Empower yourself: Annual tests: sruk.co... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Empower yourself

Denny57 profile image
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Annual tests:

sruk.co.uk

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Denny57 profile image
Denny57
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Thanks for drawing attention to this info. It does explain some tests, but does not really clarify who in today's NHS is responsible for doing/ordering/reviewing them.

I'd be interested in others' views.

Denny57 profile image
Denny57

Hi Crenellated,

I would suggest that you order the booklet as it is very informative as I only photo shot the back page.

There doesn’t seem to be any help as cut back in the NHS and our benefit system is failing people.

I now taken photos of things as they happen to me as I ask for for an appointment as my health situation changed and had a consultation with a completely new doctor who told me to exercise and said I would have a six week program at the hospital. As I said before I went along to this appointment all kitted out to take part in this program only to be told that I fell into the overuse group and there’s nothing the hospital can do for me. That was sometime ago and I still haven’t have this report put in writing.

I was under the hospital heart and chest clinic, there was confusion with a appointment letter being sent in July for a appointment in June and I was put down as DNA and since been discharged as a result. I went back to my GP to no avail, this was over 18 months ago.

I have a thick file with reports and letters, I applied for PIP and lost out by 2 points, I feel totally let down by health professionals.

I now take tramadol when the pain is too bad, changed my diet and life style, I have good days and bad days, bad days are out weighing the good ones at the moment.

I’m 5 years off retirement and just hope that I can continue to work to support myself.

Well it’s 4.18 am and I need to be up at 5 am for my 35 mile drive to work to complete my 10 hour day and then drive another 35 miles home, lucky I was bless with will power as I said before mind is willing but body isn’t.

I use my stick when I need to but change it for a shepherd crook when I’m out and about on the farm with classes of children.

I’m fighting for support in work and said only this week to my line manager if this condition was cancer you as my line manager would have a greater understanding for the need for support.

I am not feeling sorry for myself, I am just so frustrated that I’m not being listened to and I will continue fighting as long as my body allows.