Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for September 2016

Fibromyalgia

Has anyone else had a diagnosis of Fibromyalgia? I've been visiting my GP on a monthly basis to get to the bottom of my fatigue, aching all over, etc, etc. and...

Has anyone else had a diagnosis of Fibromyalgia? I've been visiting my GP on a m...

Callo56

•8 years ago

12 Replies

Pinned posts

I've been looking for the pinned posts that are often mentioned (top right of the page?) but can't see them. Is it me (quite possible!) or is it my iPhone...

I've been looking for the pinned posts that are often mentioned (top right of th...

JanD236

•8 years ago

16 Replies

Curious

I recent had what I thought was going to be an Intrinsic Factor Antibody blood test, it actually transpires that my bloods were sent on for further tests (IF...

I recent had what I thought was going to be an Intrinsic Factor Antibody blood t...

Geordi

•8 years ago

15 Replies

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Methycobalamin

Would like to purchase sublingual 1000ug does anyone have an idea where i can get this from tried few health shops and the usual places you would excpect to...

Would like to purchase sublingual 1000ug does anyone have an idea where i can ge...

Advice1

•8 years ago

10 Replies

Update to my test results ( Low VB12 and pregnant)

Well my Dr is now doing something about it. He said I may not need VB12 injections but he is going to look back at my notes to see why I needed them in the...

Well my Dr is now doing something about it. He said I may not need VB12 injecti...

shaunab87

•8 years ago

3 Replies

Great meeting with DR today .. Still some good ones out there!!

Hi all .. Thank you for all the advice and support on here, I had my meeting as planned with my GP today. Last week he agreed to read the information on the...

Hi all .. Thank you for all the advice and support on here, I had my meeting as ...

Kellybee

•8 years ago

8 Replies

Recent Blood Work

Hi Could anyone shed any light on this blood work I have just had done?? I am currently taking Ferrous Sulphate - 3 x daily (awaiting an iron infusion) 5mg...

Hi Could anyone shed any light on this blood work I have just had done?? I am ...

Sparkleshimmer

•8 years ago

4 Replies

New here and full of questions. Confused and worried.

Hi I'm new here and looking for some advice as a bit confused and worried. After a long time wondering what was wrong with me I was told I was b12 deficient...

Hi I'm new here and looking for some advice as a bit confused and worried. Afte...

Bodley

•8 years ago

13 Replies

B12 loading

With the 6 B12 loading injections and the GP possibly giving a Blood test in three weeks is it good idea to take sublingual tablets 1000ug in between loading...

With the 6 B12 loading injections and the GP possibly giving a Blood test in thr...

Advice1

•8 years ago

6 Replies

sublingual methylcobalamin

Hi. I have been taking 5000mcg sublinguals for a week following advice and research. I thought I'd go for the biggest dose I could find. How long do they...

Hi. I have been taking 5000mcg sublinguals for a week following advice and resea...

spacey1

•8 years ago

8 Replies

New Frustrated....in rural Missouri needing reference!

I have had symptoms of PA for over a year and was bounced between doctors before recent diagnoses. I am frustrated with my internist and neurogolist....

I have had symptoms of PA for over a year and was bounced between doctors before...

xyz011

•8 years ago

7 Replies

Macrocytosic should it improve on b12 ?

Hi all Just joined this forum, quick background. After much misdiagnosis it was confirmed I had auto immuno chronic ulcerative colitis over 20 years age....

Hi all Just joined this forum, quick background. After much misdiagnosis it was ...

Bobonut

•8 years ago

8 Replies

New with questions :)

Hello, I haven't been diagonosed with b12 deficiency but I found this post after looking into a few things my doctor said, I have been sent for blood tests...

Hello, I haven't been diagonosed with b12 deficiency but I found this post after...

summerc

•8 years ago

3 Replies

Low VB12 levels and Pregnant

Hello I am 28 and when I was 18 I was told I should be on VB12 injections for the rest of my life. When I was 21 I changed doctors ( so full health check...

Hello I am 28 and when I was 18 I was told I should be on VB12 injections for ...

shaunab87

•8 years ago

15 Replies

Pernicious Anaemia

hi there, I have recently been diagnosed with pernicious Anaemia at 25 years old. I had pretty bad neurological problems with numb legs, feet and later on...

hi there, I have recently been diagnosed with pernicious Anaemia at 25 years old...

chloeg91

•8 years ago

5 Replies

B12 deficiency Advice!! Help please!

Hi there, I am 22 years old, it's been two month i found out I have b12 deficiency. I have sever brain fog, memory loss, I can't read. I am a ucla premed...

Hi there, I am 22 years old, it's been two month i found out I have b12 deficien...

VH1993

•8 years ago

30 Replies

Update & moan Endo T3 & B12 moan :)

Hi, I have waited to calm down to give this update.. I think I am there lol... I went to see the endo on the 2nd Aug and I got a guy (Never seen the...

Hi, I have waited to calm down to give this update.. I think I am there lol... I...

scorpiojo

•8 years ago

10 Replies

Hydroxo needed in Edinburgh

Hi All, is there anyone in Edinburgh area using Hydroxo who can lend me a vial to tide me over? I have ordered from Germany but won't get here on time (I...

Hi All, is there anyone in Edinburgh area using Hydroxo who can lend me a vial t...

Galadriel1

•8 years ago

6 Replies

Frustrated don't understand B12

I am a 25 year old women!! A week and a half ago I went to the doctor with tingling in the legs and feet and hands shortness of breath and was told by the...

I am a 25 year old women!! A week and a half ago I went to the doctor with tin...

Klk777

•8 years ago

3 Replies

Worried about daughter

Please see Previous post My 19 yr old daughter is showing symptoms of PA just like myself. Her recent bloods came back normal , no action required ???? B12...

Please see Previous post My 19 yr old daughter is showing symptoms of PA just l...

Kapat1

•8 years ago

9 Replies

Normal b12

Hi there I've only recently had b12 tested and it came back at 108 and was told it was low but I can't find anyone to tell me what is within the normal range ?...

Hi there I've only recently had b12 tested and it came back at 108 and was told ...

leeherron79

•8 years ago

10 Replies

B12

I was wondering about the B12 Didnt get MMA test and don't know where i am in folate previous test have been normal 12 months ago which ive learn't means very...

I was wondering about the B12 Didnt get MMA test and don't know where i am in f...

Advice1

•8 years ago

7 Replies

B12 and Wipes

With the loading dose of B12 is it still protocol to use a alcholol wipe , it was bleeding a quite a bit with Nurse, or have things changed? As i had Mitral...

With the loading dose of B12 is it still protocol to use a alcholol wipe , it w...

Advice1

•8 years ago

5 Replies

Sublingual b12

I'm getting really confused over methylcobalamin an hydroxocobalamin, I'm wanting to try sublingual's in between injections (hydroxo) and have read so much my...

I'm getting really confused over methylcobalamin an hydroxocobalamin, I'm wantin...

Hidden

•8 years ago

9 Replies

Red Blood Cells -advice needed

Hi all, I was diagnosed with pernicious anaemia 4 years ago after a long battle with the healthcare system and it seems the fight continues. I was tested for...

Hi all, I was diagnosed with pernicious anaemia 4 years ago after a long battle ...

gemssea

•8 years ago

14 Replies

Query b12 amount & frequency

Hi there.... I'm hoping someone can enlighten me... Is it possible for neurological symptoms and exhaustion to be prolonged, if you take b12 daily instead of...

Hi there.... I'm hoping someone can enlighten me... Is it possible for neurologi...

ShirleyMurray

•8 years ago

18 Replies

New Budget finger prick profile for Advanced B12 testing

Hi Everyone, Paul at Blue Horizon Medicals here. <admins - please edit or delete as you see fit> We have just released a super little profile for advanced B12...

Hi Everyone, Paul at Blue Horizon Medicals here. <admins - please edit or delete...

BlueHorizonMedicals

•8 years ago

3 Replies

New and confused

I will keep this short as I don't want to bore you all. Last week I was called to attend my doctors surgery, after I had blood test a few days earlier, I was...

I will keep this short as I don't want to bore you all. Last week I was called...

Bellini34

•8 years ago

4 Replies

Treatment Regime For B12 def. with neurological symptoms

I have read quite a few answers on here in respect of the standard treatment of b12 deficiency where there appears to be no neurological involvement. Can...

I have read quite a few answers on here in respect of the standard treatment of ...

roddogsbody

•8 years ago

11 Replies

Cobalt factor of B12

Is it possible to get too much cobalt from frequent injections of hydroxycobalamin eg 1ml every 2 weeks especially if you orally supplement as well with high...

Is it possible to get too much cobalt from frequent injections of hydroxycobalam...

Gillsie54

•8 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2016

Fibromyalgia

Pinned posts

Curious

Methycobalamin

Update to my test results ( Low VB12 and pregnant)

Great meeting with DR today .. Still some good ones out there!!

Recent Blood Work

New here and full of questions. Confused and worried.

B12 loading

sublingual methylcobalamin

New Frustrated....in rural Missouri needing reference!

Macrocytosic should it improve on b12 ?

New with questions :)

Low VB12 levels and Pregnant

Pernicious Anaemia

B12 deficiency Advice!! Help please!

Update & moan Endo T3 & B12 moan :)

Hydroxo needed in Edinburgh

Frustrated don't understand B12

Worried about daughter

Normal b12

B12

B12 and Wipes

Sublingual b12

Red Blood Cells -advice needed

Query b12 amount & frequency

New Budget finger prick profile for Advanced B12 testing

New and confused

Treatment Regime For B12 def. with neurological symptoms

Cobalt factor of B12

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