Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,029 members • 39,696 posts

Sort posts by:

Need your opinions

I am currently taking 2 mg of Pred with breakfast (about 8 am) and 5 mg at bedtime (10 pm). I have been on the total of 7 mg a day since the first of August,...

I am currently taking 2 mg of Pred with breakfast (about 8 am) and 5 mg at bedti...

Aqua47

•11 minutes ago

Be the first to reply

steroid injections and effect on adrenal

hi, hoping you can help me. I usually get an annual guided steroid injection in the nerves between two of my spinal vertebrates that are compressed. My...

hi, hoping you can help me. I usually get an annual guided steroid injection in ...

Janetknit

•8 hours ago

5 Replies

PMR and Spinal Stenosis

I was diagnosed with PMR in March and have tapered from 15mg to 8mg of Prednisolone. However, since then I have been diagnosed with multilevel spine...

I was diagnosed with PMR in March and have tapered from 15mg to 8mg of Prednisol...

Foodie24

•9 hours ago

3 Replies

Want to take advantage of all our features? Just log in!

Cognitive function

Another question please, I am getting to know this enemy that has moved in on me.Does PMR or Prednisolone affect cognitive function? I was never the sharpest...

Another question please, I am getting to know this enemy that has moved in on me...

LittleJane

•10 hours ago

7 Replies

Blood sugar levels

I've read that Prednisolone can spike blood sugar levels. I have a strong family history of late onset type 2 diabetes through the generations. I have ordered...

I've read that Prednisolone can spike blood sugar levels. I have a strong family...

LittleJane

•10 hours ago

10 Replies

Tapering probably not working but not sure what to do

Hi - I’d be most grateful for some advice as so much has happened, it is hard to tell what to do next. I was struck by what turned out to be PMR literally...

Hi - I’d be most grateful for some advice as so much has happened, it is hard to...

tiredbutoptimistic

•22 hours ago

21 Replies

Does having low or no blood markers affect the PMR journey?

I had typical PMR symptoms for 8 long months…. came on overnight out of the blue. Lost about 12lbs in weight, couldn’t do my hair, crawled up the stairs,...

I had typical PMR symptoms for 8 long months…. came on overnight out of the blue...

Phoebenooby

•23 hours ago

9 Replies

Help please

I realise that you cannot give medical advice and I wouldn't ask for it (I intend to contact my GP tomorrow) but I would welcome any input. I was advised to...

I realise that you cannot give medical advice and I wouldn't ask for it (I inten...

LittleJane

•1 day ago

39 Replies

The Prednisone Taper - 1 mg per month

Hi there , I am on presently taking 9 mg of Prednisone while using 1 mm of Methotrexate each week . Is there anyone else who is or has been on this regiment...

Hi there , I am on presently taking 9 mg of Prednisone while using 1 mm of Met...

Paulsnow

•1 day ago

13 Replies

Pain at night

For a little while now Ive been experiencing quite strong pain in my joints and muscles (especially arms) when I wake in the night. These feel similar to PMR...

For a little while now Ive been experiencing quite strong pain in my joints and ...

jaycee444

•1 day ago

6 Replies

leg pain

I had managed to reduce to 10mg prednisolone but legs have once again become very painful and it’s very difficult to walk at all I went back up to 12 mg I week...

I had managed to reduce to 10mg prednisolone but legs have once again become ver...

Omg3

•1 day ago

7 Replies

Niggly pain in neck

I am down to 3mg of Pred this week having followed DL's 5 week slow taper since last September with just a few bumps on the way. I have now had a slight pain...

I am down to 3mg of Pred this week having followed DL's 5 week slow taper since ...

Golf-1

•1 day ago

10 Replies

Taking pred in the evening

hi - I am considering taking my pred in the evening. Now about 6 years into PMR- been flaring regularly after the first couple of years. Can’t seen to shake...

hi - I am considering taking my pred in the evening. Now about 6 years into PMR-...

CarnationLily

•2 days ago

2 Replies

Can you have too much cortisol?

In 3 months I have tapered using methods on here in 0.5mg drops from 8mg to 7mg. Have felt like a bouncing ball, going from fatigue to low mood to bouts of...

In 3 months I have tapered using methods on here in 0.5mg drops from 8mg to 7mg....

EnyaBlue

•2 days ago

14 Replies

Pred taper….

I am looking for the taper suggestion many refer to. I believe it is DL written. I cannot find it. Thanks for help!

I am looking for the taper suggestion many refer to. I believe it is DL written...

Raspberryripple24

•2 days ago

1 Reply

Thoughts on alternate day dosage

I have PMR since 2018 but since have developed Vasculitis. As well as a 6-monthly infusion of Rituzimab I have been on a reducing regime of Prednisolone to 5mg...

I have PMR since 2018 but since have developed Vasculitis. As well as a 6-monthl...

HamishPMR

•2 days ago

15 Replies

GCA rheumatologist visit today.....60mg it is~!

I'm just getting to the computer at 5:30 PM CST. After reviewing the information from the neuro-ophthalmologist, the rheumatologist said I would have to stay...

I'm just getting to the computer at 5:30 PM CST. After reviewing the informati...

Grammy80

•2 days ago

34 Replies

Thank you all.

I want to thank all members who have posted and replied to my posts. I have been reassured and informed about this journey that is PMR. It is no longer a scary...

I want to thank all members who have posted and replied to my posts. I have been...

LittleJane

•2 days ago

10 Replies

Reducing pred

Hello everyone I was diagnosed with PMR 4 years ago and each time I reduce I get another flare up. I am trying to reduce to zero as advised by my GP. I...

Hello everyone I was diagnosed with PMR 4 years ago and each time I reduce I ge...

Calypsocat

•2 days ago

19 Replies

GCA taper

I’m currently on Actemra injection once a week after 1 1/2 years. I haven’t had any flares and my assistance will run out. I would like to get off of it...

I’m currently on Actemra injection once a week after 1 1/2 years. I haven’t had...

LRevell

•2 days ago

7 Replies

wrist pain flare

I started on 20 mg and had tapered to 9 mg. Right before I was to go to 8mg I started waking up to my wrists being sore as if I’d sprained them. By noon they...

I started on 20 mg and had tapered to 9 mg. Right before I was to go to 8mg I s...

Beinkc

•2 days ago

21 Replies

Is this the end or …?

I’ve been reducing steroids for many months and am now taking one mg every fifth day. I feel ok. I also had a molar extracted a week ago and despite my fears...

I’ve been reducing steroids for many months and am now taking one mg every fifth...

Ana-16

•2 days ago

50 Replies

Do I need to retake Prednisone after vomiting?

So about 20 minutes after taking my prednisone with food, I threw up, mainly phlegm and mucus. Do I need to retake the prednisone? Sorry for the gross...

So about 20 minutes after taking my prednisone with food, I threw up, mainly phl...

ILbbHpmr

•2 days ago

6 Replies

Adrenal fatigue on lower prednisone

Is it ok to take something to try and activate the adrenals . I thought the prednisone was keeping adrenal function lower on purpose? My fatigue sets in around...

Is it ok to take something to try and activate the adrenals . I thought the pred...

Linny3

•2 days ago

11 Replies

Another question

I have read that Prednisolone should not be taken with laxatives due to effects of lowering potassium levels? I take Movicol for chronic constipation due to...

I have read that Prednisolone should not be taken with laxatives due to effects ...

LittleJane

•2 days ago

17 Replies

Spoon Theory

I receive the magazine Inspire from Versus Arthritis and there is an article about Spoon Theory in the Autumn issue. When I read it I thought I remembered...

I receive the magazine Inspire from Versus Arthritis and there is an article abo...

Baner

•2 days ago

6 Replies

blood tests

hi, i have been on prednisolone for just over 3 1/2 months, all going well so far, my GP sends a 6 week prescription for each dose reduction and texts to check...

hi, i have been on prednisolone for just over 3 1/2 months, all going well so fa...

Excelsior80

•2 days ago

7 Replies

Grip Strength

Hi - started at 20 after diagnosis in January of 24 and my reductions were as follows - each after 4 weeks and a rheumy visit 20 -15 -12.5 -10 - 7.5 -6.25 -5–...

Hi - started at 20 after diagnosis in January of 24 and my reductions were as fo...

NCStateLine

•2 days ago

4 Replies

PMR, Prednisolone and diet

I have read a bit about the effect of Prednisolone on bone density and also on blood sugar. Can anyone give me a heads up on this as I have a family history of...

I have read a bit about the effect of Prednisolone on bone density and also on b...

LittleJane

•2 days ago

10 Replies

covid

My Gp doesn’t seem to know the protocol now for testing positive for Covid. Do I up my steroids or do I ask for an anti viral? It seems a bit vague now. Any...

My Gp doesn’t seem to know the protocol now for testing positive for Covid. Do I...

lennysmummy

•2 days ago

3 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Need your opinions

steroid injections and effect on adrenal

PMR and Spinal Stenosis

Cognitive function

Blood sugar levels

Tapering probably not working but not sure what to do

Does having low or no blood markers affect the PMR journey?

Help please

The Prednisone Taper - 1 mg per month

Pain at night

leg pain

Niggly pain in neck

Taking pred in the evening

Can you have too much cortisol?

Pred taper….

Thoughts on alternate day dosage

GCA rheumatologist visit today.....60mg it is~!

Thank you all.

Reducing pred

GCA taper

wrist pain flare

Is this the end or …?

Do I need to retake Prednisone after vomiting?

Adrenal fatigue on lower prednisone

Another question

Spoon Theory

blood tests

Grip Strength

PMR, Prednisolone and diet

covid

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive