RUDY - A study into rare diseases of the bone, joint and vessels

[Suzym2u]

If you live in England and have been diagnosed with Microscopic Polyangiiis, Takaysu Arteritis, Churg Strauss Syndrome or Polyarteritis Nodosa and you would like to support the RUDY study , please can you register.. they really need more numbers of these types... also surprisingly enough Giant Cell Arteritis. Having said all this , they are still recruiting all other types too..

research.ndorms.ox.ac.uk/rudy/

[Albasain]

Sue, would this also include such vasculitides as Rheumatoid Vasculitis with associated mono-neuritis multiplex in the extremities?

[Suzym2u Moderator Vasculitis UK in reply to Albasain]

yes Albasain it does

[PMRpro]

I tried to contact them on the number given to ask about GCA and PMR and the only person I got knew nothing whatsoever about it. I did tell people on the PMR/GCA forums but I gather a few wanted to know a bit more about it - as I did - and in the absence of any info didn't complete anything online.

[Suzym2u Moderator Vasculitis UK in reply to PMRpro]

you can call this number 01865 223407 if you have any problems please get back to me and I will try and find out what the problem is.

Best Wishes

Susan

[Suzym2u Moderator Vasculitis UK]

There will be an update about the RUDY project at the Oxford Vasculitis Support group Meeting by Raashid Luqmani so I am sure most questions will be answered then. March 29th 2015 . vasculitis.org.uk/events/ox...