I'm taking mycophenolate and have enl... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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I'm taking mycophenolate and have enlarged lymph nodes in my stomach, that need a biopsy anyone else had similar problem?

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BevMyers
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JulieB

Hi Bev, my daughter was diagnoised at the age of 4yrs with Scleroderma, she is now 20yrs. She has been on numerous drugs in the past (D-Penicillamin, Methotrexate, Cyclosporin, then they tried combining Methotrexate and Cyclosporin). Last year they tried Mycophenolate but after 3mths she started having bad side effects with it. Now we have been told there are no more drugs they can try, it is so cruel. x