I was diagnosed with Scleroderma in 2008 although like many others I think it was well established before my diagnosis. I have had excellent treatment from Dr Lanyon at QMC Nottingham . I have a development which I find worrying so thought I would ask the forum. My ankles have become troublesome with the sensation of prickling. It’s constant from when I wake up and go to bed at night ie non stop. Because I have other health issues I followed the route of thinking it was peripheral arterial disease aka PAD. However when researching I came across the possibility that because I’ve got a connective tissue disorder it could be neurologically related and so I’m asking if this has affected any others? When I read up about PAD, my symptoms don’t seem to quite fit. Anyway thanks for taking time to read this.
Problems with ankles ….: I was... - Scleroderma & Ray...
Problems with ankles ….
I’m not sure if you realise but you’ve posted this twice so hard to know which one to reply to. Maybe delete the other asap now and then you may get more replies? Oddly I did used to get a similar symptom for a while when my neuropathy first began when I was misdiagnosed with RA.
It rose up my legs to affect my thighs with a damp/ wet/ cold sensation which gave me the creeps - hated it. But doing with this came excruciating burning feet and ankles/ shins during the night. This was small fibre neuropathy I was told and it later became more diffuse with reddening and swelling in palms and very sore mouth with numb patches on face. Eventually I was diagnosed with Sjogren’s instead of RA and my next Rheumy added Raynauds to the mix.
None of this showed in my bloodwork apart from high inflammation markers and immunoglobulins. I asked to be referred to neurologist and they ran tests for MS but only thing that showed was severe arthritis in neck and lumbar spine and a systemic process, which they blamed on my Sjogren’s for years. Main issues by then were confirmed as gastroparesis and slow transit in colon, SIBO, oesophageal dysmotility etc and then a scleroderma antibody showed up and bingo was at last diagnosed and treated. Ankles are okay and no PAD so all Erythromelalgia, Raynauds and small fibre neuropathy for me - mainly Raynauds and calcinosis in feet are the worst as mostly feet are numb now xx
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