Last November I had an appointment with my Rheumatology consultant who then considered that I was now in remission but would like to see me again in the following January. As that appointment approached I received another letter cancelling the appointment with a new date for one in March this year. Today I received another letter cancelling that appointment and giving a new date in May. All in all this will mean that I will not be seeing the consultant for six months and no explanation given. Now I'm currently reducing my Prednisolone with a view to stopping it in March and I wanted to talk about tapering off the Mycophenolate (MMF) as we are now at the two year period when it could be considered.
I find it most unsatisfactory and intend to contact the rheumatology secretary to find out what is happening and why. Depending on the reply I get I will then take it further. Vasculitis is not a disease that can be dealt with in such an offhand way and needs close liaison between patient and clinicians.