Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,810 members • 6,817 posts

All posts for June 2013

Support group meets in Lincolnshire?

Is there a group that meets? Got diagnosed with WG 14 years ago and have never had the chance to talk to anyone ( apart from my wife) about it. Be so good to...

Is there a group that meets? Got diagnosed with WG 14 years ago and have never h...

Weetie

•11 years ago

3 Replies

anybody have difficulty using mobiles or house phone who uses hearing-aids.Loss of hearing has been the most annoying side-effect of wg,

thank god for texting but at 72 i'm not the fastest.thank you,john

buddy70

•11 years ago

7 Replies

Memory loss is a real problem.i have CSS DX2012 is it meds or illness or age.just turned 60

Lync

•11 years ago

5 Replies

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West Yorkshire Informal Lunch

Do you sometimes feel you do not get enough time to chat to others about living with Vasculitis and life in general at a normal support meeting. Well now is...

Do you sometimes feel you do not get enough time to chat to others about living ...

Jann

•11 years ago

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Regaining strength during treatment.

My Mum is a few weeks into treatment with pred and cyc, she doesn't yet seem to have regained much strength. Don't misunderstand me, she is much better, she...

My Mum is a few weeks into treatment with pred and cyc, she doesn't yet seem to ...

luggsey

•11 years ago

7 Replies

My nose feels persistently numb

Hi there, My nose has changed shape over the past 4-5 months to becoming more saddled-shaped. There is a new dip/depression at the end of my dorsum before...

Hi there, My nose has changed shape over the past 4-5 months to becoming more...

Brian222

•11 years ago

5 Replies

In Memory

Some wonderful people are helping Vasculitis UK support Vasculitis patients and their families by undertaking events in memory of those loved ones they have...

Some wonderful people are helping Vasculitis UK support Vasculitis patients and ...

Jann

•11 years ago

2 Replies

Reminder for the South Wales Vasculitis Support Group Meeting July 15th 2013

http://www.vasculitis.org.uk/events/wales-vasculitids-meeting-june-2013

John_Mills

Volunteer•11 years ago

2 Replies

Vasculitis UK Newsletter

For those who do not receive an e-mailed copy of the Vasculitis UK e-News, you can now read it on the V-UK website. Simple visit the Newsletter page and scroll...

For those who do not receive an e-mailed copy of the Vasculitis UK e-News, you c...

Jann

•11 years ago

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Anybody have a direct number for Stella at Addenbrookes, Clinic 12? Need it asap

Really in need of seeing one of the doctors as soon as possible, and the only way I can get an appointment within the next week is to contact her. Would be...

Really in need of seeing one of the doctors as soon as possible, and the only wa...

turtleface

•11 years ago

4 Replies

Bladder pain while taking cyclophosmide.

My Mum is taking 100mg oral cyclophosmide and has been for five or six weeks now. She has a cathater fitted as she is bed bound at present. She has just told...

My Mum is taking 100mg oral cyclophosmide and has been for five or six weeks now...

luggsey

•11 years ago

7 Replies

Symptoms seem to be increasing but change hourly , daily ,!

Hello , back to hospital next Monday for MRI and had to have bloods taken today due to increase of symptoms and fever last night .Is it common to have knees be...

Hello , back to hospital next Monday for MRI and had to have bloods taken today ...

Motherof4

•11 years ago

11 Replies

Is anyone on this regime?

My 34 yr old daughter (systemic vasculitis) takes the following drugs every day. Does anyone else? Gabapentin, Plaquenil. Losec. Lexapro. Prednisone....

My 34 yr old daughter (systemic vasculitis) takes the following drugs every day....

02061949

•11 years ago

1 Reply

Inflammation marker value.

My Mums pred was reduced and her inflammation marker jumped from 72 to 77. This was all in the same week. Does that sound normal? I worry all the time about...

My Mums pred was reduced and her inflammation marker jumped from 72 to 77. This...

luggsey

•11 years ago

2 Replies

Advice on duration of treatment for Takayasu's Arteritis- prednisolone and methotrexate

Hi, After being unwell for 2 years (and experiencing a PE in that time), I was final diagnosed with Takayasu’s Arteritis at Addenbrooke’s on Monday. I have...

Hi, After being unwell for 2 years (and experiencing a PE in that time), I wa...

Littledot3

•11 years ago

6 Replies

Why You Should Have Your Own Scale Diary

If on any given day you want to know how I am feeling, you can always refer to my scale diary. Anything greater than 4 means I'm probably not up to doing...

If on any given day you want to know how I am feeling, you can always refer to m...

notsossweets

•11 years ago

9 Replies

sue GP and hospital for lack of knowledge/misdiagnosis causing delay in treatment?

HHeyy everyone. I went to my GP Back in February this year before going to walk in clinics in January for ear aches and nose bleed with joint pains all over...

HHeyy everyone. I went to my GP Back in February this year before going to wa...

rrahman

•11 years ago

8 Replies

boy with behcet's disease on c4 12/06/13

24 hours in A&E next wednesday, they showed a preview of some of the patients to be featured and mentioned this young man.

24 hours in A&E next wednesday, they showed a preview of some of the patients to...

hamble99b

Volunteer•11 years ago

5 Replies

numbness in arms ,legs and feet

been having this for 2 years,ive had nerve conduction studies done ,and they were fine but having them done again soon fed up being told its the way I...

been having this for 2 years,ive had nerve conduction studies done ,and they wer...

quinnster

•11 years ago

11 Replies

Mum just been diagnosed

My mum 3 weeks ago was diagnosed with vasculitis. I have just found this site and I have to say I had never heard of this condition until now and I am...

My mum 3 weeks ago was diagnosed with vasculitis. I have just found this site an...

chrissy60

•11 years ago

13 Replies

West Country BBQ

The West Country group will be holding a bbq on Sunday 30 June from 1.00 at my house, near Teignmouth. If you would like to come along (partners welcome of...

The West Country group will be holding a bbq on Sunday 30 June from 1.00 at my h...

DevonLottie

•11 years ago

1 Reply

Cyclophosphamide and avoiding public places

Hi, I'll try my best to explain this in English. I'm currently taking Cyclophosphamide and my white blood cells are around 6 (normal value is from 4.0...

Hi, I'll try my best to explain this in English. I'm currently taking Cyc...

Hidden

•11 years ago

10 Replies

The bee sting

I'm feeling better in myself today, but my face is worse. I have swelling above my eye as well now so I can barely open it. Taking antihistamine tablets and...

I'm feeling better in myself today, but my face is worse. I have swelling above ...

suffolkgirl

•11 years ago

3 Replies

Methotrexate overload!

I have just had to be taken off methotrexate (last week ) for 4 weeks as my consultant believes I have been over medicated on it. The last couple of days I...

I have just had to be taken off methotrexate (last week ) for 4 weeks as my cons...

sar1980

•11 years ago

4 Replies

Possible problem with Azathioprine

I was due to increase my daily dose from 50mg to 75mg, but due to liver tests not looking too good I've been told to stay on 50mg. Have to see what happens...

I was due to increase my daily dose from 50mg to 75mg, but due to liver tests no...

suffolkgirl

•11 years ago

2 Replies

Does immune suppression make you more likely to have a more severe reaction to a bee sting?

suffolkgirl

•11 years ago

12 Replies

Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

All posts for June 2013

Support group meets in Lincolnshire?

anybody have difficulty using mobiles or house phone who uses hearing-aids.Loss of hearing has been the most annoying side-effect of wg,

Memory loss is a real problem.i have CSS DX2012 is it meds or illness or age.just turned 60

West Yorkshire Informal Lunch

Regaining strength during treatment.

My nose feels persistently numb

In Memory

Reminder for the South Wales Vasculitis Support Group Meeting July 15th 2013

Vasculitis UK Newsletter

Anybody have a direct number for Stella at Addenbrookes, Clinic 12? Need it asap

Bladder pain while taking cyclophosmide.

Symptoms seem to be increasing but change hourly , daily ,!

Is anyone on this regime?

Inflammation marker value.

Advice on duration of treatment for Takayasu's Arteritis- prednisolone and methotrexate

Why You Should Have Your Own Scale Diary

sue GP and hospital for lack of knowledge/misdiagnosis causing delay in treatment?

boy with behcet's disease on c4 12/06/13

numbness in arms ,legs and feet

Mum just been diagnosed

West Country BBQ

Cyclophosphamide and avoiding public places

The bee sting

Methotrexate overload!

Possible problem with Azathioprine

Does immune suppression make you more likely to have a more severe reaction to a bee sting?

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