Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,342 members • 38,113 posts

Sort posts by:

Heebeejeebies on low pred??

I have been down to 1mg of prednisone since January and toggling back and forth between 1 and 1/2 mg since April. But I feel mentally out of whack. Paranoid....

I have been down to 1mg of prednisone since January and toggling back and forth ...

Greytree

•3 hours ago

17 Replies

PMR cough

I have had PMR for 6 years and on the whole controlled with Leflunomide. Recently I have had a cough for about a month , checked by Gp who didnt feel it was...

I have had PMR for 6 years and on the whole controlled with Leflunomide. Recent...

Ritz02

•4 hours ago

6 Replies

Skipping a dose of Methotrexate

Hi All, I have a question re. Is it ok to skip a dose of Methotrexate for 1 week?I am on 10mgs. Not too many symptoms apart from some cramping a day or so...

Hi All, I have a question re. Is it ok to skip a dose of Methotrexate for 1 week...

lkcreedon

•4 hours ago

6 Replies

Want to take advantage of all our features? Just log in!

Back up to a high steroid dose

Hi everyone, I was diagnosed with PMR in 2018 if i remember correctly. After 6 years I managed to get down to 0.5mg Pred just 2 weeks ago. Then something...

Hi everyone, I was diagnosed with PMR in 2018 if i remember correctly. After 6 ...

studiomaster

•6 hours ago

3 Replies

high inflammation markers but no pain.

I was on Prednisolone for about 6 years. For the last year I have been on zero with no recurrent symptoms of PMR. I have recently had a number of blood tests...

I was on Prednisolone for about 6 years. For the last year I have been on zero w...

Cycleman

•6 hours ago

6 Replies

Pred reduction and feelings of low blood sugar

'Morning everyone! I am using DL's slow taper and have reduced to the dose which has caused flares in the past - between 5mg and 7mg. I have been on 6mg for...

'Morning everyone! I am using DL's slow taper and have reduced to the dose whic...

Miserere

•8 hours ago

20 Replies

dexa scan results?

My dexa scan results came through, as below, would very much appreciate anyone being able to give me an idiots insight into the outcome? >> Lumbar spine BMD...

My dexa scan results came through, as below, would very much appreciate anyone ...

Cfmad298601

•9 hours ago

5 Replies

D Dims Blood test.

Had Polymyagia for 5 years but have remained active throughout. I Recently had a severe calf pain with associated swelling. Went to A & E and had a d dimer...

Had Polymyagia for 5 years but have remained active throughout. I Recently had ...

South123

•10 hours ago

5 Replies

To increase or not?

We finally had a sunny, warm day on Sunday, I went and overdid in the garden, now suffering the consequences with siftness, soreness and achiness in all the...

We finally had a sunny, warm day on Sunday, I went and overdid in the garden, no...

Orangecakes

•10 hours ago

14 Replies

meniscus pain or PMR?

I’m waiting for an operation on torn meniscus which MRI confirmed. The pain in my knees has got a lot worse over the last few months and a week ago it was...

I’m waiting for an operation on torn meniscus which MRI confirmed. The pain in m...

Mfaepink1973

•10 hours ago

3 Replies

Flare after Moderna Spikevax jab

I would like some help from you kind folks please. Successfully tapered down to 6gm of pred. With not too much trouble with all your advice on this forum. On...

I would like some help from you kind folks please. Successfully tapered down to ...

Pebblegod

•16 hours ago

12 Replies

Stomach problems and steroids - where next

I was diagnosed with polymyalgia in 2021. By summer 2023, I had reduced to 4.5mg. But the death of a close friend, for whom I am executor, resulted in a big...

I was diagnosed with polymyalgia in 2021. By summer 2023, I had reduced to 4.5mg...

Hidcote

•1 day ago

24 Replies

Glasgow support group

Our next meeting is on Monday 13 May at 2pm. We meet in the offices of Health Alliance Scotland located in the Venlaw Building at 349 Bath Street, Glasgow, G2...

Our next meeting is on Monday 13 May at 2pm. We meet in the offices of Health Al...

RichardC

•1 day ago

1 Reply

Reaction to Denosumab injection

I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was up every half hour to pee and/or poo all night! Since then I've had a lot of...

I had my first 6 monthly injection a couple of weeks ago. 2 nights later I was u...

Japsquar

•1 day ago

10 Replies

Welcome to our new members - May 2024

Hello and welcome to all our new forum members. We hope you've had a chance to look around and find answers to your questions. Here's a quick guide to get you...

Hello and welcome to all our new forum members. We hope you've had a chance to ...

Fran_Benson

Partner•1 day ago

4 Replies

Unrelated PMR question, but asking for a desperate friend in need …

A friend of mine is bewildered about what is going on with his wife’s health. He doesn’t know where to go from here, so I told him I would ask for help from...

A friend of mine is bewildered about what is going on with his wife’s health. H...

LemonZest11

•1 day ago

13 Replies

Is it a flare or something else?

I've had PMR/GCA for seven years and finally down to 4.5mg for many months. Yesterday I went down to 4.25 and have been in awful pain since, as bad as when I...

I've had PMR/GCA for seven years and finally down to 4.5mg for many months. Yes...

crafty_grannie

•1 day ago

9 Replies

After 2 days Prednisone feeling good already.

I have taken the Pret. for 10 days than 15mg for a week and now 10mg for a week and than 5 mg for a week. Reading some literature from the Royal College of...

I have taken the Pret. for 10 days than 15mg for a week and now 10mg for a week ...

HIITlover

•1 day ago

8 Replies

Moderna Vaccination

Had my vaccination last Monday never had a bad reaction before.This time I was rough until Thursday all the suspects headaches chills aches pains nausea....

Had my vaccination last Monday never had a bad reaction before.This time I was ...

Rene20

•2 days ago

10 Replies

where do I begin

I haven’t posted on here for quite a long time, however I read the posts every day. I was diagnosed with PMR and RA in April 2023. I have just been allocated...

I haven’t posted on here for quite a long time, however I read the posts every d...

Wonderfullifeandmore

•2 days ago

7 Replies

Info re another Auto Immune malady. Parkinson's

This info from the Michael J. Fox institute might be of interest to other followers of this site. The topic is dealing with the pain associated with...

This info from the Michael J. Fox institute might be of interest to other follow...

Canuk

•2 days ago

1 Reply

Trigger finger (and toes)

i have for a long time had a tendency for my toes to cramp and ‘lock up’ and also very occasionally my fingers too. However recently, since my PMR diagnosis,...

i have for a long time had a tendency for my toes to cramp and ‘lock up’ and als...

Sally_Bones43

•2 days ago

16 Replies

Turmeric and a Flare and Drama + Thoughts

Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some success (I think - quite strongly) with varying Turmeric shots and soluble lozenges...

Turmeric and so on….. Flare up … Drama Hello everyone…. I have had some succe...

discoballs

•2 days ago

33 Replies

Still suffering

Still on 6.5mg of pred just over 6 weeks now I’ve added in the occasional day of 6.25 to start a dead slow reduction again. The anxiety is still severe...

Still on 6.5mg of pred just over 6 weeks now I’ve added in the occasional day of...

Oscarsnan

•2 days ago

4 Replies

Skin problems at low dose

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though attempts to get below this are so far not working but I am being patient. However...

I was so happy to finally get down to 5mg after 4+ years PMR and GCA...though at...

Waves2

•2 days ago

45 Replies

Pmr , Rs3pe

My dad is 78 yrs old was fit and healthy he started having symptoms of limited shoulder movement, pain at the back of his thighs , swollen hands that he...

My dad is 78 yrs old was fit and healthy he started having symptoms of limited s...

bmwm135i

•2 days ago

6 Replies

Stopping Alendronic Acid

I've been taking Alendronic Acid along with pred (on the insistence of GPs and rheumy) for 2 years. At last I've managed to get a Dexa scan and they told me...

I've been taking Alendronic Acid along with pred (on the insistence of GPs and r...

Sammo47

•2 days ago

12 Replies

Is this a flare ?

Hi all. I don't post on here often but I read lots of other posts so know you all know so much more about this than me. I have had PMR for about 4 years and...

Hi all. I don't post on here often but I read lots of other posts so know you al...

lindtbunnynut

•3 days ago

22 Replies

No Cominarty Vaccine!!

I've had the call for my Spring covid booster, but unfortunately I can't have Spikevax (Moderna) as last time I was given it I spent the next 6mths sorting out...

I've had the call for my Spring covid booster, but unfortunately I can't have Sp...

Kendrew

•3 days ago

23 Replies

Can you help regarding symptoms?

Full disclosure here. My ability to determine my health status is lacking. I either over-react or under-react. I never believed I had PMR but I also didn't...

Full disclosure here. My ability to determine my health status is lacking. I eit...

FreeWolf

•3 days ago

10 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Heebeejeebies on low pred??

PMR cough

Skipping a dose of Methotrexate

Back up to a high steroid dose

high inflammation markers but no pain.

Pred reduction and feelings of low blood sugar

dexa scan results?

D Dims Blood test.

To increase or not?

meniscus pain or PMR?

Flare after Moderna Spikevax jab

Stomach problems and steroids - where next

Glasgow support group

Reaction to Denosumab injection

Welcome to our new members - May 2024

Unrelated PMR question, but asking for a desperate friend in need …

Is it a flare or something else?

After 2 days Prednisone feeling good already.

Moderna Vaccination

where do I begin

Info re another Auto Immune malady. Parkinson's

Trigger finger (and toes)

Turmeric and a Flare and Drama + Thoughts

Still suffering

Skin problems at low dose

Pmr , Rs3pe

Stopping Alendronic Acid

Is this a flare ?

No Cominarty Vaccine!!

Can you help regarding symptoms?

Search posts

Pinned Posts

Latest poll

A quick SURVEY on COVID-19 & PMR/GCA/LVV Since the start of the COVID-19 pandemic have you experienced any of the following? Part 2

Topics

Archive