Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for April 2018

Reduced ejection function (EF) after one year of MPA

Hi, my 12 year old son has a MPA that has hit his kidneys. The exams are fine, but just yesterday they told us that the contractile capacity of his heart has...

Hi, my 12 year old son has a MPA that has hit his kidneys. The exams are fine, b...

•6 years ago

Advice on fem pop bypass prognosis

Hi everyone, first post and really after some advice. I've recently had fem pop bypass surgery in my left leg and am reaching out to hear from others that have...

Hi everyone, first post and really after some advice. I've recently had fem pop ...

•6 years ago

Belly fat

Hi, I've always been on the thinner side until about 15 years ago, but my problem is I can lose weight everywhere but my stomach..it is huge..and I feel...

Hi, I've always been on the thinner side until about 15 years ago, but my proble...

•6 years ago

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Drop in haemoglobin

I had a phone call from my Gp today to say my anaemia has deteriorated. My usual level is 106 and it’s dropped to 94 for no apparent reason. I have stage 4...

I had a phone call from my Gp today to say my anaemia has deteriorated. My usual...

•6 years ago

Diagnosing HSP

Hi I have had palpable purpura on and off since nov. ANA was positive in jan and turned negative in Feb. ANCA , CRP, urine test, LFTs and complete blood tests...

Hi I have had palpable purpura on and off since nov. ANA was positive in jan and...

•6 years ago

Does azathioprine cause severe mood swings

I am having really hard to control mood swings and I think it may be medically induced. I am down to only two mg prednizone daily but I also take 125 mg of...

I am having really hard to control mood swings and I think it may be medically i...

•6 years ago

Any information

On 50 milligrams prednisone until 3 weeks ago. I had to take that amount but it made me feel horrible. I have been decreasing 10 mg weekly for the past 3...

On 50 milligrams prednisone until 3 weeks ago. I had to take that amount but it ...

•6 years ago

Looking Well

I live in 'Supported Living', which basically means that there is always 'Someone Available' at all times. Coming down, to get the Paper, this morning one of...

I live in 'Supported Living', which basically means that there is always 'Someon...

•6 years ago

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vasculitis- Polyangiitis - grandomators

i was diagnosed last august. i was put on prednisolone 50mg for 8 months along with Imuran which i am still on. i feel better off prednisone. how ever i still...

i was diagnosed last august. i was put on prednisolone 50mg for 8 months along w...

•6 years ago

Yet to be diagnosed

Hi I've had this come back on my blood tests. Will see rheumatologist in a few weeks. My gp thinks I have vasulitis re this blood and a few of my symptoms. I'm...

Hi I've had this come back on my blood tests. Will see rheumatologist in a few w...

•6 years ago

For those who missed the This Morning Programme today - Jayne talking about her vasculitis.

This is a link to read... it’s about Jayne Hardman talking about living with vasculitis. Wegener’s Granulomatosis ( GPA ). Such an inspirational and brave...

This is a link to read... it’s about Jayne Hardman talking about living with vas...

Volunteer•6 years ago

Anurysim and primary cns vasculitis

Hi I’ve been diagnosed with primary cns vasculitis 8 weeks ago, initially I had tia which resolved within 1 hr then mri showed tumour on left frontal lobe, I...

Hi I’ve been diagnosed with primary cns vasculitis 8 weeks ago, initially I had ...

•6 years ago

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Cushings Syndrome

Hello all, Wonder if you any of you have any insight that can help me. I have GPA vasculitis, diagnoses Jan 18 and I am currently having treatment for it...

Hello all, Wonder if you any of you have any insight that can help me. I have GP...

•6 years ago

GPA/ fungal nail infection

Fungal nail infection. I have GPA. Condition originally affected lungs and kidneys. Have been in remission nearly 5 years, illness successfully controlled with...

Fungal nail infection. I have GPA. Condition originally affected lungs and kidne...

•6 years ago

Anca vasculitis, bronchiectasis and copd

Just curious if any other non-smokers with MPA who did not have lung involvement now have bronchiectasis and copd? I was diagnosed in 2015 and knew I had...

Just curious if any other non-smokers with MPA who did not have lung involvement...

•6 years ago

Just getting through the day. Do you find this a supportive site/ informative site?

Today exhaustion - waiting for a methylpred. infusion on Monday to hold me until the RItuximab dose its magic! One weary lass.

Today exhaustion - waiting for a methylpred. infusion on Monday to hold me until...

•6 years ago

I'm new here: accessing site - vasculitis (systemic)

just accessing the vasculitis website

just accessing the vasculitis website

•6 years ago

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Angry at Medical System and Rheumatologist

I visited my "rheumatologist" who has left the care of patients to a Physician's Assistant while he is busy opening another office. She has paid no attention...

I visited my "rheumatologist" who has left the care of patients to a Physician's...

•6 years ago

HSP is ruining my life!!

Hi I am 27 years old and I got diagnosed with HSP vasculitis in 2015. I had a lot of flare ups after this mainly swelling of the joints in my feet and ankles...

Hi I am 27 years old and I got diagnosed with HSP vasculitis in 2015. I had a lo...

•6 years ago

Mesentric Angina ischemic bowel

Anyone had this problem?

Anyone had this problem?

•6 years ago

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Feeling Off / Malaise / Fatigue

I was wondering if anyone else feels this way. On a day to day basis I get a feeling of uneasiness. It's difficult to describe but feels like constant fatigue...

I was wondering if anyone else feels this way. On a day to day basis I get a fee...

•6 years ago

Seizures

Hi my husband has Cerebral Vasculitis, diagnosed in 2013. He has experienced his second tonic clonic seizure in the last 8 months. He is still on...

Hi my husband has Cerebral Vasculitis, diagnosed in 2013. He has experienced hi...

•6 years ago

Weakly positive ANCA

Hello new to this, been unwell for past few years doc always puts down to fibromyalgia,last few months felt awful hot all the time,severe joint pain,spots and...

Hello new to this, been unwell for past few years doc always puts down to fibrom...

•6 years ago

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