Media Request for those living in Scotland, diagnosed with a rare disease

We know there are some members living in Scotland with Vasculitis or have a family member with Vasculitis. This came through Twitter this morning , if anyone is interested in contacting Rare Disease UK

@rarediseaseuk: Media request! We're looking for patients in Scotland who are willing to share their story of living with a ‪‎raredisease‬…/tell-your-story-form.doc

1 Reply

  • This is from Rare Disease UK to John this morning

    We have had a number of media requests in the run up to Rare Disease Day and are looking for a number of patient case studies for the following: please follow the link below.

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