Anyone get bladder issues?

[flowflow]

Is bladder issues common with scleroderma? I’ve been told i have a connective tissue disease (although they since have said its likely CREST). I had the the minera coil put in to control endometriosis. I’ve had the coil in 5 months and have had issues from the very first day- more cramping, lots more pain etc etc. Was told I had to give it 6 months to know if it really works which I appreciated and have been doing but about two days ago I had a sudden pain followed by a bad burning sensation that came out of nowhere when I urinated and it’s just getting worse. Today has been awful, there’s an awful pressure like feeling on my bladder like someone is pushing hard on it continually (u know when you have an ultrasound and you’re bursting for a wee and you feel like you’re going to wet yourself any second - it’s that feeling all the time!!) I feel the need to urinate all the time yet very little cones out. I’ve had awful diarrhoea with it (I get this a lot anyway) and also when I do pee it burns or I get odd internal pains. I rarely get UTIs- certainly never felt anything like this. I’ve been checked for infection and there’s white blood cells in urine but no elevated nitrates so they are awaiting further analysis but meanwhile the pain is just awful. They are saying it’s either infection or inflammation. I’m starting to wonder if it could be related to the coil given all the other issues I’ve had with it Or if this is part of scleroderma. I’m finding it very hard to cope with the pain tonight and am literally sat crying. I have other inflammation at the moment- mainly jaw, bowel, knee and shoulder joint? And lovely mouth ulcers.

Thanks for any replies

[MissusTee]

I've never heard of bladder issues connected with scleroderma tbh, and I've had it for 30 years, it's much more likely to be another issue. Sounds as if you need to rethink the coil.

[UCTD]

Sorry to hear you are suffering like this. I have similar issues, I should have reported to my Rheumatologist earlier, he referred me to a urologist who tells me bladder symptoms are common with connective tissue disease, I have overactive bladder and after a series of urology investigations I now take Betmiga and Tolteridone which controls these symptoms well. They do have side effects as with all drugs, but life is so much better,

As for the Mirena, I had pain for over a year after I had my first one inserted for endometriosis, it’s so debilitating. Try and hold on for another month, if things don’t settle down, have it removed.

I have CREST, osteoarthritis,fibromyalgia,on a cocktail of medicines, Good luck, and you are not alone 🍀