Writing for some advice and support please.
I live with hashi, sle lupus and raynaunds, I see endo and rhmy and Gp just for blood test results, there is no care from them.
I take liothyroxine t3 only with much success, a battle in itself, I manage my life and work well (spoon theory) and just about cope full time, I own and run a public house.
To the point
I have been seeing these consultants for over two years and no one has mentioned to me that positive intrinsic factor means pernicious anemia. I thought it was a lupus test. Also the result comes back as normal B12 everytime, so they take no futher action.
I have been supplementing off my own back all the essential vitamins and got a bit slack the last month or so and have been left almost unable to function on all fronts.
I have no relationship with my own Gp and am now going to work my way through the practice to hopefully find someone to help me, with some understanding of autoimmune conditions. Every time i've been to see the Dr my symptoms have been blamed on thyroid or lupus the fact that my vit levels are all low range is ok with them.
I have appointment with a Gp tomorrow to follow up blood test they took last week. They are all within range but low so classed as normal. My Gp can't or won't order Reverse T3 test but my tsh is in range!0.11 (0.35-4.94)
I am unwell and trying to understand a new illness and butting my head once more to recieve treatment I feel is helpful to recovery not masking the symptoms.
my B12 486 (187-883)
serum folate 4.3 (3.1-20.5)
ferritin 51 (20-204)
transferrin 2.13 (2-3.2)
iron 16.5 (4.4-27.9)
transferrin saturation 30 % <50%
I need to know what to ask the Dr for. what can I expect to offer me, lol.
I take solgar b12 b complex sub lingual and gental iron but feel i should be blasting myself with much more, can anyone let me know how they treat their anemia themselves as already i feel i may not get what i want from my Gp.
thank you for taking time