Is anyone else receiving cyclophospha... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Is anyone else receiving cyclophosphamide treatment

Skeltoncd profile image
4 Replies

My husband has just started treatment and I want to know if anyone is

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Skeltoncd
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sue-58 profile image
sue-58

I have had cyclosphamide treatment which has stablized my lungs.The 1st one made me feel a bit heady.Its important to take the anti sickness tablets.The second I was violently ill for 11 hours.After two visits to out of hours doctor I ended up having an anti sickness injection which worked almost instantly.The 3rd I was fine.I think the key is.If you feel even slightly heady take the anti sicknes tablets straight away.

Skeltoncd profile image
Skeltoncd in reply tosue-58

Hi Sue

Thanks for your message. He was sick the first morning but has just been feeling really drained. He is having good days and bad days

Claire

Good morning. I had 8 bouts of cyclophosphamide and as long as I took my antisick sickness pills as perscrI bed I did just fine. It has stablised my lungs. Unfortunately it has not help my general condition of scleraderma. Hope all goes well for your husband x

Skeltoncd profile image
Skeltoncd in reply toJoanne_Evans030365

Hi Joanne

Thanks for your message. He was sick the first morning but has just been feeling really drained. He is having good days and bad days

Claire

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