Do not have reynoids!: Why did they put... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

11,028 members5,552 posts

Do not have reynoids!

Savannahcolors profile image
7 Replies

Why did they put me down as having reynoids. I do not have that

Written by
Savannahcolors profile image
Savannahcolors
To view profiles and participate in discussions please or .
7 Replies
Savannahcolors profile image
Savannahcolors

NO!

Savannahcolors profile image
Savannahcolors

I cane here to figure out what I do have

Savannahcolors profile image
Savannahcolors

I have had something strange since childhood. When I go in the sun for a bit I start feeling really weird and then if I stay in the sun I get a bolt of lightning that charges through my head, if I still stay in the sun I start getting jumpy and nervous. I feel like I will jump out of my skin. I feel scared freaked out this has gone on since childhood

Photosensitivity causing a type of migraine?

Allergy to sunlight (this is a thing)

frillyhilly profile image
frillyhilly

Is it your Doctor who has given you this diagnosis? If it is, can you get to see a different doctor for a second opinion? If your GP does think you have Raynaud's then you need further tests to see whether you have what is called Primary Raynaud's (no underlying issue like lupus, etc) or Secondary Raynaud's i.e. where the Raynaud's is a symptom of another illness. When I first had problems this meant me seeing a Rheumatologist who arranged further tests, maybe now your GP can do these.

The sun thing may or may not be related, but it doesn't sound like a symptom of Raynaud's. I have a diagnosis of Raynaud's and I also have hay fever. I agree with "The_Bear" that you could have a severe allergy to the sun - again you need a GP to diagnose it.

Hope you get an answer soon.

Savannahcolors profile image
Savannahcolors

I DO NOT have Reynoids, somehow my cursor clicked it on. I wanted to see if I could find out why the sun has always affected me the way it has.. that's all!

Savannahcolors profile image
Savannahcolors

I DO NOT HAVE REYNOIDS! My cursor accidently clicked it on and I couldn;t unclick it..

Not what you're looking for?

You may also like...

To do or not to do?

I'm so fed up of waking up and feeling like my hands and feet are made of concrete and I'm more...
AMDP profile image

Do I have Raynauds?

My hands and feet are normally cold, but when the weather turns cooler, my hands hurt and my...
Suei profile image

Do you have Iloprost treatment?

If so, we'd love to hear about your experience. In particular we are interested to hear if...
RSA_Hannah profile image

Do any of you have secondary Sjogrens?

I have this secondary to my scleroderma/PBC. My eyes are very dry and i use viscotears for them. My...

Do I have to stay out of the sun?

Hi I was diagnosed with limited curtaneous systemic scleroderma and secondary reynauds 2 years...

Moderation team

AnnabelSRUK profile image
AnnabelSRUKAdministrator
Chicunique27 profile image
Chicunique27Administrator
SRUKadmin profile image
SRUKadminPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.