Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,091 members • 23,236 posts

All posts for September 2016

Beware the Paper Clinic

Hi all...don't know what happens in your health authority but I've just become aware of something called 'the paper clinic'! Following recent endoscopy and...

Hi all...don't know what happens in your health authority but I've just become a...

Foggyme

Administrator•8 years ago

23 Replies

Free viewing this weekend in honor B12 Awareness Week: Sally Pacholok the Movie

Producer/director Elissa Leonard is allowing free viewing of the film "Sally Pacholok" tonight & this weekend in honor of B12 Awareness Promo Code JEFF...

Producer/director Elissa Leonard is allowing free viewing of the film "Sally Pac...

PAS-admin

Partner•8 years ago

25 Replies

Methylcobalamin arrived in HOT mailbox.

Wasn't exposed to light. Still hasn't been opened. The expiration date is 3+ years away. This was an expensive little 30ml bottle at $179 from b12site. Is it...

Wasn't exposed to light. Still hasn't been opened. The expiration date is 3+ yea...

grossmusic

•8 years ago

13 Replies

Want to take advantage of all our features? Just log in!

THANK YOU PAS!!!

FYI- just joined the PAS! What a weath of information! I have read alot on line, but it is great to find so much organized info and data in ONE place! The...

FYI- just joined the PAS! What a weath of information! I have read alot on line,...

xyz011

•8 years ago

11 Replies

Interesting on the NHS questionnaire for depression

http://www.bbc.co.uk/iplayer/episode/b07wwd9d/the-doctor-who-gave-up-drugs-episode-2 About 19.30 minutes into the episode he goes through the on-line...

http://www.bbc.co.uk/iplayer/episode/b07wwd9d/the-doctor-who-gave-up-drugs-episo...

Gambit62

Administrator•8 years ago

6 Replies

Many Thanks

Would like to thank you lovely people for help and advice given. Also to let you know that thanks to advice and print offs from this site my GP who tried to...

Would like to thank you lovely people for help and advice given. Also to let you...

Maud04

•8 years ago

7 Replies

Advice please :(

Just spoken to my dr regarding my intrinsic factor antibody test result to be told "it has come back as negative so that means I definitely don't have PA" I...

Just spoken to my dr regarding my intrinsic factor antibody test result to be to...

Icymind

•8 years ago

17 Replies

Predictable disappointment

Hi again! I posted on here when I got diagnosed with PA in August, and have found a very supportive community- thanks to all users, as every bit of another...

Hi again! I posted on here when I got diagnosed with PA in August, and have foun...

JustLanded

•8 years ago

7 Replies

update with gp

I am into a three monthly 'programme' of one b12 injection every four weks. however, two weeks into this I have gone nearly crazy with return of neurological...

I am into a three monthly 'programme' of one b12 injection every four weks. how...

jillc39

•8 years ago

4 Replies

Help please, could it be B.12?

I am convinced that my boyfriend has problems absorbing B.12. He is showing some worrying signs of severe loss of memory and other symptoms. His B.12 blood...

I am convinced that my boyfriend has problems absorbing B.12. He is showing some...

Margo

•8 years ago

3 Replies

B12 Treatment

Just to add more confusion i have contacted a Consultant Neurologist Professor who explained does not follow guidelines i'm sure that means only treating...

Just to add more confusion i have contacted a Consultant Neurologist Professor ...

Advice1

•8 years ago

15 Replies

MTHFR

I'm fairly new here and this is my first post. Has anyone had genetic testing for MTHFR polymorphism? I am awaiting genetic test results but based on my...

I'm fairly new here and this is my first post. Has anyone had genetic testing f...

Statesideheather

•8 years ago

19 Replies

Ibs

I've had pa for years I'm a member of pa society but after reading something on here I would welcome your advice, I self inject perhaps weekly but now and then...

I've had pa for years I'm a member of pa society but after reading something on ...

tillie06

•8 years ago

5 Replies

The exhaustion is going to kill me

RECAP: Dr. would not give me more than one shot per week for 4 weeks then put me on once per month because my b12 was only 240. He refused to give the...

RECAP: Dr. would not give me more than one shot per week for 4 weeks then put m...

mislauren

•8 years ago

27 Replies

Folate Ferritin

As 50yr plus male Is it possible to have a normal folate and ferritin with just a few neurological B12 symptoms without fatigue fog no anemia Just in range...

As 50yr plus male Is it possible to have a normal folate and ferritin with just...

Advice1

•8 years ago

5 Replies

Burniexxx

Would like to see the replies people get to their letters. I have only just joined, just started my injections. Love to know how soon I will start to feel...

Would like to see the replies people get to their letters. I have only just joi...

Burnie

•8 years ago

3 Replies

Change in symptoms

I am wandering if anyone else has had the following with b12 defiency. I have been so unwell on top of b12 I have had uncontrollable shaking high blood...

I am wandering if anyone else has had the following with b12 defiency. I have be...

claire751

•8 years ago

2 Replies

im new ! hello!! having blood tests to check b12 ...

if my levels are low but over the requirement would I still be given injections if I ask for them? what else can I do if I don't have low enough b12? My...

if my levels are low but over the requirement would I still be given injections ...

lynn81

•8 years ago

5 Replies

Still getting symptoms after the injections

Hi All I finished my six injections after being found to have exceptionally low b12 on August 3 and the next injection will be on November 3. I am a vegetarian...

Hi All I finished my six injections after being found to have exceptionally low ...

Alfabeta

•8 years ago

4 Replies

Does Brain Fog - improve????

I had the Montreal Cognitive Assessment to get a base line on my memory to quantify my PA brain fog. I scored 24 out of 30. Normal is 27.4 and a score of...

I had the Montreal Cognitive Assessment to get a base line on my memory to quant...

xyz011

•8 years ago

Be the first to reply

Noob qtns, starting IM vs SC

Hey all, After reading the books of Sally Pacholok and Martyn Hooper I have found my way here! I may have lots of questions but will try to ask them one or two...

Hey all, After reading the books of Sally Pacholok and Martyn Hooper I have foun...

maddog7

•8 years ago

9 Replies

is there another route to PA rather than stomach defect in the absorption route.

after my op end Jun2015 I had problems wandering to my right and low energy physically and brain. Eventually found I had low Haemoglobin and low b12. As Dr...

after my op end Jun2015 I had problems wandering to my right and low energy phys...

Hidden

•8 years ago

30 Replies

B12 deficiency, so frustrating

I went to my GP with breathlessness about 4 weeks ago and they diagnosed it as asthma but I asked for a blood test because I felt like I was anaemic. My...

I went to my GP with breathlessness about 4 weeks ago and they diagnosed it as a...

mj1973

•8 years ago

10 Replies

Finally docs taking notice

I feel relief but a little sad that for 18months I have been back and forth to the docs and until B12 dropped below lower level on blood result they would not...

I feel relief but a little sad that for 18months I have been back and forth to t...

Lizzie69

•8 years ago

3 Replies

This is not a good week, old diagnoses new to me! and new to forum

Hello Writing for some advice and support please. I live with hashi, sle lupus and raynaunds, I see endo and rhmy and Gp just for blood test results, there is...

Hello Writing for some advice and support please. I live with hashi, sle lupus a...

weg1

•8 years ago

4 Replies

Adequate levels of glutathione crucial for those with autoimmune conditions

http://blog.primohealthcoach.com/bid/93702/The-Health-Benefits-Of-Glutathione "It is crucial to maintain adequate levels of glutathione, especially for those...

http://blog.primohealthcoach.com/bid/93702/The-Health-Benefits-Of-Glutathione "...

Polaris

•8 years ago

16 Replies

Testing for Homocysteine & MMA

After battles with my GP re B12 and my most recent blood test (700) I was told I did not need any further injections. I had been requesting them more...

After battles with my GP re B12 and my most recent blood test (700) I was told I...

Beattie-75

•8 years ago

7 Replies

Inflammation in legs

Does inflammation in your legs have anything to do with b12?

4VRHLTHY

•8 years ago

1 Reply

Low B12 without the PA

I've been diagnosed with having B12 deficiency as well as Folic acid deficiency. Does this mean that I have pernicious anaemia? My doctor said no, because I...

I've been diagnosed with having B12 deficiency as well as Folic acid deficiency....

PaulaW61

•8 years ago

6 Replies

Ups and downs after starting b12 course?

My b12 course started in July this month..vaguely 2 months ago...though I have had some improvement but it's like sometimes I feel like I am getting better den...

My b12 course started in July this month..vaguely 2 months ago...though I have h...

Ashishk

•8 years ago

3 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2016

Beware the Paper Clinic

Free viewing this weekend in honor B12 Awareness Week: Sally Pacholok the Movie

Methylcobalamin arrived in HOT mailbox.

THANK YOU PAS!!!

Interesting on the NHS questionnaire for depression

Many Thanks

Advice please :(

Predictable disappointment

update with gp

Help please, could it be B.12?

B12 Treatment

MTHFR

Ibs

The exhaustion is going to kill me

Folate Ferritin

Burniexxx

Change in symptoms

im new ! hello!! having blood tests to check b12 ...

Still getting symptoms after the injections

Does Brain Fog - improve????

Noob qtns, starting IM vs SC

is there another route to PA rather than stomach defect in the absorption route.

B12 deficiency, so frustrating

Finally docs taking notice

This is not a good week, old diagnoses new to me! and new to forum

Adequate levels of glutathione crucial for those with autoimmune conditions

Testing for Homocysteine & MMA

Inflammation in legs

Low B12 without the PA

Ups and downs after starting b12 course?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive