astounded not to find any nodules and no problem with vocal folds. He banned me from speaking for a month which didn't do very much at all. The odd thing was I could shout at the top of my voice with no problem, but that would have been inappropriate in a busy office. Although the gruff voice wasn't at all painful then lack of breath was very difficult to deal with. I was also investigate for heart failure as a TNT spray was a temporary fix but that couldn't work for much more than a short conversation. Probably out of desperation I was diagnosed and treated as asthmatic.

I actually out up with this for 7 years as I could not carry on with my job as Chief Buyer for a busy construction company where detailed and extensive telephone negotiations were the normal daily routine. I was able to manage by producing the specialist software they needed.

There would be occasional attempts at finding a solution usually resulting in specialists agreeing there was a problem then casually announcing they were not prepared or couldn't be bothered to find out what it was. I scoured the internet and came up with the possibility it could be a form of dysphonia which was getting some relief out of Botox Injections into the vocal folds. The senior partner of our GP practice changed and the one who was next in line agreed that they hadn't done me any favours, now they had confirmed I wasn't asthmatic, so if I could find the cause he would find the funding route to get it fixed, it there was one.

A good friend, who was the senior voice therapist at the local general hospital come up with some contacts then I was into that departments system. The young woman assigned to me as my personal voice trainer knew she couldn't do anything for me but she thought she had an idea of what was going on and got me to see one of the worlds leading gastroenterologists.

That was the breakthrough as the Professor had never seen anything like it but I just happened to tickle his research muscle and he was determined he was going to find out what the problem was. Professor K B and Mr B, his consultant chest specialist friend had me investigated in every way and with every tool possible over a period of 2 years. Naturally as a physician the Professor was keen to find a medical solution however was not limiting his work to that. There was a magic afternoon when Mr B sat me in front of his monitor screen and showed me exactly what was going on inside me that caused the problem. He was even prepared to write a report the describe it and the put forward what was to be the ultimate solution.

There were then many more tests and examinations until in November of 2009 I was given a Nissen Fundoplication to strengthen my oesophogeal sphincters so that stomach gases could no longer come leaking up into my throat and affecting my voice. One Friday morning one of the best laparoscopic surgeons in the world did the business and I went home the following morning able to talk the hind leg off a donkey without stopping. No more did I have to take handfuls of PPI medication, I was cured. The Professor and his colleague had been right and their solution was perfect. It still works nearly 10 years later.

Please don't think I have written this with any suggestion your problem may be the same, I am hoping you will take heart that there probably is a solution but I may not be anything like what you think it is. Explore every avenue and even ones you think have no chance of being appropriate. You never know when a spark of recognition might flash in a brain somewhere.

Damseltree profile image
Damseltree

Thank you for your replies. I have had a hoarse voice for about 5 years at the same time the great tiredness came on. Dr said it was due to reflux as.i have a hiatus hernia. I have always doubted this diagnosis. I never did take the medicine prescribed for that as I knew it wouldn't be for absorbing nutrients. Since last November when all the other symptoms started my voice strength has declined. I am sure it is due to b12d.

Queeniz profile image
Queeniz

I do get a Hoarse voice or lose it all together so I know how you must feel. I’ve told my GP (not that they care)...... lol

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