Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

10,963 members • 5,488 posts

All posts for November 2011

For you my friend.....

Just a small note for you...because I care.

GinaAnn

•13 years ago

5 Replies

Organization of Support Group in Southern Middle Tennessee

If anyone is interested in the above area to help organize a support group in our area please contact me at eclausa@yahoo.com I am new to this disease...

If anyone is interested in the above area to help organize a support group in ou...

GinaAnn

•13 years ago

5 Replies

Raynaud'sDefinition By Mayo Clinic staff

Definition By Mayo Clinic staff Raynaud's (ray-NOHZ) disease is a condition that causes some areas of your body — such as your fingers, toes, the tip...

Definition By Mayo Clinic staff Raynaud's (ray-NOHZ) disease is a condit...

GinaAnn

•13 years ago

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I was wondering how many men we have on this site with Raynauds, Scleraderma or other autoimmune diagnosises. It's nice to have a man here.

Not that I/we wish anything bad, just as a caregiver or even patient...these illnesses are so different for everyone. Comparing symptoms as they started, how...

Not that I/we wish anything bad, just as a caregiver or even patient...these ill...

MARCY

•13 years ago

2 Replies

Has anyone experienced their toe nails going black in a matter of day's? Is this to do with Raynaud's or Scleroderma? x

JulieB

•13 years ago

3 Replies

I am looking for advice on my 10yr old sons Raynauds.

My 10yr old son has recently been diagnosed with Raynauds, he has had bother with 'blue' fingers, toes and lips since he was 2 months old! He also gets a lot...

My 10yr old son has recently been diagnosed with Raynauds, he has had bother wit...

Jill68

•13 years ago

12 Replies

Posted by Loopy-loo

I suffer from Fibromyalgia,Rheumatoid Arthritus,Lupus & more recently Raynauds.I had a Iloprost Infusion but it hasent helped much.My Fingers and toes are...

I suffer from Fibromyalgia,Rheumatoid Arthritus,Lupus & more recently Raynauds.I...

Loopy-loo

•13 years ago

4 Replies

can anyone help me understand about scleroderma?

hey my nan died of scleroderma I don't know much about it but I wondered if it can run through the family I'm to scared to look on line but every time I get...

hey my nan died of scleroderma I don't know much about it but I wondered if it c...

harley12

•13 years ago

7 Replies

Had a Bad Night!

Well Last night My pitty Party was on! And no one was invited! I think it all got to Me last night and the pain in my hands and Knees got the best of Me. I...

Well Last night My pitty Party was on! And no one was invited! I think it all go...

Rosamylio

•13 years ago

5 Replies

Looking for friends/support group near Albany or Kingston NY cwats9@gmail.com

CWats

•13 years ago

1 Reply

Boston doc?

Recently I read a post on here about a doc in Boston who treats Sclero with Chemo. I cannot find the original post and would love to get the name of that...

Recently I read a post on here about a doc in Boston who treats Sclero with Chem...

CWats

•13 years ago

2 Replies

There are many Types of Autoimmune.

Autoimmune processes can affect the body in various ways. Autoimmunity can result in the slow destruction of specific types of cells, tissues, organs or...

Autoimmune processes can affect the body in various ways. Autoimmunity can resul...

Papeena

•13 years ago

4 Replies

Does anyone use walk-in baths and if so would you recommend them?

uknlv

•13 years ago

3 Replies

Now what?

It's been a tiring and disheartening week. The symptoms are coming back in spades and on top of it, I have this awful itching that just comes on and...

It's been a tiring and disheartening week. The symptoms are coming back in spade...

SheriFrost

•13 years ago

4 Replies

Feeling like nobody cares?

I recently had a rather large argument with my boyfriend, as he told me that I talk about my Scleroderma and Cyclophosphamide treament too much and it 'tires'...

I recently had a rather large argument with my boyfriend, as he told me that I t...

AshtonRains

•13 years ago

24 Replies

Does anyone have problem with itching/hives with their scleroderma?

jbergs

•13 years ago

8 Replies

Moving in cement

Moving in cement. That's what I call it when I have days when it's difficult to move. Today was a cement day. I think it was exacerbated by the winter storm...

Moving in cement. That's what I call it when I have days when it's difficult to...

GatsbyGirl

•13 years ago

3 Replies

Happy to find this blog.

I just wanted to start out by saying that I am happy to find a group of people who share some of what I've been living with, because there are times when I...

I just wanted to start out by saying that I am happy to find a group of people w...

sgbee

•13 years ago

8 Replies

Has anyone tried laser or led light therepy for the aching?

pcokfarm

•13 years ago

3 Replies

Autoimmune Family Connection.

About 20 percent of our population seems to have a genetic or inherited factor that increases their chances of developing an autoimmune disease. Several genes...

About 20 percent of our population seems to have a genetic or inherited factor t...

Papeena

•13 years ago

1 Reply

Is there a link between Raynaud and Milk?

My son has eczema and we found out it was caused by a milk intolerance. As I also had eczema as a child and dandruft as an adult I decided to stop using dairy...

My son has eczema and we found out it was caused by a milk intolerance. As I als...

goudvis

•13 years ago

3 Replies

Mouth pain

My E.N.T. believe it or not told me to go to the Mayo clinic sight and check out "burning mouth syndrome". He also told me about the Biotene product line the...

My E.N.T. believe it or not told me to go to the Mayo clinic sight and check out...

cher

•13 years ago

5 Replies

Scleroderma & Raynaud's

I was diagnosed with severe Raynauds several years ago and was diagnosed with schleroderma about 2 years ago. The scleroderma hit my internal organs more...

I was diagnosed with severe Raynauds several years ago and was diagnosed with sc...

Legna

•13 years ago

12 Replies

What Causes Autoimmunity??

Scientists do not yet fully understand the immune system and what causes the body to produce an immune response to itself. However, we do know that there are a...

Scientists do not yet fully understand the immune system and what causes the bod...

Papeena

•13 years ago

3 Replies

Has anyone had experience treating or curing bowel immotiility or constipation due to limited scleroderma?

Jill3

•13 years ago

9 Replies

CRS of CREST - Not a happy combination

Raynauds has been challenging for the past several years, but I've learned to live with it, through gloves and heating pads. =) However, this past summer the...

Raynauds has been challenging for the past several years, but I've learned to li...

flickchick777

•13 years ago

6 Replies

My 3yr old son is showing signs of Raynaud's.

I have had scleroderma for 7 yrs, and was only properly diagnosed with it 3 yrs ago. About the time my youngest son was born. I am a single mother of two...

I have had scleroderma for 7 yrs, and was only properly diagnosed with it 3 yrs ...

Tiengie

•13 years ago

6 Replies

hopeful

HIya had my toenail removed for the fifth time last week, hoping it works this time. I was told the previous times times that i had it done that an old...

HIya had my toenail removed for the fifth time last week, hoping it works this t...

bookworm

•13 years ago

2 Replies

Has anyone tried Rituxan Infusions?

NoWaySclero

•13 years ago

3 Replies

When the red spots appear on the lips an inside the mouth, are they painful? Is it difficult to eat If so what can you use to get relief?

pammc

•13 years ago

9 Replies

Posts - Scleroderma & Raynaud's UK (SRUK) | HealthUnlocked

Scleroderma & Raynaud's UK (SRUK)

All posts for November 2011

For you my friend.....

Organization of Support Group in Southern Middle Tennessee

Raynaud'sDefinition By Mayo Clinic staff

I was wondering how many men we have on this site with Raynauds, Scleraderma or other autoimmune diagnosises. It's nice to have a man here.

Has anyone experienced their toe nails going black in a matter of day's? Is this to do with Raynaud's or Scleroderma? x

I am looking for advice on my 10yr old sons Raynauds.

Posted by Loopy-loo

can anyone help me understand about scleroderma?

Had a Bad Night!

Looking for friends/support group near Albany or Kingston NY cwats9@gmail.com

Boston doc?

There are many Types of Autoimmune.

Does anyone use walk-in baths and if so would you recommend them?

Now what?

Feeling like nobody cares?

Does anyone have problem with itching/hives with their scleroderma?

Moving in cement

Happy to find this blog.

Has anyone tried laser or led light therepy for the aching?

Autoimmune Family Connection.

Is there a link between Raynaud and Milk?

Mouth pain

Scleroderma & Raynaud's

What Causes Autoimmunity??

Has anyone had experience treating or curing bowel immotiility or constipation due to limited scleroderma?

CRS of CREST - Not a happy combination

My 3yr old son is showing signs of Raynaud's.

hopeful

Has anyone tried Rituxan Infusions?

When the red spots appear on the lips an inside the mouth, are they painful? Is it difficult to eat If so what can you use to get relief?

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