Which medication?: I have been on... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,825 members5,405 posts

Which medication?

Gymbabe profile image
3 Replies

I have been on Nifepress MR for about 3 years and when I saw the Rheumy this week she asked if I had felt it had helped? And to be honest I don't think it has.

I'm still freezing most of the time, live in thermals and hate walking down the fridge/ freezer isle even in the middle of summer!. Never mind getting something out of the freezer at home.

I know that I'm lucky that I don't get ulcers or anything.

But just wondering what other medication there is?

Written by
Gymbabe profile image
Gymbabe
To view profiles and participate in discussions please or .
3 Replies
Jinty65 profile image
Jinty65

Is Nifepress a Calcium channel blocker? Take a look at this NHS document about treatment for digital ulcers. It shows a pathway for recommended medications. Don't know if this will help you but it's worth a look.

england.nhs.uk/commissionin...

Gymbabe profile image
Gymbabe in reply to Jinty65

Thank you for that it makes interesting reading.

Not sure yet til I go back to the GP what's going to happen medication wise.

Been thinking maybe the fact that I have not been getting ulcers means it's been working?

It would be nice to be able to feel my feet though, been numb and like a block of ice for years :(

Jinty65 profile image
Jinty65 in reply to Gymbabe

Gymbabe I have Raynauds and was put on Nifedipine. I think it is to open up the blood vessels and help stop ulcers. There's a lot of info out there about how to combat the cold of Raynauds. Some people wear Uggs all year round! If you're on Facebook I'd join the group called Scleroderma family. Loads of knowledgable people and usually someone answers your questions. If you haven't seen it already, take a look at this website. Lots of good info about keeping warm and even an online shop. raynauds.org.uk/raynauds/ra.... Jinty xx

You may also like...

Medication

Hi can anyone tell me what medication they are on for Raynauds as I have been told by the doctors...

Medication for Raynards

regarding suitable medication. Does anyone have any ideas to the possible medications that may...

Raynauds medication & treatment

treatments for raynauds? I struggle with the medications having much affect on my flare ups and...

Advice on medication to manage Raynaud's symptoms

Hi, I've had Raynaud's for many years but it has recently become quite severe and i'm struggling to...

Advice for seeking medical advice for Raynauds Phenomenon please

just wanting to make sure I've not missed anything even though I'm a nurse!! Any advice is greatly...