Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

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Do I have Raynauds?

Hi everyone, This is my first post here and I am hoping all you knowledgeable folk can help me decide ‘Next Steps’. I am a 61 yo female living in Hampshire &...

Hi everyone, This is my first post here and I am hoping all you knowledgeable f...

2SWD

•2 days ago

5 Replies

Poly Myalgia Rheumatica

I have scleroderma for past 12 + years and been on mycophenolate for 10 years for lung fibrosis I have now been diagnosed with PMR and in chronic pain...

I have scleroderma for past 12 + years and been on mycophenolate for 10 years fo...

Carolanne

•3 days ago

1 Reply

Recently Diagnosed

Hi Everyone, I’ve recently been diagnosed with Diffuse Systemic Sclerosis at 35, after about 9 months of experiencing various symptoms. One week ago, I saw a...

Hi Everyone, I’ve recently been diagnosed with Diffuse Systemic Sclerosis at 3...

Sebastian2024

•5 days ago

9 Replies

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Problems with ankles ….

I was diagnosed with Scleroderma in 2008 although like many others I think it was well established before my diagnosis. I have had excellent treatment from Dr...

I was diagnosed with Scleroderma in 2008 although like many others I think it wa...

creditcrunchie

•6 days ago

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Problems with ankles ….

I was diagnosed with Scleroderma in 2008 although like many others I think it was well established before my diagnosis. I have had excellent treatment from Dr...

I was diagnosed with Scleroderma in 2008 although like many others I think it wa...

creditcrunchie

•6 days ago

1 Reply

Sidenafil - does it help ?

hi , I have tried a few different meds for my raynauds including fluoxetine most recently. I haven’t found anything that helps and so stopped taking due to...

hi , I have tried a few different meds for my raynauds including fluoxetine mo...

PBMB

•8 days ago

21 Replies

High Calcification and stenosis

Morning All, I have been going through a series of test recently because I was getting chest tightness,I attributed it to GERDs and dysmotality,I had recently...

Morning All, I have been going through a series of test recently because I was ...

Buttsy

•8 days ago

11 Replies

Puffy fingers without Raynaud's?

I've committed the cardinal sin and entrusted Dr Google to diagnose me leading to feeling pretty distraught about the future, or lack of it... I've...

I've committed the cardinal sin and entrusted Dr Google to diagnose me leading t...

bracken30

•9 days ago

3 Replies

Rituximab- So Far

I had my first Rituximab at the beginning of July, the second a couple of weeks later and a couple of Iloprosts since then. I did not enjoy the infusions or...

I had my first Rituximab at the beginning of July, the second a couple of weeks ...

Lupiknits

•9 days ago

12 Replies

RSV Vaccine

The vaccine is only being given to 75 -79 yr old. I am 82 with scleroderma and other underlying health issues. The article I read said that the NHS is...

The vaccine is only being given to 75 -79 yr old. I am 82 with scleroderma an...

creditcrunchie

•11 days ago

5 Replies

Hospital referal

Hieveryone ! I have very bad reynauds and digital ulcers alongside stomach and bowel issues so have been referred to salford hospital in Manchester to...

Hieveryone ! I have very bad reynauds and digital ulcers alongside stomach and b...

Tmontana

•11 days ago

5 Replies

How were you diagnosed with Scleroderma?

I have recently been diagnosed with systemic scleroderma. My consultant seems to have based his diagnosis solely on my blood being tested positive for SCL70...

I have recently been diagnosed with systemic scleroderma. My consultant seems to...

Greetwell

•12 days ago

15 Replies

Hidden hernia

Anyone any hints etc on hidden hernia severe ongoing alst daily pain, long story don't want to bore you, having tried so many times for help mixed connective...

Anyone any hints etc on hidden hernia severe ongoing alst daily pain, long story...

Deby177

•14 days ago

1 Reply

SRUK fundraiser race result

Well the run I was doing to raise funds for SRUK was last week. Unfortunately I had to withdraw half way round as I got to a point where I was unable to...

Well the run I was doing to raise funds for SRUK was last week. Unfortunately I ...

MadDave

•15 days ago

4 Replies

Royal Free Nurses

Do others have trouble getting hold of the Royal Free hospital nurses. Whenever I leave a message I do not get a call back. Perhaps I’ve just been unlucky?

Do others have trouble getting hold of the Royal Free hospital nurses. Whenever ...

Badflower

•17 days ago

1 Reply

critical illness insurance

Hi All, I am trying to get an insurance for future critical illness, I have tried several providers but my request always gets rejected as I have been...

Hi All, I am trying to get an insurance for future critical illness, I have tri...

ScleroRay

•18 days ago

3 Replies

Feet Problems

I have Crest and Raynaud's (diagnosed in 2014) and have been getting more feet problems like plantar fasciitis and ankle joint issues in the last few years....

I have Crest and Raynaud's (diagnosed in 2014) and have been getting more feet p...

Mezgit

•22 days ago

17 Replies

Difficulty coping with housework and family's needs

My house is a tip and I am barely coping. I have limited energy and I am letting down everyone around me. I could go on, but that's about the sum of it. Just...

My house is a tip and I am barely coping. I have limited energy and I am letting...

ThreeColoursGreen

•23 days ago

12 Replies

Vit B12

good morning everyone, wondering if anyone here has experienced low vit b12. Had a note from my GP practice to say mine is quite low and I have an appointment...

good morning everyone, wondering if anyone here has experienced low vit b12. Had...

Clangerscat

•25 days ago

10 Replies

acupuncture for Raynauds

Has anyone had success with acupuncture for chronic Raynauds in your fingers?. The pins and needles sensation will not go away in the tip of one finger. Thanks...

Has anyone had success with acupuncture for chronic Raynauds in your fingers?. T...

Ciaran34

•29 days ago

2 Replies

more joint issues

hello , has anyone on this wonderful platform needed an ankle fusion? My sub talar joint has collapsed and I have been recommended a fusion and repositioning...

hello , has anyone on this wonderful platform needed an ankle fusion? My sub tal...

UCTD

•29 days ago

7 Replies

Does use of Flax seeds help in scleroderma especially the skin and face ?

Does using Flax seeds change the skin and improve facial appearance in scleroderma?

Does using Flax seeds change the skin and improve facial appearance in sclerode...

Ajoshi

•1 month ago

2 Replies

Dry eyes.

Does any one have immunosuppressant eye drops for dry eyes and if so do they work? I have had an uncomfortable eye for several years which I am assured is...

Does any one have immunosuppressant eye drops for dry eyes and if so do they wor...

bearman

•1 month ago

12 Replies

stiff joints

Hi all a quick question , much as I am enjoying the warmer weather and not having to wear gloves and am finding I’m having a lot of stiffness and pain in...

Hi all a quick question , much as I am enjoying the warmer weather and not havin...

Clangerscat

•1 month ago

18 Replies

Side effects

I have been on coracten for 2 months now and my ears seem to be playing up, started with one ear now both have become very muffled, could this be a side effect...

I have been on coracten for 2 months now and my ears seem to be playing up, star...

Asdfghjk11

•1 month ago

2 Replies

Research Nailfold capillaroscope AI

Dear all, I just wanted to share that I went for a nailfold capillarscope test on Monday at my local hospital Stepping Hill , I had been contacted a few weeks...

Dear all, I just wanted to share that I went for a nailfold capillarscope test ...

Buttsy

•1 month ago

13 Replies

Advice very much appreciated

Hello, I am a 56 year old female and I'm a bit unsure where to begin with my story. Maybe background first. In her 50s, my mother developed Raynaud's. She...

Hello, I am a 56 year old female and I'm a bit unsure where to begin with my sto...

AMC7

•1 month ago

25 Replies

Anticoagulants

Anyone had experience with being offered anticoagulants? With me for atrial fibrillation. I'm worried about the bleeding risk of course.

Anyone had experience with being offered anticoagulants? With me for atrial fibr...

Castella

•2 months ago

4 Replies

Hepatic liver

so I have been to London again to see the scleroderma clinic to find that still a year after my gall bladder was removed my liver is still showing no signs of...

so I have been to London again to see the scleroderma clinic to find that still ...

Jaq1971

•2 months ago

18 Replies

Nifedipine brand?

Hi folks, does the brand of nifedipine matter? I see on some NHS prescribing guidelines that the same brand should be supplied if possible, eg Adapine,...

Hi folks, does the brand of nifedipine matter? I see on some NHS prescribing gu...

redmaggie

•2 months ago

10 Replies

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Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

Do I have Raynauds?

Poly Myalgia Rheumatica

Recently Diagnosed

Problems with ankles ….

Problems with ankles ….

Sidenafil - does it help ?

High Calcification and stenosis

Puffy fingers without Raynaud's?

Rituximab- So Far

RSV Vaccine

Hospital referal

How were you diagnosed with Scleroderma?

Hidden hernia

SRUK fundraiser race result

Royal Free Nurses

critical illness insurance

Feet Problems

Difficulty coping with housework and family's needs

Vit B12

acupuncture for Raynauds

more joint issues

Does use of Flax seeds help in scleroderma especially the skin and face ?

Dry eyes.

stiff joints

Side effects

Research Nailfold capillaroscope AI

Advice very much appreciated

Anticoagulants

Hepatic liver

Nifedipine brand?

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