Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

21,034 members • 39,726 posts

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GCA or neck

Good evening all I am in Majorca at the moment, I have just had a 4night girlfriends break in Palma which was fun but very full on, lots of walking, late...

Good evening all I am in Majorca at the moment, I have just had a 4night girlfr...

Mumdadlove

•17 minutes ago

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2nd time around

I have just been diagnosed with PMR for the second time I came off Pred in February but have never felt comfortable. I also have had a carpal tunnel...

I have just been diagnosed with PMR for the second time I came off Pred in Febr...

Suffererc

•2 hours ago

2 Replies

GCA and MRI scan

After recurring UTIs and traces of blood in urine, a cystoscopy, an ultrasound on bladder and kidneys, I had an MRI scan yesterday. My last experience of the...

After recurring UTIs and traces of blood in urine, a cystoscopy, an ultrasound o...

random901

•2 hours ago

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10mg prednisolone seems to be the way forward - for now

Had long discussion with GP this morning, weighing up all recent and previous issues. There is the matter of the fact that I suffer from sciatica as well as...

Had long discussion with GP this morning, weighing up all recent and previous is...

gillsky8

•5 hours ago

5 Replies

Low dose of prednisolone

On August 20th I reduced my prednisolone from 2mg to 1mg. Around September 16th had bad pain in my back and joints. Bending my knees is very painful....

On August 20th I reduced my prednisolone from 2mg to 1mg. Around September 16th...

bluepuddy1

•8 hours ago

11 Replies

Increasing dose

I contacted the surgery earlier because I am not doing too well. My doctor advised me to return to my starting dose of 15mg while I am away from my normal...

I contacted the surgery earlier because I am not doing too well. My doctor advis...

LittleJane

•9 hours ago

5 Replies

Covid? Adrenals? When to take Pred if possible vomiting

hello everyone. I feel awful. Started with sore throat yesterday, been up most of night with nausea but haven’t brought much up. Very dry. If it’s Covid...

hello everyone. I feel awful. Started with sore throat yesterday, been up mos...

Scaredofpred

•11 hours ago

6 Replies

New to this and lots of questions!

Hello everyone I was diagnosed with PMR in late June this year. I went to the Dr's because I was aching for no reason and about to go on holiday. Saw a...

Hello everyone I was diagnosed with PMR in late June this year. I went to the ...

CJDLSR

•12 hours ago

10 Replies

adrenal stuttering

hi everyone, been reducing my pref by 1/2 a week , and going great .currently at 7.5 mg I had what was supposed to be a relaxing oil massage , that ended up...

hi everyone, been reducing my pref by 1/2 a week , and going great .currently at...

Elvied

•13 hours ago

7 Replies

PMR or Rheumatoid Arthritis?

I have been treated for PMR and been on prednisone since July 2021. I have had 13 infusions of Actemra over the past year. I have had many ups and downs,...

I have been treated for PMR and been on prednisone since July 2021. I have had...

A77bruin

•19 hours ago

2 Replies

An Update and General Moan

It's some time since I posted. I've been silent and friends who know me would say that's a blessing. You are a good bunch on here so it's about time I chimed...

It's some time since I posted. I've been silent and friends who know me would sa...

cycli

•22 hours ago

17 Replies

Finally, weaning off prednisone after 15 years.

I have not posted in a while. About 5 years ago my blood pressure went up (180/110). I was put on over 10 different blood pressure meds. Nothing took it...

I have not posted in a while. About 5 years ago my blood pressure went up (180/...

phebamom

•22 hours ago

6 Replies

Cold face

Hi - back up to 40 pred and getting a symptom I had when I was first diagnosed with GCA a year ago. My face is very cold. It isn't painful, just a bit weird...

Hi - back up to 40 pred and getting a symptom I had when I was first diagnosed w...

Gladys911

•23 hours ago

5 Replies

struggling with negative thoughts

Hi everyone, I hope you are all doing okay. I need to ask the advice of the forum again, and l hope some of you kind folk can help me. I have been taking...

Hi everyone, I hope you are all doing okay. I need to ask the advice of the for...

Legsandmore

•24 hours ago

12 Replies

Norwich PMRGCA. Is anyone interested in joining a local support group in Norwich, with the assistance of PMRGCAUK?

I am suggesting a face2face support group in Norwich. I have been in touch with PMRGCAUK. The administrator has sent some pr material for my gp surgery....

I am suggesting a face2face support group in Norwich. I have been in touch with ...

Palgeo

•1 day ago

7 Replies

Flare on 15mgs prednisolone?Swollen Eye rears it's ugly eye ball.

Last 2 days not feeling so well, woke with the symptoms which were present prior to the 'swollen eye (uveitis) in the other eye, as well as headache, face ache...

Last 2 days not feeling so well, woke with the symptoms which were present prior...

Fatsiajaponica

•1 day ago

17 Replies

A learning curve

Crumbs this thing is unforgiving isn't it?😥A three hour hot and busy car journey was no picnic did not leave me at my best. When we got to our daughter's I...

Crumbs this thing is unforgiving isn't it?😥A three hour hot and busy car journe...

LittleJane

•1 day ago

9 Replies

alcohol!

I am going to Sicily beginning of October .. … hooray I have got over Covid and am hoping blood test done today shows all ok. Has anyone had the odd glass of...

I am going to Sicily beginning of October .. … hooray I have got over Covid and ...

Havanahula

•1 day ago

39 Replies

Paulsnow

I have been on pred for 19 months. Have reduced (instructed by rheumatologist) from 10 to 9 to 8 in the last month. I have been taking 8x2.5gr methotrexate for...

I have been on pred for 19 months. Have reduced (instructed by rheumatologist) f...

Andrea2727

•1 day ago

4 Replies

Lightbulb moment

So PMR is triggered by inflammation at cellular level, yes? After I had Covid at the start of the year it took me 6 months to recover. The doctor has started...

So PMR is triggered by inflammation at cellular level, yes? After I had Covid at...

LittleJane

•1 day ago

11 Replies

Time of day for steroids

Hello all I started taking methylprednisolone almost 3 years ago for PMR. In order to control weight gain I implemented intermittent fasting and skipped...

Hello all I started taking methylprednisolone almost 3 years ago for PMR. In o...

Italybound62

•1 day ago

2 Replies

Trochanteric bursitis and hip pain

I should add to my post bloods show esr 31 and cpr 37.

811Yoga

•1 day ago

1 Reply

Trochanteric bursitis and front groin pain

I was diagnosed May 2023 and have previously posted that I saw a rheumy privately and last time July 2024 he diagnosed pain as age related. I am 72. I...

I was diagnosed May 2023 and have previously posted that I saw a rheumy privatel...

811Yoga

•1 day ago

14 Replies

Bye for now

We are off soon for our holiday 🚗 If I can get a signal I will try to keep in touch but won't be online much for the next two weeks. Take care everyone and...

We are off soon for our holiday 🚗 If I can get a signal I will try to keep in t...

LittleJane

•1 day ago

8 Replies

Steroids and Osteoporosis

2 Queries - can anyone point me towards the science of how steroids contributes towards osteoporosis ? And the 2nd is , are there any studies re use of...

2 Queries - can anyone point me towards the science of how steroids contributes ...

FiddleFern

•1 day ago

2 Replies

Methotrexate before & after Covid Booster ??

I have not been able to find the Post where this was previously discussed. I take Methotrexate on Wednesdays and have Covid Booster plus Flu Jab booked for...

I have not been able to find the Post where this was previously discussed. I ta...

Golf-1

•1 day ago

3 Replies

Travel and Flares

I must express my appreciation for this site and the wisdom imparted daily. Thank you! PMR has been with me since 2019 though it hasn't affected my life too...

I must express my appreciation for this site and the wisdom imparted daily. Than...

Harwen

•1 day ago

21 Replies

Possibly not PMR

my husband was diagnosed with PMR in May after weeks of pain. GP diagnosed PMR and gave normal treatment of steriods which helped initially. He has been...

my husband was diagnosed with PMR in May after weeks of pain. GP diagnosed PMR ...

trafar

•1 day ago

1 Reply

Need your opinions

I am currently taking 2 mg of Pred with breakfast (about 8 am) and 5 mg at bedtime (10 pm). I have been on the total of 7 mg a day since the first of August,...

I am currently taking 2 mg of Pred with breakfast (about 8 am) and 5 mg at bedti...

Aqua47

•2 days ago

10 Replies

steroid injections and effect on adrenal

hi, hoping you can help me. I usually get an annual guided steroid injection in the nerves between two of my spinal vertebrates that are compressed. My...

hi, hoping you can help me. I usually get an annual guided steroid injection in ...

Janetknit

•2 days ago

5 Replies

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Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

GCA or neck

2nd time around

GCA and MRI scan

10mg prednisolone seems to be the way forward - for now

Low dose of prednisolone

Increasing dose

Covid? Adrenals? When to take Pred if possible vomiting

New to this and lots of questions!

adrenal stuttering

PMR or Rheumatoid Arthritis?

An Update and General Moan

Finally, weaning off prednisone after 15 years.

Cold face

struggling with negative thoughts

Norwich PMRGCA. Is anyone interested in joining a local support group in Norwich, with the assistance of PMRGCAUK?

Flare on 15mgs prednisolone?Swollen Eye rears it's ugly eye ball.

A learning curve

alcohol!

Paulsnow

Lightbulb moment

Time of day for steroids

Trochanteric bursitis and hip pain

Trochanteric bursitis and front groin pain

Bye for now

Steroids and Osteoporosis

Methotrexate before & after Covid Booster ??

Travel and Flares

Possibly not PMR

Need your opinions

steroid injections and effect on adrenal

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