Doctors not much help..
Fab to find a group who know what they are talking about! l need your opinions and your guidence
I went to 5 different GP's and got 5 different answers for the patches on my skin. Finally l said to the last one, l think it's some kind of morphea or schleroderma to which she replied it's definatley not. To defend my case and try and get somewhere, ltold her l had had so many diagnosis which didn't fit so l wanted to see a consultant. She reluctantly agreed to get me one after saying "you really think you are ill don't you"... so she got me an appointment at a hospital.
I saw a dermatologist consultant at the hospital who was nice but confused. He went and got another doctor and they ummmed and arhhed and he finally siad we think it's morphea, limited to your skin. Its not systemic as you dont have ulcers on your fingers. I said l have raynauds.. but he repeated l don't think it is systemic you would have a lot more symptoms. However he didn't ask about my overall body pain, my leg cramps, blurred vision, dry eye etc.
I then told him l have a dark dented patch between my eyebrows which is making its way down my itchy nose and l can see another patch at the corner of my eye and if l stand in a sideways light- like my bathroom l can see a white line running down my nose where the shadow is appearing. The prickly itchy sensation on my face is the same as the several patches down the sides of my torso... he replied "oh l cant see it, you are just looking for stuff, everybodys face gets older.."
He siad we need a biopsy from my torso, so l had one there and then.
I am still awaiting my results.
I feel frustrated and would love your advice on what to do and how to get proper diagnosis when my dermatologist a.) Isn't too well up on sclero and b.) Thinks lm worried about getting old!
Thanks everyone, l really appreciate any imput