Endoscopy and Angiogram : Hi . I hope... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Endoscopy and Angiogram

9 Replies

Hi . I hope everyone is keeping warm . I had an angiogram recently and it came back saying I had a breathing artefact but otherwise ok. But am now being sent for an echocardiogram to ensure I don't have Scleroderma induced Pulmonary Hypertension. Had a Gastro endoscopy yesterday which says I have reflux Oesophagitis grade A . What does that mean?

I still am getting heart attack like symptoms which only ease after a puff or two of Glyceryl Trinitrate spray.

I do have a confirmed diagnosis of Scleroderma but I am puzzled by all these tests. Anyone got a clue ?

At last at the Rheumatologist on Friday so that may clear up matters.

Thanks for all help. Lynn

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9 Replies
Irene55 profile image
Irene55

When I was first diagnosed with Scleroderma/Polymiositis I was sent for all kinds of tests. I had X-rays, lung function test, echocardiogram and a DXA scan for osteoporosis. I don't have any problems with all these areas but they are all just to rule out any problems.

They do them a few times and when they have ruled out any health problems in these areas then they stop them. My rheumatologist has told me a short while ago I don't need these tests any more.

I wouldn't worry, just be happy that you have a doctor who is thorough and making sure that you have these tests.

in reply toIrene55

Thanks Irene . I just seem to be facing them all at once . But as you say at least I am being cared for.

Hope you are well. Lynn

Irene55 profile image
Irene55 in reply to

Yes, that is what I felt when I was diagnosed. All these tests coming at me. But I soon found out that these health problems didn't exist.

I am a lot better now, I won't ever manage without Mycophenolate but the doctor said next time I see him he might be able to reduce it.

I am fine, thanks.

Irene

Well I feel reassured now . Mind you I still am getting chest pains which sometimes feel like a heart attack so am also awaiting an echocardiogram to see if I have pulmonary hypertension.

That will be great if you can reduce your medication Irene. Good luck Irene.

JayneO profile image
JayneO

Hi Lynn

Good luck tomorrow, hope all goes well.

in reply toJayneO

Thanks Jayne. 👍

Karina profile image
Karina

Hi I also had several tests I thought I had pulmonary hypertension I was having trouble breathing and chest pain. My pulmonary Doctor had me go to the Cath Lab to check my lungs. I fortunately didn't have PAD. However my Cardio Dr checked my arteries and they were clogged. So what I was having was heart attacks. I had a Quadruple bypass almost two years ago and I'm doing well. Please get all the tests you never know what they will find!

Karen

in reply toKarina

Gosh Karen . Thank you for your reply. You certainly have been through it but I am glad to hear you are doing ok. I am to go for a lung test and an echocardiogram so hopefully that will help . Lynn

Karina profile image
Karina in reply to

Good luck Lynn you will be fine I'm sure ☺️

Karen

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