I posted on here several times re symptoms of WGP, the ANCA test came back negative, so My GP decided to refer me to Addenbrook's which I assumed would be the Vaculitis clinic, but instead he refered me back to Rheumatology which I already attend for GCA. I had my appointment yesterday. Outcome, they want me to have a MRI scan on the head, and they will write to my GP so that he can refer me to ENT for the sinus bleeding, nasal crusting, so I assume another long wait [ the ANCA test took over 4 weeks to arrive back ] I don't understand why Rheumatology can't refer me to the ENT clinic at the same hospital, surely it would be quicker ?
I have been taking 20mgs of Pred. for 6 weeks, and my last blood test revealed that my ESR has dropped from 27 to 11 CRP 6 BUT I'm still having the symptoms.
I understand that WGP can be serious, YET there doesn't seem to be any urgency in getting tests/diagnosis done.
I posted this as several on the site wanted to know how I get/got on.
A question. does anyone with WGP have pressure behind the eyes with bulging ? this is a new symptom I'm having along with the red eye, the Rheumatologist also noticed this.