Yet to be diagnosed : Hi I've had this come... - Vasculitis UK

Vasculitis UK

7,783 members6,757 posts

Yet to be diagnosed

Maggsy02 profile image
2 Replies

Hi I've had this come back on my blood tests. Will see rheumatologist in a few weeks. My gp thinks I have vasulitis re this blood and a few of my symptoms. I'm unsure as by looks of this it says it was unable to determine the presence of p-Anca due to atypical nuclear staining whatever that means. Anyone seen this before? Does it mean I will just need blood tested again? Many thanks.

Written by
Maggsy02 profile image
Maggsy02
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Webbyj profile image
Webbyj

Hi. I am not a gp so don’t know what that means. I would ask for another blood test as you need to know for sure if you are ANCA positive. I hope it’s all ok.

ZiggyDiego profile image
ZiggyDiego

My first ANCA test came back with a comment about staining too: because of my other symptoms (lungs, kidneys, joints, eyes) they repeated it very quickly. But it was also highly positive. The second ANCA test confirmed my diagnosis of GPA-ANCA associated Vasculitis, but it was my symptoms that were driving the pace of diagnosis and treatment, not the blood tests. So it looks like you might have to wait to see the rheumatologist, but if your symptoms get worse I would go back to your GP ASAP.

You may also like...

P-ANCA and MPO - not yet diagnosed and extremely anxious

have found this forum. Just found out that I am p-anca with MPO (negative inflammatory markers)...

Not diagnosed

Lots of symptoms and would like to get to the bottom of them. If i susspect vasculitis what tests...

Recently diagnosed with ANCA Vasculitis.

nightsweats, gi problems (diarrhoea sometimes with blood), foot rashes and reccuring toe...

Mum just been diagnosed

and I have to say I had never heard of this condition until now and I am surprised how many...

Recently Diagnosed with CNS Vasculitis