Posts - Vasculitis UK | HealthUnlocked

Vasculitis UK

7,805 members6,816 posts

All posts for June 2013

Support group meets in Lincolnshire?

Is there a group that meets? Got diagnosed with WG 14 years ago and have never h...
Weetie profile image

anybody have difficulty using mobiles or house phone who uses hearing-aids.Loss of hearing has been the most annoying side-effect of wg,

thank god for texting but at 72 i'm not the fastest.thank you,john
buddy70 profile image

Memory loss is a real problem.i have CSS DX2012 is it meds or illness or age.just turned 60

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West Yorkshire Informal Lunch

Do you sometimes feel you do not get enough time to chat to others about living ...

Regaining strength during treatment.

My Mum is a few weeks into treatment with pred and cyc, she doesn't yet seem to ...
luggsey profile image

My nose feels persistently numb

Hi there, My nose has changed shape over the past 4-5 months to becoming more...
Brian222 profile image

In Memory

Some wonderful people are helping Vasculitis UK support Vasculitis patients and ...
Jann profile image

Reminder for the South Wales Vasculitis Support Group Meeting July 15th 2013

http://www.vasculitis.org.uk/events/wales-vasculitids-meeting-june-2013
John_Mills profile image
Volunteer

Vasculitis UK Newsletter

For those who do not receive an e-mailed copy of the Vasculitis UK e-News, you c...

Anybody have a direct number for Stella at Addenbrookes, Clinic 12? Need it asap

Really in need of seeing one of the doctors as soon as possible, and the only wa...
turtleface profile image

Bladder pain while taking cyclophosmide.

My Mum is taking 100mg oral cyclophosmide and has been for five or six weeks now...
luggsey profile image

Symptoms seem to be increasing but change hourly , daily ,!

Hello , back to hospital next Monday for MRI and had to have bloods taken today ...
Motherof4 profile image

Is anyone on this regime?

My 34 yr old daughter (systemic vasculitis) takes the following drugs every day....
02061949 profile image

Inflammation marker value.

My Mums pred was reduced and her inflammation marker jumped from 72 to 77. This...
luggsey profile image

Advice on duration of treatment for Takayasu's Arteritis- prednisolone and methotrexate

Hi, After being unwell for 2 years (and experiencing a PE in that time), I wa...
Littledot3 profile image

Why You Should Have Your Own Scale Diary

If on any given day you want to know how I am feeling, you can always refer to m...
notsossweets profile image

sue GP and hospital for lack of knowledge/misdiagnosis causing delay in treatment?

HHeyy everyone. I went to my GP Back in February this year before going to wa...
rrahman profile image

boy with behcet's disease on c4 12/06/13

24 hours in A&E next wednesday, they showed a preview of some of the patients to...
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Volunteer

numbness in arms ,legs and feet

been having this for 2 years,ive had nerve conduction studies done ,and they wer...
quinnster profile image

Mum just been diagnosed

My mum 3 weeks ago was diagnosed with vasculitis. I have just found this site an...
chrissy60 profile image

West Country BBQ

The West Country group will be holding a bbq on Sunday 30 June from 1.00 at my h...
DevonLottie profile image

Cyclophosphamide and avoiding public places

Hi, I'll try my best to explain this in English. I'm currently taking Cyc...
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The bee sting

I'm feeling better in myself today, but my face is worse. I have swelling above ...
suffolkgirl profile image

Methotrexate overload!

I have just had to be taken off methotrexate (last week ) for 4 weeks as my cons...
sar1980 profile image

Possible problem with Azathioprine

I was due to increase my daily dose from 50mg to 75mg, but due to liver tests no...
suffolkgirl profile image

Does immune suppression make you more likely to have a more severe reaction to a bee sting?

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