Raynauds has been challenging for the past several years, but I've learned to live with it, through gloves and heating pads. =) However, this past summer the R of CREST has been joined with the C-Calcinosis and the S-Sclerodactyly. The swelling stiffness of my hands, joined with calcium deposits growing on my fingers has made daily living a chore. Mornings are the worst. My hands are stiff and sore and don't want to work. (I'm not a morning person in general, so this makes it even more challenging =/ ). Throughout the day, I frequently wear band-aids to lesson the pain of bumping my fingers from normal usage. The fingertips are also sore, and I can't even open up a can of soda. =/ Some days are better than others, but it is quite frustrating at times.
I live in Japan, and so the medicine here is a bit different, and so far my doctor says there is not much to be done. The only medicine she said might work, has negative side effects with the lungs. Since I was treated for pulmonary fibrosis a couple years ago (due to Scleroderma), she said that would not be a good idea. An interesting decision, which do you need more, your lungs or your hands? =) So there is not much to be done. The Japanese have a phrase, "shoganai" which means it cannot be helped. That is where I am at. =/
I am thankful, though, that although might hands are quite troublesome, my situation has been and could be worse. I keep thinking, it's just my hands. Yes I use them a lot, but they aren't as vital to life as, say my lungs. =) So I do try to remind myself, that this will be ok. Just super annoying, but only slightly debilitating.
Just wanted to share...If you have any thoughts or suggestions, I would be greatly appreciative!