Feet Problems

[Mezgit]

I have Crest and Raynaud's (diagnosed in 2014) and have been getting more feet problems like plantar fasciitis and ankle joint issues in the last few years. Does anyone know if this is common with CREST or Raynaud's?

[ThreeColoursGreen]

I'm sorry you're experiencing this. I don't know if it's common to people with Raynaud's or CREST, but I have had Raynaud's since childhood and last year I had what I thought must be plantar fasciitis. It was so painful I started imagining I wouldn't be able to walk properly again. I found the exercises on the NHS website quite helpful. My feet still hurt especially first thing in the morning, and one of my toes sort of seizes up. I'm now wondering if these are symptoms of scleroderma, which I've been diagnosed with this year, as the sensation of 'walking on pebbles' is mentioned on the SRUK website and is described as being caused by changes in the fat pads on the soles of the feet.

[ThreeColoursGreen in reply to ThreeColoursGreen]

the SRUK advice is here: sruk.co.uk/raynauds/managin...

[Mezgit in reply to ThreeColoursGreen]

Thank you.

[Mezgit in reply to ThreeColoursGreen]

Thank you for your reply. Painful feet in the morning is something I definitely experience. I put on my Crocks to walk around especially for the first 10 minutes or so. 'Walking on pebbles' is a very accurate description I think. I used to enjoy long walks and now I am a little paranoid about hurting my feet. 🙏

[ThreeColoursGreen in reply to Mezgit]

Crocs are so comfy

[Choughwatcher in reply to ThreeColoursGreen]

Hello, I'm wondering if you have been diagnosed with Morton's neuroma? As I have and the symptoms of walking on pebbles and diagnosed with this, steroid injections have helped me tremendously, though have had to be repeated several times. I have Raynaurds among other things, never got anywhere with GPS on asking for referrals to rule out or diagnose with lupus and scleroderma which I may have considering all my other symptoms and information from those organisations. I hope you find ways to manage your pain and thank you for reading this. 🙂

[Mezgit in reply to Choughwatcher]

Thank you for your comment. I will look into Morton's neuroma and mention it to my doctors next time I see them. 🙏

[ThreeColoursGreen in reply to Choughwatcher]

I'll look into it too. Thanks. I hope you get some clarity about your other symptoms

[PodLady]

Hiya, are you able to ring your local Podiatry department to see if they have a rheumatology podiatrist? It sounds like this is more than a simple footwear answer. When I was in post, I would provide casted insoles to ensure there are no peak pressure points under the foot and these can be covered with a thermal layer such as plastazote. We would also help people to identify the right footwear for their specific issues. You really should, at the very least, have an assessment to ensure nothing is being missed

[Mezgit in reply to PodLady]

Thank you for this information. I will mention this to my gp and my doctors at the rheumatology. 🙏

[positivedaybyday]

Hi,I had severe foot issues in the very early days of being diagnosed with Systemic Sclerosis & secondary raynaulds. My hands were the first indicator, extremely red feeling numb & pins & needles. It was excruciating.

After a month my hands went OK & it moved to my feet.

The same sensation. I has to use ice packs to try & cool them down to be able to sleep.

Taking just a few steps really hurt. I mentioned this to my Rhuematology Consultant & she arranged for me to see the podiatrist at the hospital. They fitted special padded insoles into my trainers as these were the only shoes I could wear. It was especially sore on my left foot. There was also some medical term for the area under my foot. Something like Morphea?

It might be an idea to mention this to your specialist if you have a hospital appointment soon. With this was you'll have the issue noted on your records. Failing that, at the Drs or perhaps visit a podiatrist.

The padded insoles really did help.

I hope you get some relief soon.

[Mezgit in reply to positivedaybyday]

Thank you. Great information. Next appointment is in November but I might talk to my gp about this. I am also seeing a physiotherapist in October, he might be able to help.🙏

[UCTD]

Hi Megzit, yes I have plantar fasciitis in both feet and a Subtalar joint collapse due to the inflammatory component of CTD. I will need to have my ankle fused unfortunately.

I have tried orthotics,physiotherapy, joint injections with limited success.

[Mezgit in reply to UCTD]

Sorry to hear that about your ankle. Thank you for your reply. Really helpful hearing from other people with similar experience.

[UCTD]

Thank you, yes this is a great little forum, you realise that we are not alone, which is a great support.

[Redwine53]

hi Mezgit, I have had scelerderma for five years now, and about 18 months ago I felt as if I was walking on pebbles, I thought I would never be able to go out for a walk agin. My rheumatologist suggested gel inserts, I got some Scholl ones from Amazon and they were amazing. There are even inserts for sandels.

I hope you get sorted soon, and that gel inserts help you.

[Mezgit in reply to Redwine53]

Thank you Redwine53. I will definitely give them a try.