Travel Insurance: Hi, does anyone have... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Travel Insurance

LilyInTheSun profile image
4 Replies

Hi, does anyone have any recommendations for getting travel insurance?

The company I've previously been using has now added a question asking if l've confirmed with my dr that I'm fit to travel and the policy is void if I can't answer yes to that. However, I contacted my GP and they no longer provide a 'fit to travel' service, and won't comment on whether I'm fit to travel.

I've tried getting other quotes, but most companies (for people with medical conditions) say they can't cover me. One that would cover me was incredibly expensive (initial quote was over £1,100). Most companies won't provide cover if you are on a waiting list for treatment, but that's pretty much my whole life with NHS waiting lists! (Currently on a list for a couple of things, including Botox in my hands for Raynaud's, but have been on the list for a year already.)

I have scleroderma (with mild ILD), Raynaud's, and Sjogren's. Generally fairly stable now, as I've had scleroderma for over 14 years.

I feel like scleroderma has taken so much away from me, and being able to have a holiday once or twice a year somewhere hot really helps me, especially with my Raynaud's. I'm finding this really frustrating. I'd appreciate advice from anyone with experience finding affordable travel insurance. Thanks very much!

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LilyInTheSun
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4 Replies
LadyTrundle profile image
LadyTrundle

I got cover with Staysure earlier this year. I don’t remember them asking that question. Are you under rheumatologist? Would that provide a fit to travel ststent?

pinkcat26 profile image
pinkcat26

I too use staysure and have done for a few years

Halfwayuphill profile image
Halfwayuphill

I got mine through Paying Too Much as I found Staysure a bit expensive. A friend recommended it to me who has the same as me but is worse. I tried to time applying for when I wasn’t waiting for results and I got a yearly policy but just for Europe.

FreezingFingers profile image
FreezingFingers

Hi, the SRUK site has a list of Insurance companies that have been useful for scleroderma sufferers in the past, and some will make a donation to SRUK if you mention them when getting a quote. Go into Managing Scleroderma then scroll down to the Travel section.

I’ve used Freedom to Travel last couple of years - they were a lot less expensive than Staysure and seem good - but luckily I haven’t had to find out how they are when you need them!

You still have to run through endless questions over the phone (it will reject you on-line) but once you have done it once it’s easier to renew the next year (probably the same for all of them). Good luck - it is a right pain but worth the peace of mind.

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