Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,032 members • 39,714 posts

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Cold face

Hi - back up to 40 pred and getting a symptom I had when I was first diagnosed with GCA a year ago. My face is very cold. It isn't painful, just a bit weird...

Hi - back up to 40 pred and getting a symptom I had when I was first diagnosed w...

Gladys911

•24 minutes ago

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struggling with negative thoughts

Hi everyone, I hope you are all doing okay. I need to ask the advice of the forum again, and l hope some of you kind folk can help me. I have been taking...

Hi everyone, I hope you are all doing okay. I need to ask the advice of the for...

Legsandmore

•2 hours ago

3 Replies

Norwich PMRGCA. Is anyone interested in joining a local support group in Norwich, with the assistance of PMRGCAUK?

I am suggesting a face2face support group in Norwich. I have been in touch with PMRGCAUK. The administrator has sent some pr material for my gp surgery....

I am suggesting a face2face support group in Norwich. I have been in touch with ...

Palgeo

•3 hours ago

2 Replies

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Flare on 15mgs prednisolone?Swollen Eye rears it's ugly eye ball.

Last 2 days not feeling so well, woke with the symptoms which were present prior to the 'swollen eye (uveitis) in the other eye, as well as headache, face ache...

Last 2 days not feeling so well, woke with the symptoms which were present prior...

Fatsiajaponica

•3 hours ago

6 Replies

A learning curve

Crumbs this thing is unforgiving isn't it?😥A three hour hot and busy car journey was no picnic did not leave me at my best. When we got to our daughter's I...

Crumbs this thing is unforgiving isn't it?😥A three hour hot and busy car journe...

LittleJane

•3 hours ago

5 Replies

alcohol!

I am going to Sicily beginning of October .. … hooray I have got over Covid and am hoping blood test done today shows all ok. Has anyone had the odd glass of...

I am going to Sicily beginning of October .. … hooray I have got over Covid and ...

Havanahula

•4 hours ago

11 Replies

Paulsnow

I have been on pred for 19 months. Have reduced (instructed by rheumatologist) from 10 to 9 to 8 in the last month. I have been taking 8x2.5gr methotrexate for...

I have been on pred for 19 months. Have reduced (instructed by rheumatologist) f...

Andrea2727

•5 hours ago

3 Replies

Lightbulb moment

So PMR is triggered by inflammation at cellular level, yes? After I had Covid at the start of the year it took me 6 months to recover. The doctor has started...

So PMR is triggered by inflammation at cellular level, yes? After I had Covid at...

LittleJane

•6 hours ago

4 Replies

Time of day for steroids

Hello all I started taking methylprednisolone almost 3 years ago for PMR. In order to control weight gain I implemented intermittent fasting and skipped...

Hello all I started taking methylprednisolone almost 3 years ago for PMR. In o...

Italybound62

•9 hours ago

2 Replies

Trochanteric bursitis and hip pain

I should add to my post bloods show esr 31 and cpr 37.

811Yoga

•9 hours ago

1 Reply

Trochanteric bursitis and front groin pain

I was diagnosed May 2023 and have previously posted that I saw a rheumy privately and last time July 2024 he diagnosed pain as age related. I am 72. I...

I was diagnosed May 2023 and have previously posted that I saw a rheumy privatel...

811Yoga

•9 hours ago

10 Replies

Bye for now

We are off soon for our holiday 🚗 If I can get a signal I will try to keep in touch but won't be online much for the next two weeks. Take care everyone and...

We are off soon for our holiday 🚗 If I can get a signal I will try to keep in t...

LittleJane

•10 hours ago

8 Replies

Steroids and Osteoporosis

2 Queries - can anyone point me towards the science of how steroids contributes towards osteoporosis ? And the 2nd is , are there any studies re use of...

2 Queries - can anyone point me towards the science of how steroids contributes ...

FiddleFern

•11 hours ago

1 Reply

Methotrexate before & after Covid Booster ??

I have not been able to find the Post where this was previously discussed. I take Methotrexate on Wednesdays and have Covid Booster plus Flu Jab booked for...

I have not been able to find the Post where this was previously discussed. I ta...

Golf-1

•12 hours ago

3 Replies

Travel and Flares

I must express my appreciation for this site and the wisdom imparted daily. Thank you! PMR has been with me since 2019 though it hasn't affected my life too...

I must express my appreciation for this site and the wisdom imparted daily. Than...

Harwen

•13 hours ago

21 Replies

Possibly not PMR

my husband was diagnosed with PMR in May after weeks of pain. GP diagnosed PMR and gave normal treatment of steriods which helped initially. He has been...

my husband was diagnosed with PMR in May after weeks of pain. GP diagnosed PMR ...

trafar

•13 hours ago

1 Reply

Need your opinions

I am currently taking 2 mg of Pred with breakfast (about 8 am) and 5 mg at bedtime (10 pm). I have been on the total of 7 mg a day since the first of August,...

I am currently taking 2 mg of Pred with breakfast (about 8 am) and 5 mg at bedti...

Aqua47

•23 hours ago

10 Replies

steroid injections and effect on adrenal

hi, hoping you can help me. I usually get an annual guided steroid injection in the nerves between two of my spinal vertebrates that are compressed. My...

hi, hoping you can help me. I usually get an annual guided steroid injection in ...

Janetknit

•1 day ago

5 Replies

PMR and Spinal Stenosis

I was diagnosed with PMR in March and have tapered from 15mg to 8mg of Prednisolone. However, since then I have been diagnosed with multilevel spine...

I was diagnosed with PMR in March and have tapered from 15mg to 8mg of Prednisol...

Foodie24

•1 day ago

9 Replies

Cognitive function

Another question please, I am getting to know this enemy that has moved in on me.Does PMR or Prednisolone affect cognitive function? I was never the sharpest...

Another question please, I am getting to know this enemy that has moved in on me...

LittleJane

•1 day ago

34 Replies

Blood sugar levels

I've read that Prednisolone can spike blood sugar levels. I have a strong family history of late onset type 2 diabetes through the generations. I have ordered...

I've read that Prednisolone can spike blood sugar levels. I have a strong family...

LittleJane

•1 day ago

22 Replies

Tapering probably not working but not sure what to do

Hi - I’d be most grateful for some advice as so much has happened, it is hard to tell what to do next. I was struck by what turned out to be PMR literally...

Hi - I’d be most grateful for some advice as so much has happened, it is hard to...

tiredbutoptimistic

•2 days ago

32 Replies

Does having low or no blood markers affect the PMR journey?

I had typical PMR symptoms for 8 long months…. came on overnight out of the blue. Lost about 12lbs in weight, couldn’t do my hair, crawled up the stairs,...

I had typical PMR symptoms for 8 long months…. came on overnight out of the blue...

Phoebenooby

•2 days ago

9 Replies

Help please

I realise that you cannot give medical advice and I wouldn't ask for it (I intend to contact my GP tomorrow) but I would welcome any input. I was advised to...

I realise that you cannot give medical advice and I wouldn't ask for it (I inten...

LittleJane

•2 days ago

39 Replies

The Prednisone Taper - 1 mg per month

Hi there , I am on presently taking 9 mg of Prednisone while using 1 mm of Methotrexate each week . Is there anyone else who is or has been on this regiment...

Hi there , I am on presently taking 9 mg of Prednisone while using 1 mm of Met...

Paulsnow

•2 days ago

13 Replies

Pain at night

For a little while now Ive been experiencing quite strong pain in my joints and muscles (especially arms) when I wake in the night. These feel similar to PMR...

For a little while now Ive been experiencing quite strong pain in my joints and ...

jaycee444

•2 days ago

6 Replies

leg pain

I had managed to reduce to 10mg prednisolone but legs have once again become very painful and it’s very difficult to walk at all I went back up to 12 mg I week...

I had managed to reduce to 10mg prednisolone but legs have once again become ver...

Omg3

•2 days ago

7 Replies

Niggly pain in neck

I am down to 3mg of Pred this week having followed DL's 5 week slow taper since last September with just a few bumps on the way. I have now had a slight pain...

I am down to 3mg of Pred this week having followed DL's 5 week slow taper since ...

Golf-1

•2 days ago

16 Replies

Taking pred in the evening

hi - I am considering taking my pred in the evening. Now about 6 years into PMR- been flaring regularly after the first couple of years. Can’t seen to shake...

hi - I am considering taking my pred in the evening. Now about 6 years into PMR-...

CarnationLily

•2 days ago

2 Replies

Can you have too much cortisol?

In 3 months I have tapered using methods on here in 0.5mg drops from 8mg to 7mg. Have felt like a bouncing ball, going from fatigue to low mood to bouts of...

In 3 months I have tapered using methods on here in 0.5mg drops from 8mg to 7mg....

EnyaBlue

•2 days ago

14 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Cold face

struggling with negative thoughts

Norwich PMRGCA. Is anyone interested in joining a local support group in Norwich, with the assistance of PMRGCAUK?

Flare on 15mgs prednisolone?Swollen Eye rears it's ugly eye ball.

A learning curve

alcohol!

Paulsnow

Lightbulb moment

Time of day for steroids

Trochanteric bursitis and hip pain

Trochanteric bursitis and front groin pain

Bye for now

Steroids and Osteoporosis

Methotrexate before & after Covid Booster ??

Travel and Flares

Possibly not PMR

Need your opinions

steroid injections and effect on adrenal

PMR and Spinal Stenosis

Cognitive function

Blood sugar levels

Tapering probably not working but not sure what to do

Does having low or no blood markers affect the PMR journey?

Help please

The Prednisone Taper - 1 mg per month

Pain at night

leg pain

Niggly pain in neck

Taking pred in the evening

Can you have too much cortisol?

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