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Scleroderma & Raynaud's UK (SRUK)

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Severe depression

beehopeful profile image
7 Replies

Hi everyone I'm currently going through a hard time with my lupus,I'm in the middle of a flare and feel abuslotuly terrible too the bone,I'm seeking anyone's help with how I can battle depression naturally iv come too a stage where getting out of bed is a struggle,can't seem too get anyone too understand me I'm aching all over and because of this have become very angry at the people around me which I know isn't fair but no one seems too understand me,I'm scared I also might be pregant which is scaring me as I'm not aware of what my health will do iv become so closed in and scared that I feel sick from it all,life isn't good at the moment and I need someone too tell me what I can do naturally I don't want too be on meds all my life but it seems I will be once I get my self too a doctor. Battling lupus has had its toll on me emotionally and physically I feel useless and very unhappy with the pains I get from it one mintue I'm ok next I'm suffering when will this go in too remission. Someone please advice me.

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beehopeful profile image
beehopeful
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7 Replies
babssara profile image
babssara

Beehopeful, do what your name says "BE HOPEFUL"!!!!

I know things look pretty desperate at the moment, and far be it from me to tell you it will get better (only you and your doctor can decide that), but don't give in to this dratted illness. Fight it with all your strength, I know that's not good at the moment, but you will get stronger.

Have you thought that maybe your family and friends may be scared for you. Is there someone who you can talk to within your closest circle. I'm sure that if you opened up, they will heave a sigh of relief that you've finally come to terms that this condition is here to stay (for the time being anyway) and there is nothing you can do to change that fact. I bet your family just want to hug you and make your suffering go away, if only you would let them.

Please, (I know its really, really tough) take the bull by the horns. You will feel better for it. Scream and shout if you need to!!!!

Please take care.

Big gentle hug

Babs x

beehopeful profile image
beehopeful in reply to babssara

Hi babs

Thank you for your kind words it's nice too know someone can relate too you.

It's going too be a long journey and your right I have too bite the bullet and face the facts,giving up is always easy right.

I will see this through and try and sort my head out then my health and I will have too battle it out.

Thank you sooo much babs.

Big hug back too you too x

Discontent profile image
Discontent in reply to babssara

I agree with babs. I have Lupus also, now 33 years, and depression comes when you think about your aches and pains. Please remember family and friends who know someone with this illness will have compassion and trust they to are afraid for you. But keep in mind, you have a purpose in this Life and let that too be your guide. You are loved by people who know you. Hang in there, don't give in, and don't quit living your life. You will get better with medical care and tender words of faith. I have faith you will get better darling. Much love.

Typicalmommy profile image
Typicalmommy

Hi hunny I know how you feel I have systemic scleroderma and had it for four years I real didn't want to live about two years ago and refused to go on anti depressants but my daughter gave me a good talking too and said I was being selfish for wanting to end it all coz I would leave her with no mom it shook me up and I went on anti depressants in the end and I have to say they work I feel more hopeful now hope this helps chin up darling lots of hugs xxxx

beehopeful profile image
beehopeful

Thanks,it's a hard battling with depression I want too snap out of it but I can't all I do is sleep and watch the world go by. But your right I have 3 kids and they need me as well as my partner god give me strength.

Thank you so much

Hugs back too you too xx

Smudge_Crawford profile image
Smudge_Crawford

Hi Beehopeful, I know life's really hard, I have had MS for twenty years, and more recently raynaulds, which is why I joined this site, I know this is easier said than done, but positive thinking, it keeps me fighting, 2010 just got too much after three deaths in the family and I went to the Dr, and yep he put me on antidepressants, I can't tell you how much they helped me, only 10mg made a huge difference, I kept beating myself up about giving in, and I'm stronger than this, I can fight this, I don't need help but it got too much and I couldn't cope, my family was suffering, so I gave in, I'm still fighting and will, like you, for the rest of my life, unless they find a cure!, I find doing Tai Chi helps enormously, and forces me into socialising once a week, it's so easy to cut your self off and not even realise you are doing it, been there done, that (several times) if you have someone you can talk to, please do, CBI therapy also helped me, ask your Dr to refer you, I have a list of things to be grateful for, my Husband, my kids, my 19.5 year old cat, and the fact I had 19 years with her twin sister, I remind myself of this every morning, and what I still physically can do, I don't know if any of this will help, but be reassured, people do understand, are not judgmental, and will support you if you ask for help, that's the hardest thing, ask, sending you lots of hugs, kind thoughts and empathy. XXXX

Winter64 profile image
Winter64

Hello, I don't have anything to help in a natural way but I am currently on 300mg of Doxepin, I was severely depressed almost 3 years ago so I looked for some meds ( my absolute last resort) that did other things to help my vasculitis. Doxepin has antihistamine action so helps my urticarias, it is a great pain reliever (same family as amitriptyline) sedative so helps me sleep and stabilised my depression. It is a massive dose to contemplate ( I worked up at 25mg a time) I still manage to get up at 5.30am for work, I find that if I split the doses it keeps me steady all day and also ready for sleep I take 75mg 9am 12pm 3pm and 6pm.

I also had mindfulness counselling which was useful, in my area they were looking to use it for people who were diagnosed with a chronic illness.

I hope you find something that works for you, it might seem strange when you are exhausted to take sedatives but bizarrely doesn't seem to make it worse. Sending you massive hugs, trying to pull yourself out of that black hole is not easy, it's taken me three years this time and I have had it on and off for 30 years but you will get there, much love Karen xxxxxx

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