Vit B12: good morning everyone... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Vit B12

Clangerscat profile image
10 Replies

good morning everyone, wondering if anyone here has experienced low vit b12. Had a note from my GP practice to say mine is quite low and I have an appointment for a phone consultation with my GP on 6th of Sept. Having had a quick google I’ve noticed it can be caused by ppi’s and I have been on a high dose of omeprazole.

Seems there’s always something round the corner with this disease doesn’t it, I’m starting to dread results!

Would be so grateful for any advice.🤗

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Clangerscat
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10 Replies
Bkart profile image
Bkart

Hi, I’ve had low vitamin B12 levels, I had a course of B12 injections which were given much the same as a flu or Covid jab. I was told it was absorbed by the body much better than tablet form, this returned my levels back to normal quite quickly. Good luck.

Clangerscat profile image
Clangerscat in reply toBkart

Many thanks Bkart, that’s encouraging to hear.

DizzyLiz57 profile image
DizzyLiz57

Yes I have regular B12 injections. They do sting a bit (large needles) but lack of vitamin B12 really affects your energy levels so definitely worth it 😊.

Buttsy profile image
Buttsy

Hi morning,

I started having B12 deficiency injections last year , I had a few close together at the start (loading doses)and now have them every 3 month at my GPs . I have been on PPI for Gerds for over 10 years which I have been told can affect your absorption of certain vitamins and minerals. I am also on Ferrous sulphate at the minute as my iron often goes low. I think it helps .

Yes just something else.

Good luck

Mezgit profile image
Mezgit

Liquid form of b12 is more easily absorbed as low b12 is often due to low stomach acid. You need to keep it in your mouth for about a minute before swallowing so it goes directly into your blood stream bypassing your digestive system. My b12 is very high now, after using this form of b12 a d I feel much better.

cheeselover342 profile image
cheeselover342

My cousin had low B12 following treatment for a rare auto immune type of vasculitis. She was treated at the time and it stabilised but swears by her daily dose of toast and yeast extract!

Clangerscat profile image
Clangerscat in reply tocheeselover342

Thank you cheeselover I’ll give it a go🤗

Agedbiker profile image
Agedbiker

Like others here I have regular B12 injections every 3 months. SSC can affect how we absorb B12 through the stomach so the injection bypasses this and gets it back to where it should be. As others have said you do notice the injection going in but this is outweighed by the benefits.If you do start injections then you will normally have them 3 weeks apart initially then 3 monthly thereafter.

Clangerscat profile image
Clangerscat in reply toAgedbiker

Thanks for your reply, I note you have GAVE which I also have. Have just had bands put round the bleeding blood vessels in an effort to get my iron levels back up. Have you had any therapy for this? You are the first person I’ve seen on website with this problem.

Agedbiker profile image
Agedbiker

Mine is linked to a hiatus hernia but they won't operate as I also have motility issues and fixing the hernia would make the swallowing issues worse. I am on Esomeprozole and Prucalopride both of which help. I also take co-amoxiclav as I get bacterial overgrowth in the small intestine (SIBO). My gastric issues are constantly reviewed but any permanent or surgical solutions tend to be ruled out as they affect one of my other (many) issues.I have regular blood tests due to some of my meds so any issues are normally picked up quite quickly.

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