Cusack Protocol: I've been self... - Pernicious Anaemi...

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Cusack Protocol

genesurf profile image
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I've been self-injecting 1mg hydroxocobalamin frequently for the past year, which has gradually reduced my tingling and fatigue by about 90%. I started with every other day shots, have been able to gradually stretch the time to every 3 or 4 days. I usually feel tired before a shot, and more energetic afterward. I haven't been diagnosed with PA, as my test results were inconclusive, but for whatever reason I need a lot of B12.

About two weeks ago, I started some aspects of the Cusack protocol, which supports collagen growth in EDS (Ehler-Danlos Syndrome) (note: I don't have EDS). I was a bit surprised to find that my residual tingling and fatigue both dropped quickly, so that my tingling is often barely noticeable now, and my exercise tolerance has significantly improved. I almost feel normal. I also found that I didn't really need my B12 shot last week, so I pushed out my injection schedule to every 7 days, and I still felt fine.

I'm not sure which part of the protocol is helping me, but here are the new things I've been taking:

PQQ by Jarrow, 1 capsule, 10mg

Lion's Mane by Host Defense, 1 capsule, 275mg

D-ribose powder, 1000-2000mg

George's Distilled Aloe Vera, 2 ounces

I'm not sure yet which of these supplements is helping me. PQQ and D-ribose help mitochondria. Lion's Mane is supposed to be good for the nervous system. Distilled aloe vera helps the gut.

I'll report back later if anything changes, or if I figure out which of the supplements is the magic one. If anyone has experience or info about any of these, please let me know.

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genesurf
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genesurf profile image
genesurf

Of course, now that I've posted this, I've noticed more tingles tonight...

Nackapan profile image
Nackapan in reply togenesurf

A blip hopefully as thinking about it

Nackapan profile image
Nackapan

Thankyou for that information.

A family member has b12 defiency and on injections and has HEDS (Elhlers Danlos )

My nervous system is still recovering after severe b12 defiency.

Anything worth a try. If never heard of Cusacks Protocol.

Hope the improvements continue for you

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