Crumbs this thing is unforgiving isn't it?😥A three hour hot and busy car journey was no picnic did not leave me at my best. When we got to our daughter's I had to go to bed instead of playing with our grandson in the garden 😞
More travelling tomorrow 🚗
I think I'm starting to realise what life with PMR is going to mean 😒
I am glad to have found this forum for respite and support 🫂
Just having a pity party, feeling emotional.
Early days for you… so yes it is a bit of a shock how previously simple things can upset the applecart.
You will learn to deal with it, so don’t be too disheartened - and there will be other days for playtime with grandson.
Old cliche, but take each day as it comes… and travelling can be very tiring for all…
You were right to go to bed. You have already learned a really important lesson-‘Listen to your body’. …proud of you 🏆. There will be other opportunities to play with your grandson which you will both enjoy if you’re not worn out.
Well done - you didn't fall into the trap of insisting you carry on as normal! You do learn how to manage it - I won't say better but differently. I think frequent stops on the way help. I refuse to say what time I will arrive - that takes away the pressure if there are any delays. Hope tomorrow is better.
That car ride would have done me in.....be kind to yourself and try to 'do when you feel like doing.' I recall the beginning of my journey and I was so overwhelmed and would get down. As your body becomed more tolerant of meds and used to its new limits....the days will become easier, honest. I'll bet a good cry would help....the forum helped me do that a few weeks back and afterward, I felt so much better. I guess I was looking for permission.💞
Thank you Grammy, you know just what to say when I need to hear it x
Join a local Support Group if you can. Meet others who really know what you are talking about.
Yes it is a learning curve, a realisation, things will never be the same but a very decent life is still there. I look back to the days that I could hardly put a shirt on or tie my shoe laces, 9 months ago. Now I can function pretty well and I can swim and walk reasonably well at I estimate to least a 50% level of what I was doing well before my PMR diagnosis. I do not know how much better I can get but hope to push that to 70% 😀.
PMR and learning about it!
Just a bit sad
time to get real!!, the goal is learning to live with PMR
Learning by trial & error
Medical Students learning about GCA
