Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,783 members • 6,757 posts

All posts for February 2015

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hi im new to this group i got diagnosed in december after having a massive heart attack ,i have takasu not good a spelling,i need to have open heart surgery as...

hi im new to this group i got diagnosed in december after having a massive heart...

•9 years ago

RUDY - A study into rare diseases of the bone, joint and vessels

If you live in England and have been diagnosed with Microscopic Polyangiiis, Takaysu Arteritis, Churg Strauss Syndrome or Polyarteritis Nodosa and you would...

If you live in England and have been diagnosed with Microscopic Polyangiiis, Tak...

Moderator•9 years ago

Vasculitis UK - VOLUNTEERS WANTED

VOLUNTEERS WANTED Are you newly retired or have some time to spare? Are you an enthusiast who would like to help the work of Vasculitis UK? Due to the...

VOLUNTEERS WANTED Are you newly retired or have some time to spare? Are you a...

Moderator•9 years ago

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Wegeners- Persistent Cough with loss of appetite

Hi- My wife has recovered well from WG since May 2011 and she has rarely suffered from infections due to her low immune system- This past 6 weeks she has...

Hi- My wife has recovered well from WG since May 2011 and she has rarely suffer...

•9 years ago

Anyone with TAK have experience of constant pain?

I have takayasu's Arteritis and have a near occlusion of my left subclavian meaning I have no pulse in my left arm. Until recently I could get a low blood...

I have takayasu's Arteritis and have a near occlusion of my left subclavian mean...

•9 years ago

dennis carter

having just found this web site,also have had vasculitus for 5 months, nearly finished chemo. i keep seeing the wagner gl. what is it have not come across this...

having just found this web site,also have had vasculitus for 5 months, nearly fi...

•9 years ago

Still waiting for anca results

My Dr. who suspects I could have WG sent off for an ANCA test, this was almost 3 weeks ago! In the meantime he said to take 20mgs pred. However I am...

My Dr. who suspects I could have WG sent off for an ANCA test, this was almost...

•9 years ago

Jim McCluskey Memorial Dinner and Auction for Vasculitis UK

The Ayrshire Referees Association is organising an auction as part of the Jim McCluskey Memorial Dinner (21 February 2015), with all funds raised going to...

The Ayrshire Referees Association is organising an auction as part of the Jim Mc...

Moderator•9 years ago

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Travel insurance to America

Please can anyone pass on the best insurance to take out for America. I Have GPA, Diabetes, Angina and fibro myalgia, also a couple of other minor things. I...

Please can anyone pass on the best insurance to take out for America. I Have GP...

•9 years ago

British London 10k Run July 2015

VUK are now accepting entries for the British London 10K run on the Sunday 12th July 2015. There are 6 places left to fill. If you know of anyone who would...

VUK are now accepting entries for the British London 10K run on the Sunday 12th...

Moderator•9 years ago

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Flu vaccine 'barely effective' against main viral strain - BBC NEWS

This link was posted in the VUK FB Group and has created some lively debate, so I thought I would post the same link in the HU community....

This link was posted in the VUK FB Group and has created some lively debate, so ...

Moderator•9 years ago

Appointment with Rheumatology cancelled again!

Last November I had an appointment with my Rheumatology consultant who then considered that I was now in remission but would like to see me again in the...

Last November I had an appointment with my Rheumatology consultant who then cons...

•9 years ago

Media Request for those living in Scotland, diagnosed with a rare disease

We know there are some members living in Scotland with Vasculitis or have a family member with Vasculitis. This came through Twitter this morning , if anyone...

We know there are some members living in Scotland with Vasculitis or have a fam...

Moderator•9 years ago

Mychophenalate 509 mg Drug side effects

Hello Everyone. Just some advice needed really. I have TAK and I have just been started on Mycophenolate mofetil 500mg tablet per day with a view to increasing...

Hello Everyone. Just some advice needed really. I have TAK and I have just been ...

•9 years ago

hello

My boyfriend was diagnosed with Wagner gl he has been in chmo for about 6 mo on and off due to respiratoru infections....Im not sure how to help him...please...

My boyfriend was diagnosed with Wagner gl he has been in chmo for about 6 mo on ...

•9 years ago

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