Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for September 2016

Could I be B12 deficient?

I've been following these posts for several months now in the hope I may find some answers to my symptoms. I haven't got anything conclusive from doctors as...

I've been following these posts for several months now in the hope I may find so...

•8 years ago

Blue horizon test results thyroid - tsh highish but in range vit D borderline, antibody neg, but still tired despite good b12 - advice

Hi I have PA but have felt less well despite monthly B12 and orals so decided to get a thyroid check. Looks like I do not have antibodies against thyroid as...

Hi I have PA but have felt less well despite monthly B12 and orals so decided t...

•8 years ago

Fed up. What a waste of time that was !!

Extremely fed up and upset. Saw a neurologist today who I suppose did reassure me by saying I had no permanent nerve damage but completely opposed to having...

Extremely fed up and upset. Saw a neurologist today who I suppose did reassure m...

•8 years ago

Want to take advantage of all our features? Just log in!

or

Cannot access British National Formulary from US

Hello, I cannot access the British National Formulary from the US. Is there someone who would be kind enough to post the passage regarding treatment for...

Hello, I cannot access the British National Formulary from the US. Is there so...

•8 years ago

Keeping an eye on Mum!

hi I joined because my Mum [87 years] has been diagnosed with B12 deficiency, amongst other things!! And I wanted to better understand the condition, and what...

hi I joined because my Mum [87 years] has been diagnosed with B12 deficiency, am...

•8 years ago

Desperate for suggestions and very scared

Hi, some of you may remember me posting several months ago as having a bad response to b12. Gambit, you pointed me to a post from Foggyme about similar...

Hi, some of you may remember me posting several months ago as having a bad respo...

•8 years ago

Folic Acid

Hi All, am I right in thinking that I only take folic acid supplements for around 1 month then stop, or have I misinterpreted something I have read? Thought I...

Hi All, am I right in thinking that I only take folic acid supplements for aroun...

•8 years ago

Huge thanks for your help and advice.

Just a week in on self injecting and today I feel like me again! Stayed awake and off my bed ALL day. Slight dip in the afternoon but nothing like it has...

Just a week in on self injecting and today I feel like me again! Stayed awake a...

•8 years ago

LUPUS

Hi everyone Has anyone read anything about a link between lupus disease and B12 deficiency as the symptoms of both conditions are so similar , just looking...

Hi everyone Has anyone read anything about a link between lupus disease and B12...

•8 years ago

Some Reassurance Please on S/I Methyl Dosage

Hi all, I haven't posted for several weeks but may be some of you remember me. I was the one with the frosty faced endocrinologist and was trying to start self...

Hi all, I haven't posted for several weeks but may be some of you remember me. I...

•8 years ago

The GP visit.

I'm struggling , had b12 shot 2 weeks ago but been shattered for nearly 4 weeks now. After much advice from this sight I have educated myself. Today was my...

I'm struggling , had b12 shot 2 weeks ago but been shattered for nearly 4 weeks ...

•8 years ago

Had my 5th loading dose today and told they now need to think of stopping

Had my 5th loading dose today and was told that the nurse would have to speak with the GP about more because too many can be just as dangerous. I argued...

Had my 5th loading dose today and was told that the nurse would have to speak wi...

•8 years ago

Nitrofurantoin

Anyone taken Nitrofurantoin & had adverse effect on B12 levels? Had them prescribed for UTI, says on info leaflet to TAKE SPECIAL CARE if you have 'a lack of...

Anyone taken Nitrofurantoin & had adverse effect on B12 levels? Had them prescri...

•8 years ago

US Recommendations?

Hello, I am wondering if anyone can provide an accessible reference for the US recommendations for treatment of B12 deficiency? I have the British ones, but...

Hello, I am wondering if anyone can provide an accessible reference for the US r...

•8 years ago

B12 injections from germany

How long to do they take to be delieved, put order in about 2 weeks ago symptoms already coming back. No way GP will give it before 3 monthly one. Joke why...

How long to do they take to be delieved, put order in about 2 weeks ago symptoms...

•8 years ago

Sudden lower limb weakness

Hello, I am posting regarding my Mum who is 51, has hashimotos (now on 150mcg a day) and was diagnosed as b12 deficient in June 2016. Mums moSt concerning...

Hello, I am posting regarding my Mum who is 51, has hashimotos (now on 150mcg a ...

•8 years ago

Is it unreasonable to ask for another injection?

Hi, my situation is that after finding out my b12 was 68 I had 5 loading doses 6 months ago. After going back to the doctors because I could barely function...

Hi, my situation is that after finding out my b12 was 68 I had 5 loading doses 6...

•8 years ago

B12 supplementation for children

Hi does anyone know or recommend a good B12 sublingual methylcobalamin lozenge or similar that could be used for children ages 9+? Or a multivitamin that has...

Hi does anyone know or recommend a good B12 sublingual methylcobalamin lozenge o...

•8 years ago

Private bloods for B12 and folate

Hi I wonder if i can get some advice. Over the last couple of years my b12 levels have been coming down. I have alot of the symptoms and also neurological...

Hi I wonder if i can get some advice. Over the last couple of years my b12 level...

•8 years ago

Where can I buy injectable b-12?

Please help. I have a mineral deficiency due to fibromyalgia. I was prescribed b-12 injections 20 years ago. I live in the I am and have suddenly been charged...

Please help. I have a mineral deficiency due to fibromyalgia. I was prescribed b...

•8 years ago

PA - linked with fatigue syndrome ?

Hi I have PA that was finally diagnosed 7 years ago. I was on 12 week B12 and the past couple of years 8 weeks. My story briefly 2002 pneumonia in hospital 2...

Hi I have PA that was finally diagnosed 7 years ago. I was on 12 week B12 and th...

•8 years ago

New to all this

Hi all, I'm a 43 yr old woman. I asked for a blood test last week because of fatigue and it came back with a B12 level of 138nmol/L. Mcv of 106.3. GP left a...

Hi all, I'm a 43 yr old woman. I asked for a blood test last week because of fat...

•8 years ago

How to tell when to stop the alternate day injections?

Hello folks, I wonder if I can have some opinions to ponder, please? I've been injecting on alternate days since 25th August, alternate days, until last...

Hello folks, I wonder if I can have some opinions to ponder, please? I've been i...

•8 years ago

Possible iron anemia

Hello everyone My mum is 48 years old and she just did a blood test as she was feeling very tired, couldnt sleep properly and lost significant weight and...

Hello everyone My mum is 48 years old and she just did a blood test as she was ...

•8 years ago

Fairly new to all this

Hello everyone, I was diagnosed in February as being B12 deficient but did not learn until July (with a change of surgeries and a different GP) that I have...

Hello everyone, I was diagnosed in February as being B12 deficient but did no...

•8 years ago

B12 injections - what next?

Hi all, After finally convincing my dads GP to give him B12 injections with a blood test result of 400 and serious neurological problems including a deep...

Hi all, After finally convincing my dads GP to give him B12 injections with a bl...

•8 years ago

Gastrin test

Hi everyone, I posted on here a few weeks ago talking about some of my lab results and what they could possibly entail. Some possibilities were atrophic...

Hi everyone, I posted on here a few weeks ago talking about some of my lab resul...

•8 years ago

Folic Acid

I am taking B12 complex which has 200mcg which forum members said is best idea to go with B12 loading dose, could i ask, as i would also like to take...

I am taking B12 complex which has 200mcg which forum members said is best idea t...

•8 years ago

Yesterday's post on Martyn Hooper's blog

http://martynhooper.com/2016/09/23/2-1-3-2-1/ Hi, Thought you all might be interested in this. It gives a good account of how the PAS can help people with PA...

http://martynhooper.com/2016/09/23/2-1-3-2-1/ Hi, Thought you all might be inte...

•8 years ago

Self injection b12

Hi again, I'm off to the GP ON MONDAY hoping to up my b12 treatment. From the 3 monthly to the with neurological symptoms . I don't believe I ever had a proper...

Hi again, I'm off to the GP ON MONDAY hoping to up my b12 treatment. From the 3 ...

•8 years ago

1
2
3
...
9
Next page

Search posts

Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan

Feb

Mar

Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Mar

Apr

May

Jun

Jul

Aug

Sep

Oct

Nov

Dec

2010

Jan

Feb

Mar

Apr

May

Jun

Jul

Aug Sep Oct Nov Dec