Losing Vision! : Unable to read... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Losing Vision!

Shejustice profile image
6 Replies

Unable to read, decrease in vision, told scarring under eyelidsand is scleroderma of eyes, started on serum tears, prednisone and diflucan. So scared and how will this go??

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Shejustice profile image
Shejustice
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6 Replies
trunchalobesity profile image
trunchalobesity

I’m so sorry. I’ve never heard of this. My sights deteriorated but I thought it was age related. I’ll get this checked out. I hope they can help you .

Good luck

Shejustice profile image
Shejustice in reply to trunchalobesity

I have had dry eyes since my mid 20’s

And on restasis for many years.

Last year I had steroid induced cataracts

And had surgery- but this is very scary as not improving....

trunchalobesity profile image
trunchalobesity in reply to Shejustice

I hope something can be done. This disease is scary. I too take steroids and now take hydrochlorquinine which can also affect vision.

My thoughts are with you x

MissusTee profile image
MissusTee

I've never heard of this with scleroderma?? However it sounds as if you need a referral to an ophthalmologist. Are you on hydroxychloroquine as this can affect your eyes?

Shejustice profile image
Shejustice in reply to MissusTee

I have been following with opthamalogist for years and just started seeing corneal specialist this month at Kellog Eye Insttute

The eye dr started me on the prednisone daily- not on treatment otherwise

MDulle profile image
MDulle

I’m sorry to read this! I have lost much of my vision over the past ten years, and I can no longer see to drive. My new consultant in the USA now has me using Lotemax - steroid drops - x3 daily and it seems to have slowed down the loss of vision.

I hope that you can find a solution to your issue!

Blessings.

Mx

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