Niggly pain in neck: I am down to 3mg of Pred this... - PMRGCAuk

PMRGCAuk

21,317 members40,425 posts

Niggly pain in neck

Golf-1 profile image
17 Replies

I am down to 3mg of Pred this week having followed DL's 5 week slow taper since last September with just a few bumps on the way.

I have now had a slight pain on both sides of my neck since Sunday, it may be phsycological as that was the start of week 5 when I reduced to 3mg for the next 7 days, but i think it is real.

How long do I let this go before deciding it is the start of a flare? and if it is, and I am recommended to increase my Pred, by how much?

I have previusly read go up by 5mg, does that still apply at such a low dose? as that means nearly double what I am currently taking.

I did not notice the pain last week??

Thanks in advance

Written by
Golf-1 profile image
Golf-1
To view profiles and participate in discussions please or .
17 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

A few bumps along the road is always a tad worrying.

Would say you are a bit too low, and even with a slow taper that's not always noticeable until you get fully to lower dose.

Two options really - go back to 2nd or 3rd week of taper and repeat, or bite the bullet and treat as flare..and yes adding 5mg is recommended no matter what dose you are on. It's only for a week or so, and then you drop back down to just above dose that caused issue - so I'd suggest back to 3.5mg in your case.

Maybe consider the 7 week taper in future - gives a bit more leeway. Or stick with 5 week plan, but repeat each week.

This is flare protocol -

healthunlocked.com/pmrgcauk...

PMRpro profile image
PMRproAmbassador

The adding 5mg is just to be sure you are clearing out accumulated inflammation to get a clear run at things again. It is only for a short time and then you drop straight back to where you were last good, it really isn't that daunting and there is no longwinded tapering.

If you have been having bumps during a taper, that suggests you are on the borderline of the dose you need anyway so when you get that little bit lower it isn't too surprising if it is too low.

Is there any chance you have strained your neck? It sounds like sternocleidomastoid muscle problems - were they part of your PMR originally?

SnazzyD has a brilliant video - which I can never find!!!

Otherwise I agree with DL.

Golf-1 profile image
Golf-1 in reply toPMRpro

Thank you both, I am not aware of doing anything to cause the pain so back to 8mg for now then reassess as I reduce again

Golf-1 profile image
Golf-1 in reply toPMRpro

Back up to 8mg and after 12 hours already feeling better

were they part of your PMR originally - yes I had same pains from day one, as well as shoulders , lower back and thighs

I have looked at the 2 videos and they pretty much highlight my pain area so trying the stretching along with the 8mg of Pred

PMRpro profile image
PMRproAmbassador in reply toGolf-1

Somewhere you overshot - the question is WHERE?

Golf-1 profile image
Golf-1 in reply toPMRpro

Possibly chopping down a couple of trees last week !! will I ever learn

PMRpro profile image
PMRproAmbassador in reply toGolf-1

Ah well - I rest my case ...

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toGolf-1

What!!

Golf-1 profile image
Golf-1 in reply toDorsetLady

After 2 1/2 years of almost no activity due to this PMR, I allowed myself to think that reaching 3 1/2 - 3.0mg of Pred meant I was on top of it and could catch up with some of my jobs in the garden. I feel I need to get some exercise, tree felling was obviously a step too far - it is now back to bike riding and a bit of walking for the next 6 months

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toGolf-1

Pruning yes…felling.. a step too far! 😂🤣

Golf-1 profile image
Golf-1 in reply toDorsetLady

Boys with toys - I recently bought a new chainsaw and thought I would test it !!!!!! lesson learnt

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply toGolf-1

Tell me about it…

Sure you are, but careful with chain saws -can do a lot of damage -and not just sore shoulders.

Had to rush late hubby -an experienced woodman to local hospital one Saturday afternoon when a bough went rogue and wrenched said chainsaw out of his hands and into his knee! Luckily to kneecap prevented it from being lot worse…

Golf-1 profile image
Golf-1 in reply toDorsetLady

Thank you for your concern.

Having been around them most of my working life, and even in retirement, I am very respectful of power tools of any kind and realise that however careful you are, sometimes things can go wrong. Fortunately for me, nothing too serious so far!!!

PMRpro profile image
PMRproAmbassador in reply toGolf-1

Slipped your mind did it??????

Golf-1 profile image
Golf-1 in reply toPMRpro

Not really, just took a chance and paid the price !!!!!!

sidra1968 profile image
sidra1968 in reply toGolf-1

This kind of stuff gets me almost every time, usually a 2 day delay, too.

SnazzyD profile image
SnazzyD

Here are some videos about neck pain. It’s worth keeping tabs on one’s neck condition and posture especially with muscles that aren’t at their best, deconditioning and the Pred effect. Not sure if these are the videos PMRPro means as I have a few.

Anatomy video that shows why we get the pain where we do

youtu.be/DCOuG3bs2f0?featur...

This one is more about exercises for the sternokleidomastoid muscle. His video on cervicogenic dizziness covers the other neck muscles that can also go wrong.

youtu.be/_BGczs_axTg?featur...

Not what you're looking for?

You may also like...

Pain in Neck

I am 2 ½ years into PMR, diagnosed November 2020. I have been suffering with serve neck pain...

A pain in the neck!

Having been on 4mg Pred for over two years (and having had an lecture from my Rheumy, mentioned in...

Nagging neck pain returns

Thank you for the invaluable advice and support you give on this forum. I have been dipping in and...
Moon_beam profile image

Pain in jaw and neck

I was ‘diagnosed’ with PMR in June this year, although have never seen a GP face to face..just 2...
Reedmaker profile image

neck pain polymyalgia

Hi, I'm on 5mg pred, been on high doses reducing over 5 years! Does anyone on here get severe pain...
heli13 profile image

Moderation team

SophieMB profile image
SophieMBPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.