So ill be the first to admit that before my dad was diagnosed 3 years ago i had absolutely no idea that Vasculitis even existed. But im sick to death of having nobody to talk to about the struggle. it sounds so selfish but with every other illness from depression to aids there's help group etc but this is almost like a unheard of evil.
Made worse by the fact that even medical staff are not armed with knowledge or wisdom.
I'm pretty young (23) so most of my friends parents arn't even retired yet, so they don't understand the hurt of watching a parent (who is in his early 40's) deteriorate rapidly.
I just wish i had someone to talk to who understood...... someone who also understands the illness...
Could do with a friend.