I am 27 years old and I got diagnosed with HSP vasculitis in 2015. I had a lot of flare ups after this mainly swelling of the joints in my feet and ankles which resulted in lots of courses of steroids. I am currently in the process of finding an immunosuppressant that I can tolerate as my rheumatologist has informed me my condition is now chronic.
I have recently had a lot of problems with my bowels which is making it impossible to eat a lot of solid food due to the pain. The pain in my legs is getting unbearable and I feel like I am at my wits end. This illness has ruled my life for the last 2 years and I feel like I can't see an end to the pain that I'm in.
Is there anyone else that has had bowel involvement with this type of vasculitis and is there anything that you found that helped ease the symptoms?