good morning everyone, wondering if anyone here has experienced low vit b12. Had a note from my GP practice to say mine is quite low and I have an appointment for a phone consultation with my GP on 6th of Sept. Having had a quick google I’ve noticed it can be caused by ppi’s and I have been on a high dose of omeprazole.
Seems there’s always something round the corner with this disease doesn’t it, I’m starting to dread results!
Would be so grateful for any advice.🤗
Hi, I’ve had low vitamin B12 levels, I had a course of B12 injections which were given much the same as a flu or Covid jab. I was told it was absorbed by the body much better than tablet form, this returned my levels back to normal quite quickly. Good luck.
Many thanks Bkart, that’s encouraging to hear.
Yes I have regular B12 injections. They do sting a bit (large needles) but lack of vitamin B12 really affects your energy levels so definitely worth it 😊.
Hi morning,
I started having B12 deficiency injections last year , I had a few close together at the start (loading doses)and now have them every 3 month at my GPs . I have been on PPI for Gerds for over 10 years which I have been told can affect your absorption of certain vitamins and minerals. I am also on Ferrous sulphate at the minute as my iron often goes low. I think it helps .
Yes just something else.
Good luck
Liquid form of b12 is more easily absorbed as low b12 is often due to low stomach acid. You need to keep it in your mouth for about a minute before swallowing so it goes directly into your blood stream bypassing your digestive system. My b12 is very high now, after using this form of b12 a d I feel much better.
My cousin had low B12 following treatment for a rare auto immune type of vasculitis. She was treated at the time and it stabilised but swears by her daily dose of toast and yeast extract!
Thank you cheeselover I’ll give it a go🤗
Like others here I have regular B12 injections every 3 months. SSC can affect how we absorb B12 through the stomach so the injection bypasses this and gets it back to where it should be. As others have said you do notice the injection going in but this is outweighed by the benefits.If you do start injections then you will normally have them 3 weeks apart initially then 3 monthly thereafter.
Thanks for your reply, I note you have GAVE which I also have. Have just had bands put round the bleeding blood vessels in an effort to get my iron levels back up. Have you had any therapy for this? You are the first person I’ve seen on website with this problem.
Mine is linked to a hiatus hernia but they won't operate as I also have motility issues and fixing the hernia would make the swallowing issues worse. I am on Esomeprozole and Prucalopride both of which help. I also take co-amoxiclav as I get bacterial overgrowth in the small intestine (SIBO). My gastric issues are constantly reviewed but any permanent or surgical solutions tend to be ruled out as they affect one of my other (many) issues.I have regular blood tests due to some of my meds so any issues are normally picked up quite quickly.
B12 deficiency and raynauds
Raynaud's without colour changes
anyone have hip and neck pain connected to Raynauds ?
Hi - I'm new , a bit muddled and confused, but definitely not neurotic!!
Are infected spots on your feet connected to Raynaud's ? 
