Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,780 members • 6,752 posts

All posts for March 2015

New to all this

Hi all, have just been diagnosed with cerebral vasculitis and am trying to find as much info as I can - not easy as there seems to be very little clarity out...

Hi all, have just been diagnosed with cerebral vasculitis and am trying to find ...

•9 years ago

HOARSE VOICE

Hi, I seem to have an intermittent hoarse voice since I was diagnosed with WG. I don't have a sore throat apart from when I have to swallow constantly or try...

Hi, I seem to have an intermittent hoarse voice since I was diagnosed with WG. ...

•9 years ago

Thames Riverside Walk 2015

This is a call to all of you wonderful people who have said they would like to take part in the Thames Riverside Walk 2015 to raise funds and, more...

This is a call to all of you wonderful people who have said they would like to t...

Volunteer•9 years ago

Be the first to reply

Want to take advantage of all our features? Just log in!

or

Rare Disease Strategy for Wales - Welsh Assembly Halls - Vasculitis UK

Jennifer and Neil, coordinators of the South Wales Vasculitis Support Group attended the Welsh Rare Disease Strategy Meeting March 3rd 2015. One of the...

Jennifer and Neil, coordinators of the South Wales Vasculitis Support Group atte...

Moderator•9 years ago

Be the first to reply

Sunscreen factor 50

Now the sun will soon be shining does anyone know of a 50 plus factor sun screen that doesn't make you look white , greasy or comes off on clothes. Being on...

Now the sun will soon be shining does anyone know of a 50 plus factor sun screen...

•9 years ago

West Yorkshire Support Group

Just a quick reminder of the West Yorkshire Support Group meeting Sunday 22th March 2015 Gomersal Park Hotel, Cleckheaton 1.30pm to 4.30pm The speaker this...

Just a quick reminder of the West Yorkshire Support Group meeting Sunday 22th...

Vasculitis UK•9 years ago

Be the first to reply

Oxford Vasculitis Seminar March 2015

The Oxfordshire VSG Annual Seminar will be held on Sunday 29th March at Kings Sutton Millennium Memorial Hall, Astrop Road, King's Sutton, Banbury, OX17 3PG....

The Oxfordshire VSG Annual Seminar will be held on Sunday 29th March at Kings Su...

Moderator•9 years ago

Lancashire and North West Vasculitis Support Group Meeting

The North West Vasculitis Support Group will be meeting on Sunday 29th March between 2.00 and 4.00 pm As before the venue will be the Trickled Trout Hotel,...

The North West Vasculitis Support Group will be meeting on Sunday 29th March bet...

Moderator•9 years ago

Be the first to reply

The Patient Symposium Invitations have been emailed tonight for those who registered an interest.

The Symposium Programme and Eventbrite invitations have just been emailed to all those who registered an interest for the Vasculitis UK Patient Symposium....

The Symposium Programme and Eventbrite invitations have just been emailed to all...

Moderator•9 years ago

ANCA and ANA positive

I've been ill for about 8 years, recently we've been leaning towards lupus. My ANA is 1:1280 and has been for a while, but I'm told my ANCA is now weakly...

I've been ill for about 8 years, recently we've been leaning towards lupus. My A...

•9 years ago

Capillaroscopy: hemorrhages on six fingers but "totally normal picture"

Dear all, Yesterday I had the capillairoscopy, the vascular assistant “scanned” four fingers on each hand (not the thumbs) with 100x enlargement and two...

Dear all, Yesterday I had the capillairoscopy, the vascular assistant “scanned”...

•9 years ago

wgp

I posted on here several times re symptoms of WGP, the ANCA test came back negative, so My GP decided to refer me to Addenbrook's which I assumed would be...

I posted on here several times re symptoms of WGP, the ANCA test came back n...

•9 years ago

Subglottic Stenosis: positive P ANCA screen, Wegeners / GPA Diagnotic indicators, crusty nose, cyclophosphamide.

I've had 4 surgeries in 18 months for subglottic stenosis, a narrowing of the airway caused by chronic inflammation, though no definite cause has been...

I've had 4 surgeries in 18 months for subglottic stenosis, a narrowing of the ai...

•9 years ago

E-Petitions

Hello Just to remind everyone that haven't already signed please sign and share with family and friends. We still have a way to go before the Petition ends...

Hello Just to remind everyone that haven't already signed please sign and share...

Volunteer•9 years ago

Vasculitis nailfolds (picture attached)?

Dear all, Two weeks ago I made a posting about my health issues and had quite a few valuable responses (love this forum!). Next Wednesday I have an...

Dear all, Two weeks ago I made a posting about my health issues and had quite a...

•9 years ago

Sick of explaining it! Pen pal needed!

So ill be the first to admit that before my dad was diagnosed 3 years ago i had absolutely no idea that Vasculitis even existed. But im sick to death of having...

So ill be the first to admit that before my dad was diagnosed 3 years ago i had ...

•9 years ago

weight loss

Hi everyone i really need some help to lose weight i am 60 yrs old with early onset Dementia. an anyone help ;-)

Hi everyone i really need some help to lose weight i am 60 yrs old with early on...

•9 years ago

1
2